Myeloma Forum | NormanPhippard | Activity https://forum.myeloma.org.uk/members/strictlymyeloma/activity/ Activity feed for NormanPhippard. Wed, 22 Apr 2026 15:48:57 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 2d835985eb9fbff627728b03cdc1a75e NormanPhippard replied to the topic How do I fill this empty hole in my life? in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/how-do-i-fill-this-empty-hole-in-my-life#post-108175 Sat, 23 Mar 2013 18:30:12 +0000 Thank you Dai for your lovely reply. I will try to follow your very good advice.
I am very sorry to hear that you are near the end of your treatment options but it is brilliant that you have such important conversations with your wife. Norman just wouldn't talk about his illness. I think with hindsight he was in denial and also very scared.…[Read more]

]]> c23c5979d0eaa78068357ae879ec7aea NormanPhippard started the topic How do I fill this empty hole in my life?. in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/how-do-i-fill-this-empty-hole-in-my-life Sat, 23 Mar 2013 11:35:46 +0000 Hi,I'm having a really bad day and can't find it in me to even get out of bed. I cannot see any point in doing anything without Norman by my side. I am so lost without him.
My daughters find it upsetting as not only are they grieving but they think they are not important to me because I am so down.
The diazepan from the doctor isn't even…[Read more]

]]> 2a73538bf223e022b6df0280a697bdbf NormanPhippard replied to the topic Good-bye Michael in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/goodbye-michael/page/2/#post-108125 Fri, 15 Mar 2013 14:35:57 +0000 The abseil idea is good. My daughter did it last year and Norman insisted on us flying up to Edinburgh to support her. It was the start of his good time last year. She raised over £1,000 and I think photos are on the website.
The worst bit is walking along the bridge she said.
The hotel (Hawes Inn) at the bridge was a lovely place to stay.…[Read more]

]]> ca24ab19978a0040969ac6446d1c275d NormanPhippard replied to the topic Good-bye Michael in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/goodbye-michael/page/2/#post-108117 Fri, 15 Mar 2013 14:28:06 +0000 Hi Anne,

It seems incredible that three of us have lost our husbands on consecutive days..this disease is much more common that I ever realised.
I too feel guilty when I have times where I get involved in a TV programme (or something) and forget Norman has gone. Then the next day I get overwhelmed by grief and can't believe I will ever feel…[Read more]

]]> a1b8938477472f641d8bce840ce4b793 NormanPhippard replied to the topic Elephant In The Room in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/elephant-in-the-room#post-108133 Sun, 10 Mar 2013 22:07:56 +0000 Norman would not speak about it – I wish he had.
I just have to believe that he has gone somewhere where he will be waiting for me when my time has come.
The alternative is even more difficult to bear and I am unable to cope as it is.
Jackie

]]> 0ccb8b3fa6223f2eaf46454153298428 NormanPhippard replied to the topic Good-bye Michael in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/goodbye-michael/page/2/#post-108112 Sat, 09 Mar 2013 16:12:48 +0000 Hello Sue,

My situation is so similar to yours. My husband, Norman, passed away on 22nd Feb and the funeral was this Wednesday, 6th March.
My daughter suggested I went on this forum to try to get some support.
Norman did contribute to this website a couple of years ago when he was diagnosed but I think he went into denial.
He did pass away…[Read more]

]]> bed4e12902f1f1a10810dce3c9f44d9a NormanPhippard started the topic Holiday Insurance. in the forum Off topic http://www.myeloma.org.uk/forums/topic/holiday-insurance1308085058 Tue, 14 Jun 2011 20:57:38 +0100 hello everyone
trying again as the first message re this subject disappeared into the ether of computor messages never to be seen again
so herei go
am looking for medical insurance covering this Blar,Blar,Blar illness
previously i have used All Clear Insurances costing me £600 for a weeks cover
If i have to pay this then i will although i…[Read more]

]]> c28f6a197b29e986dd725993d396398e NormanPhippard replied to the topic Registration guide... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/registration-guide#post-83987 Mon, 13 Jun 2011 11:47:35 +0100 Good Morning Eliz
unfortunately thise particular words dont appear on my discussion board
maybe ineed to re-register?
norman

]]> ed92f0716139be0bfe5675cc194c5d02 NormanPhippard replied to the topic Registration guide... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/registration-guide#post-83983 Fri, 10 Jun 2011 12:29:44 +0100 hallo web team
may i suggest that you contact chrissie to explain the process for starting a new discussion on the myeloma site
ta

]]> 7948ecc21e3a4f18cc3148779cef488b NormanPhippard replied to the topic london hospitals SCT in the forum General http://www.myeloma.org.uk/forums/topic/london-hospitals-sct#post-89837 Wed, 23 Feb 2011 12:43:40 +0000 hello all
thankyou all for the comments and info, bridget it looks like i would be going to UCL hospital also so info was helpfull if and when i decide to go down the SCT route
the advise from my consultant is that i will have to agree SCT or i will not be able to have it later?? if i stay with the revlimid, this i dont understand!!!have made…[Read more]

