Hi Adrian like Kevin said exactly three weeks from having the chemotherapy given to me before harvest which starts the body producing stem cell my hair fell out. For me as l had long hair was very traumatic but was warned this would happen around his time. I had Hairdresser on stand by and she came right around on that sunday for me and l shaved…[Read more]

Steriod treatment and dosage

Hi just wanted to ask has anyone been told that it’s been found in recent study that the four day treatment of steriods we take with treatment ie  four days Dex on four day off then four days on etc is not necessarily? I have been put on only once a week steriods with my lenalidomide as apparently any more than 40 mg…[Read more]

Hi susie

l for finished  velcade treatment in November and yes you need to do bloods before each velcade injection its a bit of a bind but they need to keep eye on what’s happening to all your blood counts, l go up to my local out patients blood testing department its local to me you just take a ticket and wait to get called. Never wait more…[Read more]

Hello l to like you experienced a lot of side effects while taking vtd, l thought it was the velcade giving me my symptoms but actually think it was the thalidomide. I too was very tired, l didn’t have swelling in my legs but they were very week even to the point that l couldn’t stand for very long, if l bent down to say get something out of low…[Read more]