Myeloma Forum | suea | Activity

suea replied to the topic So Sad in the forum End of Life and Grief

Sun, 23 Sep 2012 22:29:04 +0100

Thanks again Tom, I will try the counselling, but I feel at the moment that it would be comforting to talk to others in the same position as me. Ive applied to Way-up so will see how that helps. I'm still trying Macmillan chat and it helps a bit to combat the loneliness, but I need something else really. Sue

suea replied to the topic So Sad in the forum End of Life and Grief

Sun, 23 Sep 2012 16:49:10 +0100

Ok thanks Min, it does sound like the older one would be better for me so i'll try it. Sue

suea replied to the topic So Sad in the forum End of Life and Grief

Sun, 23 Sep 2012 10:42:09 +0100

Hello again Gail. I feel for you, going away for a few days is not something I could bear just now. I have a full time job and that keeps me going, although I regret that it kept me away from Colin in the last couple of months, but no one told us he wouldn't have much longer. I guess they didn't know. Even when they stopped treatment they were…[Read more]

suea replied to the topic So Sad in the forum End of Life and Grief

Sun, 23 Sep 2012 09:55:58 +0100

Thanks Tom, but unfortunately I'm too young at 47 to join Way-up, but think I am probably a bit too old for WAY itself (and anyway the WAY website seems a bit unfriendly as you can't find out about activities or try out chat until you pay them). In any case there doesn't seem to be much happening in Scotland.
Sue

suea replied to the topic So Sad in the forum End of Life and Grief

Fri, 21 Sep 2012 22:31:31 +0100

Totally understand what you are going through. I lost my lovely man in July, and he was only diagnosed just before Xmas last year. He was only just 60 when he died, and he had been playing football twice week up until the week before he was ill. I'd been with him for 10 years, although we'd only been together properly for 2. I miss him so much…[Read more]

suea replied to the topic Is there anything we can do? in the forum Treatment

Sun, 22 Jul 2012 20:57:43 +0100

My wonderful man went downhill too quickly and we never got the chance of a second opinion. He died on Thurs night. It was so fast and i am still in shock. Such a dreadful disease, my thoughts go out to all of you who are still suffering with it. Sue

suea replied to the topic Is there anything we can do? in the forum Treatment

Fri, 13 Jul 2012 17:50:12 +0100

Thanks to you all. We talked to our GP this morning and she will contact our usual consultant and is encouraging us to send him an email too, so we'll see what happens.

suea started the topic Is there anything we can do?. in the forum Treatment

Thu, 12 Jul 2012 12:35:45 +0100

My partner has a very aggressive myeloma (plasma cell leukaemia, possibly primary, but not sure) which was diagnosed just before Xmas 2011. He's had 5 cycles of RCD treatment, but the myeloma was coming back by the end of that and stem cell collection wasn't possible before he relapsed only a month later. He was given Velcade (VCD) treatment for 1…[Read more]

suea replied to the topic stem cell collection failed in the forum General

Fri, 08 Jun 2012 20:34:29 +0100

Thanks Tom, we've been in touch with the hospital and it seems the benefits outweigh the risks, so we'll see how it goes.

suea started the topic stem cell collection failed. in the forum General

Thu, 07 Jun 2012 21:08:34 +0100

Hi, My partner has plasma cell leukaemia and has been treated with Revlimid/Dex/Cyclophosphamine over 6 cycles. The recent attempt at stem cell harvesting failed and he's been told they will try again using Mozobil (plerixafor) – I've just been reading the info on this drug and it says it shouldn't be used for patients with plasma cell leukaemia.…[Read more]