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	<title>Myeloma Forum | susannah. | Friends Activity</title>
	<link>https://forum.myeloma.org.uk/members/susannah/activity/friends/</link>
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				<title>GillSeaward replied to the topic Being Silly over Mince Pies in the forum Off topic</title>
				<link>http://www.myeloma.org.uk/forums/topic/being-silly-over-mince-pies/#post-126930</link>
				<pubDate>Wed, 17 Feb 2016 11:56:46 +0000</pubDate>

									<content:encoded><![CDATA[<p>Hi Vicki, I have already tried to reply to your message but I lost the post somewhere in the ether. Apart from sport which Stephen loved and I loathe, it seems that you and Colin lived the same life as us. We would spend whole Saturday afternoons trying out different recipes with very few disasters. Once Stephen had to stop working we went out to&hellip;<span class="activity-read-more" id="activity-read-more-43414"><a href="http://www.myeloma.org.uk/forums/topic/being-silly-over-mince-pies/#post-126930" rel="nofollow">[Read more]</a></span></p>
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				<title>GillSeaward started the topic Being Silly over Mince Pies in the forum Off topic</title>
				<link>http://www.myeloma.org.uk/forums/topic/being-silly-over-mince-pies/</link>
				<pubDate>Sat, 09 Jan 2016 21:02:14 +0000</pubDate>

									<content:encoded><![CDATA[<p>Stephen never had a sweet tooth for sweets, biscuits fruit pies etc. An occasional square of chocolate (I have an &#8220;occasional&#8221; bar of chocolate very regularly and I scoff the whole bar). His one love was mince pies. From the moment they hit the shops he would stack up. He&#8217;d the longest sell by dates he could find and squirrel them away. I haven&#8217;t&hellip;<span class="activity-read-more" id="activity-read-more-42529"><a href="http://www.myeloma.org.uk/forums/topic/being-silly-over-mince-pies/" rel="nofollow">[Read more]</a></span></p>
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				<title>TinaDavis replied to the topic 3 years in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/3-years/#post-124619</link>
				<pubDate>Thu, 15 Oct 2015 13:32:38 +0100</pubDate>

									<content:encoded><![CDATA[<p>Hi Gill,</p>
<p>I too do not look at the site very much these days. My darling husband died in May 2011 and I remenber every last detail of his last few days alive just as if it was last week. Pat is definately looking over my shoulder I can hear him telling me off only too often?<br />
I always wondered what you were giggling about in your photograph, now I&hellip;<span class="activity-read-more" id="activity-read-more-41389"><a href="http://www.myeloma.org.uk/forums/topic/3-years/#post-124619" rel="nofollow">[Read more]</a></span></p>
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				<title>GillSeaward replied to the topic 3 years in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/3-years/#post-124479</link>
				<pubDate>Fri, 02 Oct 2015 04:47:48 +0100</pubDate>

									<content:encoded><![CDATA[<p>p.s picture was taken on holiday. Stephen&#8217;s face was so calm but I was giggling because he was pinching my bum!!</p>
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				<title>GillSeaward started the topic 3 years in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/3-years/</link>
				<pubDate>Fri, 02 Oct 2015 04:34:56 +0100</pubDate>

									<content:encoded><![CDATA[<p>I don&#8217;t look on here often. My darling husband died on the 11th of September 2012. He was 57. We both knew he had terminal mm but didn&#8217;t expect him to go downhill so quickly. On his last visit to the oncologist he was told he had 2 years left hopefully more. He was dead 4 weeks later. His oncologist was genuinely shocked. As were his chemo nurses.&hellip;<span class="activity-read-more" id="activity-read-more-41201"><a href="http://www.myeloma.org.uk/forums/topic/3-years/" rel="nofollow">[Read more]</a></span></p>
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				<title>GillSeaward started the topic 3 years in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/3-years/</link>
				<pubDate>Fri, 02 Oct 2015 04:34:56 +0100</pubDate>

									<content:encoded><![CDATA[<p>I don&#8217;t look on here often. My darling husband died on the 11th of September 2012. He was 57. We both new he had terminal mm but didn&#8217;t expect him to go downhill so quickly. On his last visit to the oncologist he was told he had 2 years left hopefully more. He was dead 4 weeks later. His oncologist was genuinely shocked. As were his chemo nurses.&hellip;<span class="activity-read-more" id="activity-read-more-41199"><a href="http://www.myeloma.org.uk/forums/topic/3-years/" rel="nofollow">[Read more]</a></span></p>
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				<title>GillSeaward started the topic Birthday Lunch for Stephen in the forum Off topic</title>
				<link>http://www.myeloma.org.uk/forums/topic/birthday-lunch-for-stephen/</link>
				<pubDate>Sat, 11 Apr 2015 16:40:09 +0100</pubDate>

									<content:encoded><![CDATA[<p>My Husband died in September 2012. He would have been 60 on the 31st March and a few weeks before that date I got a cheque out of the blue for just over £700. The company had paid one of Stephen&#8217;s insurances wrongly and the cheque represented the shortfall plus interest.</p>
<p>Pat has been our very best friend since God was a boy and wore short&hellip;<span class="activity-read-more" id="activity-read-more-38505"><a href="http://www.myeloma.org.uk/forums/topic/birthday-lunch-for-stephen/" rel="nofollow">[Read more]</a></span></p>
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				<title>TinaDavis replied to the topic Bendamustine treatment in the forum Treatment</title>
				<link>http://www.myeloma.org.uk/forums/topic/bendamustine-treatment/page/2/#post-121683</link>
				<pubDate>Fri, 10 Apr 2015 10:03:33 +0100</pubDate>