]]> 7c96ccc6a580ffdab9415e4528f1ddf1 NormanPhippard started the topic london hospitals SCT. in the forum General http://www.myeloma.org.uk/forums/topic/london-hospitals-sct Sun, 20 Feb 2011 02:18:12 +0000 havn't been on site for a while now although have read all
last consultation at local hospital SCT and Valcade was mentioned as Revlimid worked well first 4 cycles now levelled out at 18
so will be trying Valcade in an attempt too lower PP's further, prior to SCT at a london hospital
can my fellow sufferers let me know which london hospitals…[Read more]

]]> e08e4448bfcc790572948a673261f804 NormanPhippard replied to the topic ANTICIPATING THE NEWS in the forum General http://www.myeloma.org.uk/forums/topic/anticipating-the-news#post-89702 Tue, 25 Jan 2011 10:02:56 +0000 good morning Kaychappers
sorry to hear about your painfull BMB
i have had three to date the first was very very painfull
after speaking to a friend who is a nurse she suggested asking for gas and air (although im not pregnant) which i duly did, luckily my consultant agreed the subsquent BMB's were completly painfree apart from feeling pressure…[Read more]

]]> 7945395a0c125b03753a99f2c82ac3e8 NormanPhippard replied to the topic Revlimid Maintenance Therapy in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlimid-maintenance-therapy#post-96802 Wed, 22 Dec 2010 21:24:21 +0000 RE: Revlimid Maintenance Therapy
22-12-2010 at 9:21 PM
hello Amelie
since diagnoses i have been on a trial with Revlimid (Lenalidomide)i understand that the dosage is low but results appear to be lowering of my PP which is what it is intended for, as i will possibly be have a first SCT in a couple of months time, Revlimid a diritative of…[Read more]

]]> c1e5f25f1985795aa1da8630c6332f7c NormanPhippard replied to the topic Revlimid Maintenance Therapy in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlimid-maintenance-therapy#post-96799 Wed, 22 Dec 2010 21:21:59 +0000 hello min
since diagnoses i have been on a trial with Revlimid (Lenalidomide)i understand that the dosage is low but results appear to be lowering of my PP which is what it is intended for, as i will possibly be have a first SCT in a couple of months time, Revlimid a diritative of Thalidamild as a first line of attack against MM no serious side…[Read more]

]]> 7ee487abc16b67d561b76697add1050a NormanPhippard replied to the topic Catch Up in the forum General http://www.myeloma.org.uk/forums/topic/catch-up#post-89262 Tue, 21 Dec 2010 05:16:02 +0000 hello Bridget
hope the rad goes well
i have been on revlomid from diagnosis last july as a trial CLD with no side effects to date apart from a red nose/face for the first few days and at this time of the year guess what i am called by Jackie my wife,
last week i was advised by my consultant that he thinks i will be offered my first SCT in a…[Read more]

]]> 35721831ee5258613d4d0d740eb93b7c NormanPhippard replied to the topic Bone Marrow Biopsy in the forum General http://www.myeloma.org.uk/forums/topic/bone-marrow-biopsy#post-89137 Thu, 09 Dec 2010 06:20:07 +0000 hallo gaye
what seems many months ago i had my first BMB
and it hurt
on the insistance of myself and my dear wife i were given gas and air at the time of the second and i didnt feel a thing apart from a mild pressure
and the same for the third the advantage is it brings back good old memories of being slghtly tippsy but with a quick recovery…[Read more]

]]> d0862cf7b780a7cc0bff1b2572e85aac NormanPhippard replied to the topic Pain in side anyone else in the forum General http://www.myeloma.org.uk/forums/topic/pain-in-side-anyone-else#post-89051 Thu, 25 Nov 2010 13:48:51 +0000 hello susan
diagnosed mm just over a month and half ago
sharp pin point pain in front right chest rib area felt this was first indication something wrong this then overtime radiated across the chest area to the left, pain killers failed to completely remove but subdued it a bit
after ist dose of chemo and steroid tablets (first month)pain…[Read more]

]]> 8c0bfaf1713873648b0746a40379af6e NormanPhippard replied to the topic Myeloma XI Trial in the forum Treatment http://www.myeloma.org.uk/forums/topic/myeloma-xi-trial#post-96594 Wed, 24 Nov 2010 14:31:31 +0000 hello debs
so far to date i can say that i have had no serious side effect from the CRD to my knowledge
i have had what i presume is the normal effects of MM, tiredness, pain moving around the torso,inistialy nights are worse with the pain causing lack of sleep and brain not working sometimes or maybe thats just senility
took a while for the…[Read more]

