stanley-1960 started the topic Initial diagnosis in the forum General 11 years, 1 month ago
All,
I am newly diagnosed and have my initial results of which i am a little confused. I would appreciate any comments from the forum good or bad.
Urea : normal
Liver : normal
bone : normal
blood : normal
beta 2 : 4.2 mg/L
flc kappa 4120 lambada 7.81 ratio 527
iG 22.5
ldh : 486 iu/L
Unfortunately i have lesions in my right arm, ribs…[Read more]
stanley-1960 started the topic Here we go in the forum Treatment 11 years, 1 month ago
All,
I have just started on my treatment today CDT 🙁 trial computer says so. I had a 3/1 chance of getting the basic treatment and even money to get the CCRD. The result was just like my gambling on the horses if i had any luck it wouldn’t be good. Although i have read a comment from eve stating nobody really knows whats right for each…[Read more]
stanley-1960 replied to the topic Plasmacytoma in the forum General 11 years, 1 month ago
Ali,
Many thanks for the kind comments, i afraid i am waiting till Tuesday at the earliest for the start later if its trial 3 with a drip. I hope you mum’s survey is done asap and she gets seen promptly. I have started to give this disease greater thought with regards to others closest to me especially my wife and the burden i may be to her. I…[Read more]
stanley-1960 replied to the topic Hello everybody in the forum Newcomers 11 years, 1 month ago
Rebecca,
Many thanks for you positive outlook. I’m really pleased you are feeling better after you treatment. Your comments are of great comfort and have given me a boost in what has already had more ups and downs than the lift operator at the Savoy. I’m afraid getting my head round this more advanced stage is proving a little more difficult then…[Read more]
stanley-1960 replied to the topic Plasmacytoma in the forum General 11 years, 1 month ago
Ali,
I have just had it confirmed i have a plastacytoma of the fifth rib. I am on the start of my journey and have given a brief history of my story so far in the newcomers section. I will update progress as soon as i start my treatment which will be hopefully today or tuesday at the latest. I’m very sorry to here about your mum and hope she…[Read more]
stanley-1960 started the topic Hello everybody in the forum Newcomers 11 years, 1 month ago
Hi to all,
I have just been diagnosed with myeloma FINALLY. I just thought i would share my initial journey with you. In 2005 i was diagnosed with mgus as part of a routine blood check for diabetes. I attended the clinic for 2 years before being discharged with the words well you may get it when your 70 (I was 47 at the time). Since then i have…[Read more]
