[sue48Participant]

Thank you Anthony for your help, made me feel better but still confused as to what is the subcutaneous injection, compared to the intravenously is, hope your treatment continues to go well.

[sue48Participant]

I  have just relapsed and going to start on the Velcade,   reading all the side effects I am feeling worried, I was bad enough with the CDT.  Just been reading Ian’s comment regarding injecting subcutaneously, what is the difference between this and intravenously please, or am I being stupid. any help would be appreciated. I will try anything so long as I don’t get all those horrible side effects for 6 months. Also are there many people on this site who have not had a SCT, I haven’t had one, and I feel like I am being pestered to go ahead, but I made my mind up first time around that I didn’t want to go through that, being I was so ill with the CDT., Love this site.

[sue48Participant]

Hi Mavis

 

Thank you for your reply.  My Consultant never seems to give me my blood results, she just says they are normal, you are right it is a pain having to wait for the PP results I have to wait about 10 days, it’s a pity they don’t do the PP when they do the zometa.

I take the 3 capsules Curcumin  a day, I have to admit, I have never felt better for a long time, told my Consultant about them, she hadn’t heard of them, but wrote it down, she said if they were doing me good continue with them.

We had a laugh, she was telling me she had been to a meeting and they were saying green tea was good for myeloma, but you had to drink 180 cups per day, can you imagine, you would never be off the loo.

Thank you again for your reply, and take care, speak to you again I hope.

Best wishes Susan

[sue48Participant]

Hi Trigger

I am 65  and was given the choice of a  SCT but decided against it, I too didn’t want to gamble quality of life for what could be a short remission, I know everyone is different, but that is my opinion, they are bringing out different drugs different drugs out all the time.

Good Luck

Sue

[sue48Participant]

Hi Frances

I started off with a bad back, suffered for months, my GP kept telling me it was wear and tear then muscle trouble, I suffered so much I asked for a second opinion, it was then he said I would have a blood test which came back abnormal, so he sent me for a MRI scan  then a bone  biopsy that is when I was diagnosed with MM, so I would insist you have a MRI scan.

Hope all goes well for you

 

sue

 

[sue48Participant]

Hi Peter

Thank you very much for your reply, I have just got it into my head  that if I don’t go ahead I will not survive for long, but you have just given me a little bit of  hope with the new drugs. My pp went up to 7.4 but on last visit it had gone down again to 7.2, do you know of any people who have not had the SCT and are doing ok. Glad you are keeping well, keep it up. I am just going through a depressing stage at the moment, reading too much on the internet, which I know is wrong

Thank you again

Sue

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