[stevo72Participant]

Hi jo glad your doing better, just had round 1 of this last course pp down to22 which is better than 125 lol, doc is hoping I get a couple of months break at least and when the dirty mud blood lol returns ill have ctd, how didi you find side effects of thalidomide? Lots of love stevy xxx

[stevo72Participant]

Hi tom glad your doing well, I start my cycle 8 today of vcd so looking forward to a bit of remission time after, and try and have a bit of time without tremors or dizzy spells if I can remember what thay feels like lol

[stevo72Participant]

Hi eve thanks for reply sounds you you've both been through the wars, I don't suppose you remember what hubby's kidney function levels were at time of sct? Happiness and health to you both x

[stevo72Participant]

Hi guys sorry for delay in replys hope I find you all well I'm just starting my dex comedown yippee lol thanks for your input seems to be a mixed bag of opinions ill have to stick with I hate it but I gotta take it is the new motto, I've been busy trying to find out the criteria for sct as my kidney function is not great and oncologist says no until they improve, but I've noticed a couple of people on here have been offered sct even though they have the same prob as me,seeing as there is no compare the sct.com I thought I'd ask here any ideas? Love and health to all

[stevo72Participant]

Hi sue I would check that taking dex at night that's sounds very wrong,it's always advised in the morning because of it shall we say mild waking affects lol,take care

[stevo72Participant]

Hi Charlie avoid swimming especially if you on chemo at the mo, pools and changing rooms are are hive of bacteria for you already weakened immune system, I would recommend walking and light cycling take care happy trails

[stevo72Participant]

Hi jo I'm keeping ok thanks,how you getting on with the velcade any nice belly bruise yet lol, are you taking dex again with it? Well other than this less than amusing myeloma I hope your ok and kidneys not giving you too much trouble

[stevo72Participant]

Hi mothas hope all ok with you, as I said to eve watch that cholesterol level and watch your weight in the first month I lost loads but since then I've put on 7 kilos which is being a sod to try and shift,take care

[stevo72Participant]

Hi eve how are you? I've been taking dex for seven months and had enough of it my first ever dose was 80 Mgs for two days in a row,I was very off my head lol , but the other hidden baddie they don't tell you it raises your cholesterol a lot so it's something I would monitor especially as my myeloma ruined my kidneys which means my diet is poor anyway, the other side effect I have is muscle wastage on legs arms and chest so sometimes even the simplest of tasks makes me shake, so as much good as it does I've found it's changed me a lot , if could just have velcade on its own it would be a breeze lol,hope all is well with you take care xxx

[stevo72Participant]

Hi Ali I'm sitting waiting now funnier enough for my velcade now lol, my kidneys have improved from 11 gfr to 17 but creatinine is on average. 350 and potassium levels are about 4.8 what are yours? Do you avoid toms bananas etc

[stevo72Participant]

My girl is Bulgarian never mind chemo trying to learn bulgarian is a head spinner lol

[stevo72Participant]

Hi mothas thanks for reply hope your doing well, I also believe in knowing your enemy but after seven months of chemo watching your body and lifestyle completely change and feeling like you've never felt before sometimes it's nice to forget it for a while, it's not me denying it but not giving mm the satisfaction of thinking about it every day especially as its affected my kidneys ie what I eat and drink how much etc, have you started treatment yet and how are you finding it? Good luck on your journey

[stevo72Participant]

Hi Tom thanks for checking in, I'm not too bad little bit of dizziness in the afternoons and after seven months my stomach does not like velcade jabs anymore it looks like I'm mutating into a zombie down there lol hope your ok

[stevo72Participant]

Hi Ali hope your ok ! How are you feeling now and how's your kidneys are they starting to recover? It seems there's not too many off us with kidney trouble how are you finding the restrictive diet?

[stevo72Participant]

Hi sorry for slow reply thanks for your advice and support, so have you had sct now? Hope your feeling better and had a good Xmas, all the best for new year

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