Thanks again Tom, I will try the counselling, but I feel at the moment that it would be comforting to talk to others in the same position as me. Ive applied to Way-up so will see how that helps. I'm still trying Macmillan chat and it helps a bit to combat the loneliness, but I need something else really. Sue
Ok thanks Min, it does sound like the older one would be better for me so i'll try it. Sue
Hello again Gail. I feel for you, going away for a few days is not something I could bear just now. I have a full time job and that keeps me going, although I regret that it kept me away from Colin in the last couple of months, but no one told us he wouldn't have much longer. I guess they didn't know. Even when they stopped treatment they were saying he might have a few months but more likely a few weeks. As it turned out he only lasted a week after leaving the hospital.
He was my life for 10 years, even though our relationship was long distance for 8 of those. I still can't believe that after all our struggles to be together he was taken away from me so soon after we moved in together.
I don't know what to do at weekends, and evenings are not good either although I can usually fill those with chores and tv. I don't sleep well some nights, although I seem to have managed 9hrs on and off last night. My family and friends are all 400 miles away, and I would like to move back to be close to them, but I am scared of doing anything. I know you are told to wait a year or two before moving but I can't wait that long. I did have a kind of break down there a couple of weeks back, but I was still working during the day. It was good to be with them in the evenings and weekends, although I know it won't be like that if I go back to live there and I will still be alone most of the time.
Maybe it helps a bit that I was living alone for several years before Colin moved in anyway. I am fairly self sufficient and I spent most weekends alone, but he was always there to ask advice and we chatted every day. I never went on holiday alone though, and I don't want to face that. I'm not looking forward to my birthday or christmas at all.
I suppose my work gives me a focus, and I am almost the person I was before when I'm there, so I do still smile and laugh with colleagues, but it's so different at home. I'm writing this with tears streaming down my face. Our normal Sunday would be to sit in bed reading or on the laptop, then going out for lunch at a local cafe and going for a walk somewhere or visiting a castle or garden. He would have loved it this weekend too, its been so sunny and he loved to take photos of everywhere we went. I visit his grave every other weekend as its about 30 miles away, but it makes me cry.
I have been invited for counselling by the hospice where he died. I think I may do that. I have had days when I feel numb, days when I don't care if I love or die, sometimes I am angry for all the wasted time, or guilty because I wasn't with him every minute when he was in hospital for the last month, and there are things I wish we had talked about. In fact everything the websites about bereavement say you will experience, I have. The only thing I don't feel is any sense of relief. I suppose this is what we have to go through to heal.
I miss the man he was, and his kisses and cuddles. The disease took away all possibility of sex, and it hurt him sometimes even to cuddle. I couldnt even kiss him in he last few weeks because he had some kind of viral thing in his mouth that caused blisters. They never told us exactly what it was. I miss the closeness and, even though his mum says no one will blame me if I find someone else (how insensitive is that, she was already saying it just before he died), no one else will ever compare with my wonderful man.
Happy to chat on here Gail, say whatever you like. I get email notification anyway. It just helps to have somewhere to say these things, but I wish it wa live chat.
Sue x
Thanks Tom, but unfortunately I'm too young at 47 to join Way-up, but think I am probably a bit too old for WAY itself (and anyway the WAY website seems a bit unfriendly as you can't find out about activities or try out chat until you pay them). In any case there doesn't seem to be much happening in Scotland.
Sue
Totally understand what you are going through. I lost my lovely man in July, and he was only diagnosed just before Xmas last year. He was only just 60 when he died, and he had been playing football twice week up until the week before he was ill. I'd been with him for 10 years, although we'd only been together properly for 2. I miss him so much every day, but all my memories just now are of the illness. I have been chatting in the Macmillan chatroom tonight, but most people there are still suffering from the disease. I need to chat with others in my position too. I wish there was somewhere to go to meet others. When my dad died in the 70s my mum went to CRUSE meetings, but there doesn't seem to be anything like that now.
Sue x
My wonderful man went downhill too quickly and we never got the chance of a second opinion. He died on Thurs night. It was so fast and i am still in shock. Such a dreadful disease, my thoughts go out to all of you who are still suffering with it. Sue
Thanks to you all. We talked to our GP this morning and she will contact our usual consultant and is encouraging us to send him an email too, so we'll see what happens.
Thanks Tom, we've been in touch with the hospital and it seems the benefits outweigh the risks, so we'll see how it goes.