Love Sue xx

I am so sorry for your loss, I know it's not easy to hear some things right now, but Michael is out of pain, and you have to look after yourself now.

I understand what you mean by all the attention going away after the funeral and leaving you alone, I lost my ex husband nearly 13 years ago ( not myeloma related) and I have since…[Read more]

Let's keep the fight going in 2013

Love Sue xx

Hope you and Mike are ok. Just to let you know you are not alone in feeling this way. Martin and me feel exactly the same as you and mike, cheated of our future together as we have only been married 8 years.
What we have to hang on to is the hope as a patient and carer that the future years will bring either a cure or longer…[Read more]

Try rubbing 'palmers' cocoa butter into them. I had this whenI was on Thalidomide maintainence. – neuropothy maybe. I tried other cheaper brands but only palmers really worked.

Take Care

Love Sue x

Love to you both

sue xx

So glad to hear you are home and things with the stomach seem to be improving, my stomach is not too good at the moment as I keep getting really bloated. I will have to wait for the outcome of the colonoscopy I suppose. I also have poor eyesight since transplant and find I now have to have an eye test every 12 months instead of 2 years…[Read more]

The gastrologist said there is 'no cancer'-thank God! However, I have diverticulitus and I have to have another colonoscopy (lovely) to check the large bowl/intestine incase there is an infection present,and also to see what the treatment will be.

I hope you are at home now Gill and feeling much better. I have my colonoscopy on 16th…[Read more]

onwards and upwards (as tom…[Read more]

Like Penny, Sharon was so brave and battled so hard to stay with her husband and 2 young children, and I am so proud to have called Penny and Sharon…[Read more]

Rip Penny, an inspiration to us all, far too young to die.

Love Susan Spruce x

I am 3 years post sct and still in remission, I have also had problems with my stomach eg. I can't have chocolate, cream or ice cream or the next morning I know about it, I have the runs and stomach pains.

I have recently had an colonoscopy (not nice !) ultrasound, ct scan, barium meal and an endoscopy. 3 months ago my…[Read more]

Love Sue xx

I am so sorry to hear about the loss of your husband and childrens father Phil, hang on to the good times and they will see you through,

love and thoughts

Sue xx

I feel so frustrated for you, you are a true inspiration to all of us. I am hoping and praying for you in the hope they find some other treatment, stay strong, as I know you will !!
Love Sue

I drink about 2.5 litres of water per day and have done for the last four years since diagnosis. I use a water filter jug and a 2 litre plastic bottle, and drink it throughout the day. I also find that in the winter it is really difficult to drink water so I don't put it in the fridge as it goes down much easier when it not too cold. In…[Read more]

Love Sue xx

I had my sct 2.5 years ago and I am still in remission at this moment. I will try to list a few tips for you,

1. Sucking ice cubes whilst having high dose therapy before receiving stem cells back can prevent an event of painful mouth ulcers later, also use the mouthwash povided.

2. Good hygiene is very important, so try to…[Read more]

Great idea about Maureen Lipman, I do think it needs to be someone high profile to get the word across, another one would be Sir Ian Botham, he does a lot for Leukaemia and blood cancers,

Love Sue xx

Always good to hear some inspiring news, thanks

love sue xx

Love Sue xx

Yes I am still in remission and thanks for asking, long may it last !!, it's been 2.5 years since my sct and at my last 2 monthly meeting with my consultant (2 weeks ago) , my paraproteins were still 3, and he said the myeloma was stable.

I hate this illness it's like constantly being under threat of having your future plans and…[Read more]

I haven't spoken to you for a while, but I do read all the mailings on this site and the under 50's . The last time we corresponded you knitted me a hat and I sent you lots of buttons.

I am so sorry to hear about the tumour, but you have a lovely sense of humour and your a great fighter, that tumour doesn't stand a chance !!!!…[Read more]

I am so very sorry to hear of the loss of Kevin, he was a soldier to the end.

Love Sue xx

Take Care,

love sue xx

Sorry to hear you are in the hospital again , I have had bad back pain this weekend around the place where they do the bone marrow biopsy. I know about spinal chord compression as you know before xmas I had to go in for the day myself to have a scan, and that is what they were concerned about then. But in all honesty, I still do not…[Read more]

You are one tough cookey Sharon, so I know you will come through all
this stuff that must be testing you right now. I hope you are ok now after the bit of a…[Read more]