[steverobinsonParticipant]

well I have ticked off the first item on my list
Went to my sisters 50th birthday in Cayman and while there had a dive with a very understanding dive master.
Put the gear on in the water to save me lugging it around the boat and had a great dive apart from the mask strap breaking at 100′ ! 4 turtles, 3 rays and a barracuda all seen in the 45 mins I was down there. wonderful !!!

[steverobinsonParticipant]

Hello Eve and boot neck hubby
He was 59 Commando royal Artillary so an army commando trained rank. I was an RN Commando trained doc with logs at seaton and 42 Commando at bickleigh. So I was a " Rubber dagger REMF" most of the time. Mind you it took me three goes on the course as I kept getting biffed (broken)
I chose SCT as my symptom progression was quite rapid and the neurological elements if left would have soon made me unsuitable for the procedure. I don't regret it even though I felt like I'd been in Union street for a month!
My plan is to dive again
Spearfish again
Cycle lands end to john o groats
Go to Australia and yes the Galapagos as well

Cheerfulness in the face of adversity !!

Steve

[steverobinsonParticipant]

You will be a lot worse if you get influenza than a few days of potential malaise after the jab.
I'm going for it

[steverobinsonParticipant]

Contrary to popular opinion the blue badge is not diagnosis related ie MM does not in itself automatically entitle you to it. The scheme revolves around our "range " without severe pain and discomfort. Furthermore the condition must be deemed to be permanent other wise every one on crutches with a broken ankle would get one.
So describe your bad days on the form and on your good days use your conscience.
It easy to get angry with the idiots who use our spaces but I assume their disability is they can't read the sign or an IQ below 50!!
Having said that my ex commando mate in a wheelchair has measured our local sainsburiys aisles and it just over 3/4s of a mile all the way round. His argument is to have separate wheelchair spaces but further from the door and covered so he doesn't get soaked getting in and out.

[steverobinsonParticipant]

Another newbie here ! I was diagnosed in April after two years of numb feet and other neurological issues my gp put down to stress. Young at 51 and a previously fit Commando I went for the SCT option after a brief attempt with Cyclophosphamide and Dexamethasone as I didn't relish the risk having a worsening of the neuropathy.
Just to echo the utter desolation and grief I felt initially and it still jumps on my back from time to time. A mix of surreal disbelief, anger, desolation, unfairness, sadness at times but bizarrely no fear. I am four months post SCT and now walking without sticks. I have managed a movember despite the melphalan assault and ride a Boris bike to my appointments for follow up! It's early days but I'm in remission now and another SCT in the freezer which I view as a get out of jail card to use later on.
My message is to view it as an adjustment to life not the end. Do what you can when you can and seize each and every opportunity that comes your way.Set yourself a bucket list and start ticking them off one by one.
Laugh a lot!
Love a lot!
Live a lot!

Best wishes
Steve

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