[sueblackParticipant]

Hi was diagnosed 3 years ago at 45 I have since undergone 6 months DVT chemotherapy then a stem cell transplant. I am in remission now have been for 2 years. When diagnosed I felt the same as you, I was terrified, but I googled all the wrong information. I great consultant told me according to the internet you died yesterday and I found this funny. I now only ask Myeloma uk and my consultant questions. I joined the local Myeloma support group but hadn’t wanted to as they were all much older, but it was best thing I did. A lovely lady in it has had myeloma 15 years, another 11 and I recently read an article, where a man had, had it 26 years. I love my holiday abroad and just live a normal life apart from my monthly check ups. I am now much more content with my disease as new treatments are coming through all the time. I still have my ups and downs but its not all bad. I speak to my councillor regularly and she’s great, most of the time we dont discuss my illness. Please get the correct information from the correct places. I wish you well on yr journey. If you get a chance attend a Myeloma Info day
Susan B

[sueblackParticipant]

Hi Claire, I was diagnosed in 2017 aged 46 and felt just like u, and for a while at first diagnosis it took over me, I had a stem cell transplant in Feb 2018 and I am still in remission. For me now I sometimes forget I’ve got it, until its hospital time, apart from aches and pains I’m doing great. I would say not to worry but its only natural. In reality its bark is worse than its bite x Good luck, hope this gives you some reassurance.
Sue x

[sueblackParticipant]

Hi I was diagnosed with multiple Myeloma July 2017 started chemo , end of august 2017 oral and injection until Dec. February 2018 I had a stem cell transplant (my own cells). I had my ups and downs and still do, but I speak to a councilor, because life changes. I went back to my full time job in September, but felt really tired so reduced my days from 5 to 4 but Im doing fine. Like all newly diagnosed patients I was terrified and googled the wrong places. I spoke to my consultant who informed that according to the internet you died yesterday which is very true. He directed in the right place and I came across this site. Its a very daunting time and I was only 45 when diagnosed after an eye test.
I also attended the Myeloma open day and was so scared of what I was about hear, but found it very informative and I was happy hear that Im not on my last legs. Myeloma has the fastest growing breakthroughs for treatment. and we have out amazing consultants and nurses. I had all the scans MRI.PET.CT the lot, but all part of the journey. I wish u all good luck on your journey. I hope this gives you some reassurance.

• This reply was modified 5 years, 10 months ago by  sueblack.

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