sueperkins started the topic Survey for AL amyloidosis patients with cardiac involvement in the forum AL amyloidosis 7 years, 2 months ago
The Amyloidosis Research Consortium in the US wants to find out more about patients with cardiac amyloidosis and their journey to diagnosis, both in the US and other countries.
If you are an AL amyloidosis patient, or a carer/family member of an AL amyloidosis patient with cardiac involvement please consider completing the relevant survey (links…[Read more]
sueperkins started the topic Respite (replacement) care bursary is now available for carers from Myeloma UK in the forum Carers 9 years ago
Thanks to generous benefactors, I’m pleased to announce that Myeloma UK is launching a Respite Care Bursary for people on a low income.
The Bursary provides funding for professional respite carer services so that a carer can take a short break from full-time carer duties. By “carer” we mean someone who looks after a partner, family member or fr…[Read more]
sueperkins started the topic Respite (replacement) care bursary is now available for carers from Myeloma UK in the forum Carers 9 years ago
<p class=”MsoNormal” style=”mso-margin-top-alt: auto; mso-margin-bottom-alt: auto; line-height: 14.25pt;”><span style=”font-family: ‘Arial’,sans-serif; mso-fareast-font-family: ‘Times New Roman’; mso-fareast-language: EN-GB; mso-bidi-font-weight: bold;”>Thanks to generous benefactors, I’m pleased to announce that Myeloma UK is launching a R…[Read more]
sueperkins replied to the topic The word "carer" in the forum Carers 9 years, 9 months ago
Hi Everyone
Thanks for your feedback. We use the term ‘carer’ as this enables us to cover a broad range of people who might be providing any sort of emotional and practical support to myeloma patients but not as part of a professional role.
It is difficult to identify an alternative that would capture everyone who would benefit from specific inf…[Read more]
sueperkins changed their profile picture 9 years, 11 months ago
