Myeloma Forum | sueharley | Activity

sueharley posted an update: Hi, I have just returned from a clinic appointment where I […]

Thu, 23 Aug 2018 14:19:12 +0100

Hi, I have just returned from a clinic appointment where I have found out that I am no longer in remission (after only 5 months) as my light chains are going up. They are 200 at the moment. My consultant is now suggesting a double SCT as my Myeloma now counts as aggresive. I was wondering if anyone else has any experience of this and what the…[Read more]

sueharley replied to the topic Lenalidomide from India in the forum Treatment

Sat, 17 Mar 2018 15:43:21 +0000

Hi Sara,

Revlimid (Lenalidomide) is not available on NHS as a maintenance chemo in England, although I think it is possible to get it on relapse. Was your mum was part of the Myeloma XI trial? If patients received Revlimid as part of the trial I believe they are entitled to have it funded by the NHS for maintenance. Also the rules in Wales and…[Read more]

sueharley started the topic Lenalidomide from India in the forum Treatment

Thu, 15 Mar 2018 18:22:23 +0000

Hi Everyone,

I am planning to visit India to get Lenalidomide (Revlimid) as a maintenance chemo. I have already found a hospital and a haemotologist who is happy to see me and prescribe 6 months of Lenalidomide. My question is, has anyone else gone down this route and were there any problems bringing medication back into the UK? Also can I travel…[Read more]

sueharley became a registered member

Tue, 20 Feb 2018 11:47:01 +0000