Myeloma Forum | susanwilkes | Activity https://forum.myeloma.org.uk/members/suewi/activity/ Activity feed for susanwilkes. Tue, 21 Apr 2026 17:33:50 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 18cc0a375d3d0c6d17551f7b96fec119 susanwilkes replied to the topic About to begin treatment - but which one ? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/about-to-begin-treatment-but-which-one-/page/2/#post-87154 Sun, 27 Jan 2013 15:21:53 +0000 Hi Tim

just been reading your post, were you on the dex and thalomide, if so did you have any side affects, I am on the cdt trial with dex and thal. most of the time I feel light headed and my legs are very weak and wobbly, feel like I have no control at all, would be interested to know if you had any of those symptoms.

Take care

susan

]]> 6d31f80234a1d5bf861ac9022da3ec04 susanwilkes replied to the topic Peripheral Neuropathy in the forum Side-effects http://www.myeloma.org.uk/forums/topic/peripheral-neuropathy1355696409/page/2/#post-105030 Thu, 24 Jan 2013 21:15:16 +0000 Hi Christine
Just read your posting, what were Chris's symptoms regarding legs, I am on thalomide and my legs are very weak and wobbly find it difficult to walk, I have no spinal cord comprssion and no pain just this horrible feeling in my legs.

Hope all goes well
take care

susan

]]> ef1757ae172c9b5e6af1ddc5cb402d69 susanwilkes replied to the topic About to begin treatment - but which one ? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/about-to-begin-treatment-but-which-one-/page/2/#post-87149 Thu, 24 Jan 2013 18:07:16 +0000 Hi Tim
just been reading you reply, so gld you are doing so well, I am on my 3rd cycle and my blood hs come right down, the next step for me is the SCT, but am terrified of this and thinking of not going ahead, as I feel so well I have no pain at all, just very weak and wobbly legs, which I think could be the thalomide, what was the SCT like was…[Read more]

]]> b361e5a7c6168811b3325ee43c512ff0 susanwilkes replied to the topic About to begin treatment - but which one ? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/about-to-begin-treatment-but-which-one-#post-87141 Thu, 24 Jan 2013 18:02:08 +0000 Hi Wendy,
Just been lookin at the forum, May I ask you what side affects you had with the thalmomide, I am on this nd my legs are very weak and wobbly, taking me all my time to walk apart from that I fell just fine, no pain at all. are you going to have the SCT, I am thinking of opting out of the SCT, parlty because I feel so well. Hope…[Read more]

]]> ffdc73ecf820049e6fb4ef4296a60601 susanwilkes replied to the topic Another one in the forum Newcomers http://www.myeloma.org.uk/forums/topic/another-one#post-84008 Thu, 24 Jan 2013 10:32:39 +0000 Hi Mavis
What was the problem with your legs pls, well before I started treatment my legs were very weak and wobbly, just feel like I am going to fall over, not much control at all, but for this I would be fine, no pain at all.

Susan

]]> 4532ab9669af8039bd4bce8c1f61fc3d susanwilkes replied to the topic Another one in the forum Newcomers http://www.myeloma.org.uk/forums/topic/another-one#post-84009 Thu, 24 Jan 2013 10:30:14 +0000 Hi Susan
I am having problems with my legs, very weak and wobblyI feel like I am going to fall over some days it take me all my time to walk about, but for this I feel fine, anyone else experiencing this pls.

Hope all goes well for you

susan

]]> 5a64646f239f2f2ca5fda5701f08e4f9 susanwilkes replied to the topic Just Diagnosed in the forum Newcomers http://www.myeloma.org.uk/forums/topic/just-diagnosed1343043725/page/9/#post-86421 Thu, 24 Jan 2013 09:08:54 +0000 Hi Charlie
I like you just been diagnosed, was very confused I am on the trial CDT my 3rd cycle, I am now waiting to see about the stem cell transplant, but cant make my mind up will have to speak to the experts. Hope everything goes alright for you.

susan

]]> 4f7c5f58c807fe464ec0daedc0e111a0 susanwilkes replied to the topic Just been diagnosed with Myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/just-been-diagnosed-with-myeloma#post-87183 Tue, 22 Jan 2013 18:47:33 +0000 Hi Mavis

thank you very for your reply, it has helped me, I am 64, don't think I will go through with the SCT, unless it is absoultly necessary, I am now on my 3rd cycle of teatment and feel fine. did the thalomode affect your legs my legs are very wobbly, I was on 2 tablets for 3 weeks, then they increased to 4, I couldn't cope with the 4…[Read more]

]]> 7967cac0b9e116fad69a915b28ea39a5 susanwilkes replied to the topic Just been diagnosed with Myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/just-been-diagnosed-with-myeloma#post-87178 Mon, 21 Jan 2013 22:33:11 +0000 Hi Peter
Thank you for taking the time to reply, it just scares me thinking about the sct reding all the side affects, but I supose in the end it is worth it, it is just such a long recovry, and when you not use to be ill its a blow, will keep in contact with, and thank you once more

Susan

]]> bce20f668783f8d0437e9d8b3100e4ad susanwilkes replied to the topic Just been diagnosed with Myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/just-been-diagnosed-with-myeloma#post-87176 Mon, 21 Jan 2013 22:30:33 +0000 [i]Hi Tom
Thank you for your reply, I will be going into Mancheter Royal if I do decide to have the SCT but reding about it scares me to death with all the side affects there will be. at the moment I am on my 3rd cycle of tratment, my doctor says my blood has come down a lot and would be arranging for me to see the doctor at MRI,were you on…[Read more]

]]> e5c0911e43b4683a2ad70174be7d34f3 susanwilkes started the topic Just been diagnosed with Myeloma. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/just-been-diagnosed-with-myeloma Mon, 21 Jan 2013 13:03:29 +0000 [i]started treatment on the intensive pathway clinical trial CTD group
I am very worried about the stem cell transplant if I did not have this would I still get the treatment. Please can anyone out there advise me what to do.
thanking you

susan[/i]

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