sukie replied to the topic Stem Cell treatment in the forum Treatment 9 years, 8 months ago
Hi Mervyn,
I hope you are feeling OK today and coping. After having put off going through the SCT process for the past 7 years, I am about to embark on it in the next few months. I have had various treatments during that time: Velcade, Revlimid, Velcade again and have now run out of options so I am taking the plunge. As I live on my own, it has…[Read more]
sukie replied to the topic Benefit Assessmsent / Claim – Where do I go from here? in the forum General 10 years, 5 months ago
Amanda, I am certainly no expert on benefit claims as I don’t receive any state benefits myself apart from my state pension. However, do seek advice from the people who understand these things. Macmillan in my area are wonderful and if there is a Macmillan nurse in the hospital your husband attends then I wouldn’t hesitate to ask her advice.
Hope…[Read more]
sukie replied to the topic Scared, Confused, and Hating the Irony in the forum Newcomers 10 years, 9 months ago
Hello, Treakle.
Finding out that your Dad has myeloma must be scary but he and you will cope with it. I was diagnosed, aged 58, in August 2007, just a year after my husband died, so I have had to cope with the various treatments and attendant problems on my own. Yes, I have a wonderful family but I can’t and don’t expect them to run round after…[Read more]
sukie replied to the topic Pomalidomide – can we compare results, please? in the forum Treatment 11 years ago
Hi Carol,
Thanks for replying. I was starting to think I was the only person in the UK on Pom seeing as I had no replies!
So glad to hear that Pom is working for you. As I said, I am one of the lucky ones as each new treatment has been highly effective for me. That’s why I was growing so downhearted when the Pom failed to do anything. That plus…[Read more]
sukie started the topic Pomalidomide – can we compare results, please? in the forum Treatment 11 years, 1 month ago
I am about to start my 4th cycle of Pomalidomide although I am feeling a little downhearted at the moment. I saw my consultant yesterday and it appears that my pps haven’t fallen since I started this treatment. They were 20 then and they are 20 now which is not the sort of result I was hoping for. These results were from bloods taken after c…[Read more]