Myeloma Forum | susanconstantine | Activity https://forum.myeloma.org.uk/members/sue013/activity/ Activity feed for susanconstantine. Mon, 27 Apr 2026 10:26:00 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 5ef1b4c71da1946ab4fd09e89d118dfc susanconstantine replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/3/#post-122157 Sat, 16 May 2015 19:04:19 +0100 Hi Yvonne

Thank you and yes I miss him every day. He put up a very brave fight and he responded to every drug but not well enough to stay in remission for more than a couple of months. The best he got was 17 months after his SCT but quite a lot of that time was spent recovering from it. I know exactly how you feel, I saw it with Dave and I was…[Read more]

]]> c4c8189e625afab230287074d63e7f90 susanconstantine replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/3/#post-122153 Sat, 16 May 2015 14:36:01 +0100 A picture of us taken about 3 years ago. I hope I’ve put the picture on ok, can’t tell until I post it.

]]> 3121e7188b8a1573a57cd2920488673c susanconstantine replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/3/#post-122152 Sat, 16 May 2015 14:16:18 +0100 Hi Yvonne

Dave was my soul mate for over 30 years, I’m lost without him. I’ve been reading this site since he was diagnosed in 2009, always hoping to find a cure. We had never heard of Myeloma either, it came as a great shock. Dave’s GP should have arranged an X-Ray with the back pain going on for 3 months and since this did not happen for him…[Read more]

]]> 9045484c77731ed44dc60e5cf3138d8c susanconstantine replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/3/#post-122150 Sat, 16 May 2015 11:24:38 +0100 Hi Yvonne

I do think you stand a far better chance of a better response to treatment if you are being monitored. I say this because a friend of Dave’s was diagnosed with MGUS by a routine blood test and
when the Myeloma became active he lived for over 10 years with the treatment. I just look at it that
we had 9 years worry free but maybe if…[Read more]

]]> 459f0fb075d630b352570f9643fa92d8 susanconstantine replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/3/#post-122148 Sat, 16 May 2015 07:18:04 +0100 I think my husband had MGUS for at least 9 years. I noticed one day that he had lost height, he was at the time on painkillers for Spondylitis, also he used to get one cold after another. He never had blood tests done so I will never know. He started having trouble with his bladder 9 years later and was intermittently getting chest pains when…[Read more]

]]> fb9c5563d8a8ae7148d71e554ca318fb susanconstantine replied to the topic Heartbroken that he's gone in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/heartbroken-that-hes-gone/#post-119490 Sun, 16 Nov 2014 08:36:50 +0000 So sorry Rosie I also lost my wonderful husband to this terrible disease on the 15 September after a 5 year battle and I can’t believe he’s gone either, miss him so much x

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