strummer07

  • strummer07 changed their profile picture 9 years, 7 months ago

  • Thanks again for the responses. Having already got the stem cells drawn off and in storage …The £30,000.00 figure sounds about right, we will earmark some funds for this as “Contingency”
    I don’t want anyone reading this to be alarmed ..I am NOT saying that any funding for anything has been stopped. But all treatments for any drug or treatment…[Read more]

  • Thank you for the responses ! ..Much appreciated.
    Just needed to have some ball park figure ..In case !!

    Right now ( thank goodness) My wife does not need the 3rd transplant in an urgent way…but it was at her 2 year check up from SCT #2 this month ..That this slightly negative information was gleaned
    I was something like
    “Right now we are…[Read more]

  • Thanks for the responses so far…..I’d really rather keep this thread around treatment and its costs ..and not about Politics or anything else. I realise that the whole Drugs approval and funding issues can be a bit of a can of worms …. but start another thread on that if you wish.

    My question remains .. anyone have any ideas how much a stem…[Read more]

  • strummer07 replied to the topic Is it progressing in the forum Newcomers 10 years, 8 months ago

    My wife has now had 3 bone marrow biopsies and since the 2nd she has just asked for a small general anaesthetic. its very mild and only lasts for half a minute or so ..but it makes the whole thing bearable. With some hospitals you have to arrrange for it early AM as you would a normal op ..so almost do it as standard.

    Good luck with yours

  • Hi,

    My wife has had Multiple Myeloma since July 2008, and like most people its been up and down since then.

    2 x serious bouts of Chemotherapy and 2 x Autologous   Stem cell Transplants.

    First one one worked well for 18 months plus

    2nd one has lasted for just over two years now and with a small Maintenance dose (10mgs per day 21 days of…[Read more]