]]> d432f2a22e8c3b6735d0b15de3eb360a NormanPhippard started the topic Bisphosphonate. in the forum General http://www.myeloma.org.uk/forums/topic/bisphosphonate Wed, 24 Nov 2010 10:30:41 +0000 just started second month course of Chemo Trial (CRD)
in discussion with the consultant(and after reading on the internet)re possible bone damage thru MM asked if i should have this infusion at some stage (the response quite surprised me))" havn't you had this yet"!!! and yes i should have the infusion(makes me wonder a bit!!)as no recent MRI had…[Read more]

]]> d64e83dc7bf4f3bda691531661d74e54 NormanPhippard replied to the topic Myeloma XI Trial in the forum Treatment http://www.myeloma.org.uk/forums/topic/myeloma-xi-trial#post-96592 Tue, 23 Nov 2010 11:32:48 +0000 hello debs (1st time of talking)
also on trial CRD combination besides all the anti this and that
(need a backpack for meds)
Diagnosed this year approx just over a month ago asked if wanted to do trial
Revlmid (informed by med team normally issued after first relapse) trial is to see if issuing this drug earlier has any benificial effects
am…[Read more]

]]> 27a7f5efd3dcbe8f7b50794f4bc15ed0 NormanPhippard replied to the topic Sugery????? in the forum Treatment http://www.myeloma.org.uk/forums/topic/sugery#post-96573 Tue, 23 Nov 2010 09:17:04 +0000 Good Morning Bridget, i realy am slack in talking to people
Access to your pre existing X-Rays,CT and or MRI scans can be got from the hospital you had them done in, in my expeirience (ok so my spelling is not the best)it does cost money and that cost varies from each medical unit.
Contact your hospital X-Ray department, you will need you will…[Read more]

]]> ee2c31ec9c78eafb61ae62d53bd6f571 NormanPhippard replied to the topic Why is my husband in so much pain? in the forum Carers http://www.myeloma.org.uk/forums/topic/why-is-my-husband-in-so-much-pain#post-105794 Sun, 14 Nov 2010 17:12:11 +0000 Thank you Bridget.
Do you mind me asking how long ago you were diagnosed and whether you have ever taken oxycodone – if so, was it better or worse than the MST you are on now?
It's nice to know I have someone who understands.

Jackie x

]]> 306ec248cf55e375eb17bbcfca6f4b8c NormanPhippard started the topic Why is my husband in so much pain?. in the forum Carers http://www.myeloma.org.uk/forums/topic/why-is-my-husband-in-so-much-pain Sun, 14 Nov 2010 03:46:37 +0000 Hi, I'm Jackie – Norman's wife and I wondered if anyone can help me.

I'm finding all this very difficult to cope with. I do not understand why he is in so much pain and nothing is relieving it. It makes me feel really useless as I cannot do anything to help.

I just do not understand why within the first week of chemo, the pain and lump in…[Read more]

]]> 65c8b6a5082817ca4703cbe2880b7079 NormanPhippard replied to the topic Registration guide... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/registration-guide#post-83977 Fri, 12 Nov 2010 00:49:12 +0000 well done stuart i managed to follow the flow very clearly
norman

]]> 26e3b1b172d8ddb198d6af386b705d94 NormanPhippard replied to the topic Discussion forum categories... in the forum General http://www.myeloma.org.uk/forums/topic/discussion-forum-categories/page/2/#post-88771 Thu, 11 Nov 2010 13:32:22 +0000 Hello Brocho
hope all is well with you
please see my reply to minimouse as the same thoughts and feeling go to yourself also
norman

]]> a028b0f94358d2cb398a33b17951fdfd NormanPhippard replied to the topic Discussion forum categories... in the forum General http://www.myeloma.org.uk/forums/topic/discussion-forum-categories/page/2/#post-88769 Thu, 11 Nov 2010 13:30:39 +0000 hello minimouse (do you prefer min or minimouse?)
thankyou for the quick response it is good to know that there are people out there that are willing to aid and abet with problems
i saw my specialist nurse at worthing hospital today and she immedeiately took on my concerns and problems with pain control so now under a new regeime of pain control…[Read more]

]]> 7235aee10a58bda71f2fcbf6288dcf6b NormanPhippard replied to the topic Discussion forum categories... in the forum General http://www.myeloma.org.uk/forums/topic/discussion-forum-categories#post-88767 Wed, 10 Nov 2010 19:51:05 +0000 just joined the forum. one heading might be to have a heading titled 'newcomers' as im finding it hard where to start. Where questions could be asked such as how do i put a photograph on my profile.
Also a heading could be 'symptoms', as i cant find any information on the internet relating to the pains i am suffering
P.S. Just found out how to…[Read more]

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