Hi, my mum was diagnosed with MM about three weeks ago and has just finished her first cycle of Velcade. We knew nothing of the condition or that Velcade came off the CDF in Jan 2015 so my mum has been able to access it. I guess you should talk with your consultant as I believe they can make a case for these drugs on a patient by patient basis -…[Read more]

Thank you Ellen for your post, after having my mum diagnosed with MM just over two weeks ago I could hardly believe the news of these two drugs being dropped from the CDF. Obviously my mum is only just starting Velcade treatment so it doesn’t affect her quite yet (I hope not for a little while anyway) but I can see that she is one of the people…[Read more]