sue48 replied to the topic Good news on Velcade + Dex in the forum Side-effects 10 years, 5 months ago
Thank you Anthony for your help, made me feel better but still confused as to what is the subcutaneous injection, compared to the intravenously is, hope your treatment continues to go well.
sue48 replied to the topic Good news on Velcade + Dex in the forum Side-effects 10 years, 5 months ago
I have just relapsed and going to start on the Velcade, reading all the side effects I am feeling worried, I was bad enough with the CDT. Just been reading Ian’s comment regarding injecting subcutaneously, what is the difference between this and intravenously please, or am I being stupid. any help would be appreciated. I will try anything so l…[Read more]
sue48 replied to the topic confused in the forum General 10 years, 11 months ago
Hi Mavis
Thank you for your reply. My Consultant never seems to give me my blood results, she just says they are normal, you are right it is a pain having to wait for the PP results I have to wait about 10 days, it’s a pity they don’t do the PP when they do the zometa.
I take the 3 capsules Curcumin a day, I have to admit, I have never fe…[Read more]
sue48 started the topic confused in the forum General 10 years, 11 months ago
Just ben to see doctor today for my 4 monthly check up, was told that my bloods were normal, apart from the para protein which I will not get results for about 10 days, I am a little confused and did not like to ask the doctor, (stupid I know) I was asking about the Kappa/Lambda and Light chains, she told me it was G but hadn’t a clue what this…[Read more]
sue48 replied to the topic Advice needed in the forum Treatment 11 years ago
Hi Trigger
I am 65 and was given the choice of a SCT but decided against it, I too didn’t want to gamble quality of life for what could be a short remission, I know everyone is different, but that is my opinion, they are bringing out different drugs different drugs out all the time.
Good Luck
Sue
sue48 replied to the topic muscle spasms? in the forum General 11 years, 1 month ago
Hi Frances
I started off with a bad back, suffered for months, my GP kept telling me it was wear and tear then muscle trouble, I suffered so much I asked for a second opinion, it was then he said I would have a blood test which came back abnormal, so he sent me for a MRI scan then a bone biopsy that is when I was diagnosed with MM, so I would i…[Read more]
sue48 changed their profile picture 11 years, 1 month ago
sue48 replied to the topic Stem Cell Transplant in the forum General 11 years, 2 months ago
Hi Peter
Thank you very much for your reply, I have just got it into my head that if I don’t go ahead I will not survive for long, but you have just given me a little bit of hope with the new drugs. My pp went up to 7.4 but on last visit it had gone down again to 7.2, do you know of any people who have not had the SCT and are doing ok. Glad y…[Read more]
sue48 started the topic Stem Cell Transplant in the forum General 11 years, 2 months ago
How many people on this site have not had a stem cell transplant, I opted out being that I was so ill with treatment, I am so worried and wondering if I have done the right thing, would feel happier if I could have some opinions.
Think this is a great site, you all seem so very friendly.
sue