Myeloma Forum | SuePerkins | Activity https://forum.myeloma.org.uk/members/sueperkins/activity/ Activity feed for SuePerkins. Tue, 14 Apr 2026 14:35:36 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 ef958abbde3ed73cd6fc969b373f5968 SuePerkins started the topic Survey for AL amyloidosis patients with cardiac involvement in the forum AL amyloidosis https://www.myeloma.org.uk/forums/topic/survey-for-al-amyloidosis-patients-with-cardiac-involvement/ Mon, 13 Feb 2017 16:52:42 +0000 The Amyloidosis Research Consortium in the US wants to find out more about patients with cardiac amyloidosis and their journey to diagnosis, both in the US and other countries.

If you are an AL amyloidosis patient, or a carer/family member of an AL amyloidosis patient with cardiac involvement please consider completing the relevant survey (links…[Read more]

]]> 5dc78641db80e9476e2e16391492aa28 SuePerkins started the topic Respite (replacement) care bursary is now available for carers from Myeloma UK in the forum Carers http://www.myeloma.org.uk/forums/topic/respite-replacement-care-bursary-is-now-available-for-carers-from-myeloma-uk/ Tue, 24 Mar 2015 15:35:38 +0000 Thanks to generous benefactors, I’m pleased to announce that Myeloma UK is launching a Respite Care Bursary for people on a low income.

The Bursary provides funding for professional respite carer services so that a carer can take a short break from full-time carer duties. By “carer” we mean someone who looks after a partner, family member or fr…[Read more]

]]> dc73d8ac49b8f697cbf7b9cf5064af96 SuePerkins started the topic Respite (replacement) care bursary is now available for carers from Myeloma UK in the forum Carers http://www.myeloma.org.uk/forums/topic/respite-replacement-care-bursary-is-now-available-for-carers-from-myeloma-uk/ Tue, 24 Mar 2015 15:35:38 +0000 <p class=”MsoNormal” style=”mso-margin-top-alt: auto; mso-margin-bottom-alt: auto; line-height: 14.25pt;”><span style=”font-family: ‘Arial’,sans-serif; mso-fareast-font-family: ‘Times New Roman’; mso-fareast-language: EN-GB; mso-bidi-font-weight: bold;”>Thanks to generous benefactors, I’m pleased to announce that Myeloma UK is launching a R…[Read more]

]]> 3c2c40004f808d603259d1800e26a0b0 SuePerkins replied to the topic The word "carer" in the forum Carers http://www.myeloma.org.uk/forums/topic/the-word-carer/#post-116352 Tue, 01 Jul 2014 16:08:50 +0100 Hi Everyone

Thanks for your feedback. We use the term ‘carer’ as this enables us to cover a broad range of people who might be providing any sort of emotional and practical support to myeloma patients but not as part of a professional role.

It is difficult to identify an alternative that would capture everyone who would benefit from specific inf…[Read more]

]]> 719eb8cad4caa4efa33851cd972a8a42 sueperkins changed their profile picture https://forum.myeloma.org.uk/activity/p/2397/ Wed, 14 May 2014 13:15:42 +0100 0