Myeloma Forum | steveneale | Activity

steveneale replied to the topic lets have some fun in the forum General

Tue, 29 Jan 2013 21:04:39 +0000

Hi jo glad your doing better, just had round 1 of this last course pp down to22 which is better than 125 lol, doc is hoping I get a couple of months break at least and when the dirty mud blood lol returns ill have ctd, how didi you find side effects of thalidomide? Lots of love stevy xxx

steveneale replied to the topic lets have some fun in the forum General

Mon, 28 Jan 2013 07:37:14 +0000

Hi tom glad your doing well, I start my cycle 8 today of vcd so looking forward to a bit of remission time after, and try and have a bit of time without tremors or dizzy spells if I can remember what thay feels like lol

steveneale started the topic lets have some fun. in the forum General

Sun, 27 Jan 2013 16:41:54 +0000

Hi guys hope you're all ok and battling on , I've decided the the name multiple myeloma sounds a bit to grand and pompus for this disease so I think we should rename it something so awful and embarrassing that it wont dare show itself again in public or marrow for that matter until a cure is found, all and any suggestions welcome, p.s.I like to…[Read more]

steveneale replied to the topic Raise your hand if you hate dex lol in the forum General

Fri, 18 Jan 2013 07:49:11 +0000

Hi eve thanks for reply sounds you you've both been through the wars, I don't suppose you remember what hubby's kidney function levels were at time of sct? Happiness and health to you both x

steveneale replied to the topic Raise your hand if you hate dex lol in the forum General

Thu, 17 Jan 2013 18:22:06 +0000

Hi guys sorry for delay in replys hope I find you all well I'm just starting my dex comedown yippee lol thanks for your input seems to be a mixed bag of opinions ill have to stick with I hate it but I gotta take it is the new motto, I've been busy trying to find out the criteria for sct as my kidney function is not great and oncologist says no…[Read more]

steveneale replied to the topic Raise your hand if you hate dex lol in the forum General

Wed, 09 Jan 2013 20:29:24 +0000

Hi sue I would check that taking dex at night that's sounds very wrong,it's always advised in the morning because of it shall we say mild waking affects lol,take care

steveneale replied to the topic Excersise in the forum General

Wed, 09 Jan 2013 20:24:46 +0000

Hi Charlie avoid swimming especially if you on chemo at the mo, pools and changing rooms are are hive of bacteria for you already weakened immune system, I would recommend walking and light cycling take care happy trails

steveneale replied to the topic Raise your hand if you hate dex lol in the forum General

Wed, 09 Jan 2013 20:01:08 +0000

Hi jo I'm keeping ok thanks,how you getting on with the velcade any nice belly bruise yet lol, are you taking dex again with it? Well other than this less than amusing myeloma I hope your ok and kidneys not giving you too much trouble

steveneale replied to the topic Raise your hand if you hate dex lol in the forum General

Wed, 09 Jan 2013 19:53:43 +0000

Hi mothas hope all ok with you, as I said to eve watch that cholesterol level and watch your weight in the first month I lost loads but since then I've put on 7 kilos which is being a sod to try and shift,take care

steveneale replied to the topic Raise your hand if you hate dex lol in the forum General

Wed, 09 Jan 2013 19:51:38 +0000

Hi eve how are you? I've been taking dex for seven months and had enough of it my first ever dose was 80 Mgs for two days in a row,I was very off my head lol , but the other hidden baddie they don't tell you it raises your cholesterol a lot so it's something I would monitor especially as my myeloma ruined my kidneys which means my diet is poor…[Read more]

steveneale started the topic Raise your hand if you hate dex lol. in the forum General

Tue, 08 Jan 2013 20:06:34 +0000

Don't know about you guys but me and dex don't get on I take 20 Mgs on Monday and 20 on Tuesday which makes me manic and can't sleep with mild tremors then the rest of the week is one big nosedive of lethargy any one else not good chums with dex? Lol

steveneale replied to the topic hi from another newbie!!! in the forum General

Mon, 07 Jan 2013 12:15:54 +0000

Hi Ali I'm sitting waiting now funnier enough for my velcade now lol, my kidneys have improved from 11 gfr to 17 but creatinine is on average. 350 and potassium levels are about 4.8 what are yours? Do you avoid toms bananas etc

