stanley-1960 started the topic Initial diagnosis in the forum General 11 years, 11 months ago
All,
I am newly diagnosed and have my initial results of which i am a little confused. I would appreciate any comments from the forum good or bad.
Urea : normal
Liver : normal
bone : normal
blood : normal
beta 2 : 4.2 mg/L
flc kappa 4120 lambada 7.81 ratio 527
iG 22.5
ldh : 486 iu/L
Unfortunately i have lesions in my right arm, ribs…[Read more]
stanley-1960 started the topic Here we go in the forum Treatment 11 years, 11 months ago
All,
I have just started on my treatment today CDT 🙁 trial computer says so. I had a 3/1 chance of getting the basic treatment and even money to get the CCRD. The result was just like my gambling on the horses if i had any luck it wouldn’t be good. Although i have read a comment from eve stating nobody really knows whats right for each…[Read more]
stanley-1960 replied to the topic Plasmacytoma in the forum General 11 years, 11 months ago
Ali,
Many thanks for the kind comments, i afraid i am waiting till Tuesday at the earliest for the start later if its trial 3 with a drip. I hope you mum’s survey is done asap and she gets seen promptly. I have started to give this disease greater thought with regards to others closest to me especially my wife and the burden i may be to her. I…[Read more]
stanley-1960 replied to the topic Hello everybody in the forum Newcomers 11 years, 11 months ago
Rebecca,
Many thanks for you positive outlook. I’m really pleased you are feeling better after you treatment. Your comments are of great comfort and have given me a boost in what has already had more ups and downs than the lift operator at the Savoy. I’m afraid getting my head round this more advanced stage is proving a little more difficult then…[Read more]
stanley-1960 replied to the topic Plasmacytoma in the forum General 11 years, 11 months ago
Ali,
I have just had it confirmed i have a plastacytoma of the fifth rib. I am on the start of my journey and have given a brief history of my story so far in the newcomers section. I will update progress as soon as i start my treatment which will be hopefully today or tuesday at the latest. I’m very sorry to here about your mum and hope she…[Read more]
stanley-1960 started the topic Hello everybody in the forum Newcomers 11 years, 11 months ago
Hi to all,
I have just been diagnosed with myeloma FINALLY. I just thought i would share my initial journey with you. In 2005 i was diagnosed with mgus as part of a routine blood check for diabetes. I attended the clinic for 2 years before being discharged with the words well you may get it when your 70 (I was 47 at the time). Since then i have…[Read more]