steveneale replied to the topic hi from another newbie!!! in the forum General

Sun, 06 Jan 2013 18:09:14 +0000

My girl is Bulgarian never mind chemo trying to learn bulgarian is a head spinner lol

steveneale replied to the topic hi from another newbie!!! in the forum General

Sun, 06 Jan 2013 15:57:36 +0000

Hi mothas thanks for reply hope your doing well, I also believe in knowing your enemy but after seven months of chemo watching your body and lifestyle completely change and feeling like you've never felt before sometimes it's nice to forget it for a while, it's not me denying it but not giving mm the satisfaction of thinking about it every day…[Read more]

steveneale replied to the topic hi from another newbie!!! in the forum General

Sun, 06 Jan 2013 15:33:36 +0000

Hi Tom thanks for checking in, I'm not too bad little bit of dizziness in the afternoons and after seven months my stomach does not like velcade jabs anymore it looks like I'm mutating into a zombie down there lol hope your ok

steveneale replied to the topic hi from another newbie!!! in the forum General

Sun, 06 Jan 2013 15:27:38 +0000

Hi Ali hope your ok ! How are you feeling now and how's your kidneys are they starting to recover? It seems there's not too many off us with kidney trouble how are you finding the restrictive diet?

steveneale replied to the topic hi from another newbie!!! in the forum General

Sun, 06 Jan 2013 15:23:06 +0000

Hi sorry for slow reply thanks for your advice and support, so have you had sct now? Hope your feeling better and had a good Xmas, all the best for new year

steveneale replied to the topic hi from another newbie!!! in the forum General

Sun, 06 Jan 2013 15:15:36 +0000

Hi Peter sorry for delay in replying, back on all meds now so taking it seriously not too keen on the cyclo dex bit but hay ho onwards and upwards hope you had good Xmas

steveneale replied to the topic hi from another newbie!!! in the forum General

Sun, 23 Dec 2012 20:27:05 +0000

Hi thanks for the reply glad it's going ok for you I have to admit I've not been taking it to seriously not taking all my meds etc but going to knuckle down after Xmas,when I was diagnosed my pp was 125 and thought that was low lol how wrong I was after looking on here, merry Xmas to you and yours

steveneale replied to the topic hi from another newbie!!! in the forum General

Sun, 23 Dec 2012 18:48:56 +0000

Hi tom many thanks I thought I knew quite a bit a about mm but after looking on here it seems not lol merry Xmas to you and yours

steveneale started the topic hi all. in the forum Newcomers

Sun, 23 Dec 2012 14:11:32 +0000

Hi guys hope your all OK my name is Steve I've just turned 40 and have had myeloma for about 7 months' my full story is in the general section,I was wondering if anyone here is being treated in Sussex I'm being treated in Chichester and would like to meet people in same situation,merry Xmas all and healthy and happy new year

steveneale replied to the topic hi from another newbie!!! in the forum General

Fri, 21 Dec 2012 19:46:26 +0000

many thanks its nice to know im not on my own and that theres lots of support here' im getting a lovely pressie on xmas eve of velcade cyclo and dex so should be a fun xmas day lol, merry xmas all

steveneale replied to the topic hi from another newbie!!! in the forum General

Fri, 21 Dec 2012 16:52:39 +0000

thanks jo ill have a chat with my team see what they say,is anyone on here being treated in chichester?

steveneale replied to the topic hi from another newbie!!! in the forum General

Thu, 20 Dec 2012 19:50:29 +0000

hi jo!! sorry to be a newb but what is cdt? also what was your creatinine level when you were offered sct? many thanks

steveneale replied to the topic hi from another newbie!!! in the forum General

Thu, 20 Dec 2012 19:47:53 +0000

thanks for the reply my onclogist did not have a clue,thanks for putting my mind at rest

steveneale started the topic hi from another newbie!!!. in the forum General

Thu, 20 Dec 2012 18:45:47 +0000

hi guys my name is steve im 39 and live in sussex, i was diagnosed mm in june this year after 5 months of no one knowing why my kidneys were failing, so after 2 kidney biopsies and a gazillion blood tests my consultant sent me for a bone marrow biopsy "such joy" to then be told i had mm which i know i shouldnt but it made me laugh because 2 days…[Read more]