									<content:encoded><![CDATA[<p>Hi,</p>
<p>My late husband Pat did very well on Bendamustine in 2010 for over a year with very little side effects. Unfortunately he was a long way down the treatment road before he started it, who knows, it could have worked for longer if he had started earlier. </p>
<p>Good Luck</p>
<p>Tina</p>
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				<title>GillSeaward replied to the topic Heartbroken that he&#039;s gone in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/heartbroken-that-hes-gone/page/2/#post-121265</link>
				<pubDate>Thu, 12 Mar 2015 16:34:42 +0000</pubDate>

									<content:encoded><![CDATA[<p>I am so sorry that your husband has gone. I would love to tell you that it gets better, but you do learn to deal with it. My children were much older than yours. They may be very angry with Dad and feel very guilty for feeling that way.</p>
<p>I am no expert or councillor but I wonder if it would help to let them know that is OK to be angry with Dad. He&hellip;<span class="activity-read-more" id="activity-read-more-38112"><a href="http://www.myeloma.org.uk/forums/topic/heartbroken-that-hes-gone/page/2/#post-121265" rel="nofollow">[Read more]</a></span></p>
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				<title>GillSeaward replied to the topic Tears and Onions in the forum Off topic</title>
				<link>http://www.myeloma.org.uk/forums/topic/tears-and-onions/#post-121263</link>
				<pubDate>Thu, 12 Mar 2015 16:16:29 +0000</pubDate>

									<content:encoded><![CDATA[<p>Hi Tina </p>
<p>You hold on to that tea towel forever. I cannot use a &#8220;steel&#8221; to sharpen knives but I would never part with it. I miss Stephen so, so much and do not think that will ever change, but I have learned to carry on. I also realise that family and friends have no idea how much I am still grieving, but that&#8217;s OK. It&#8217;s how it should be.</p>
<p>Love&hellip;<span class="activity-read-more" id="activity-read-more-38110"><a href="http://www.myeloma.org.uk/forums/topic/tears-and-onions/#post-121263" rel="nofollow">[Read more]</a></span></p>
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				<title>TinaDavis replied to the topic Tears and Onions in the forum Off topic</title>
				<link>http://www.myeloma.org.uk/forums/topic/tears-and-onions/#post-121145</link>
				<pubDate>Thu, 05 Mar 2015 12:59:04 +0000</pubDate>

									<content:encoded><![CDATA[<p>Hi Gill,<br />
I have a kitchen thing going on too. My dear husband Pat died in May 2011, seems like yesterday. Pat and I had been together for 35 yrs and had moved house a number of times, I guess many people move items with them that they should really throw away. Well we had a really old tea towel that Pat had when I first met him when he was living&hellip;<span class="activity-read-more" id="activity-read-more-37987"><a href="http://www.myeloma.org.uk/forums/topic/tears-and-onions/#post-121145" rel="nofollow">[Read more]</a></span></p>
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				<title>TinaDavis replied to the topic Tears and Onions in the forum Off topic</title>
				<link>http://www.myeloma.org.uk/forums/topic/tears-and-onions/#post-121145</link>
				<pubDate>Thu, 05 Mar 2015 12:59:04 +0000</pubDate>

									<content:encoded><![CDATA[<p>Hi Gill,<br />
I have a kitchen thing going on too. My dear husband Pat died in May 2011, seems like yesterday. Pat and I had been together for 35 yrs and had moved house a number of times, I guess many people move items with them that they should really throw away. Well we had a really old tea towel that Pat had when I first met him when he was living&hellip;<span class="activity-read-more" id="activity-read-more-37986"><a href="http://www.myeloma.org.uk/forums/topic/tears-and-onions/#post-121145" rel="nofollow">[Read more]</a></span></p>
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				<title>GillSeaward started the topic Tears and Onions in the forum Off topic</title>
				<link>http://www.myeloma.org.uk/forums/topic/tears-and-onions/</link>
				<pubDate>Sun, 15 Feb 2015 14:25:33 +0000</pubDate>

									<content:encoded><![CDATA[<p>My husband died in September 2012. His first job after leaving school was as a trainee butcher for Sainsbury&#8217;s. As a result of that he could carve meat properly, bone out meat and sharpen knives. I had inherited a couple of sets of cutlery and a couple of sets of knives.</p>
<p>The knives all had bone or ivory handles (not P.C. But they were over 100&hellip;<span class="activity-read-more" id="activity-read-more-37590"><a href="http://www.myeloma.org.uk/forums/topic/tears-and-onions/" rel="nofollow">[Read more]</a></span></p>
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				<title>GillSeaward replied to the topic Heartbroken that he&#039;s gone in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/heartbroken-that-hes-gone/#post-119962</link>
				<pubDate>Sun, 14 Dec 2014 14:07:48 +0000</pubDate>

									<content:encoded><![CDATA[<p>Dear Rosie<br />
I am so sorry to read that Chris has gone. I don&#8217;t come on here very often now. My darling husband, best friend and soul mate died in September 2012 aged 57. There is not one day that I don&#8217;t miss him. I have passed the stage of disbelief, in the early days I would wake up and, half asleep, look to my right and try to work out where he&hellip;<span class="activity-read-more" id="activity-read-more-36827"><a href="http://www.myeloma.org.uk/forums/topic/heartbroken-that-hes-gone/#post-119962" rel="nofollow">[Read more]</a></span></p>
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				<title>GillSeaward replied to the topic Heartbroken that he&#039;s gone in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/heartbroken-that-hes-gone/#post-119962</link>
				<pubDate>Sun, 14 Dec 2014 14:07:48 +0000</pubDate>

									<content:encoded><![CDATA[<p>Dear Rosie<br />
I am so sorry to read that Chris has gone. I don&#8217;t come on here very often now. My darling husband, best friend and soul mate died in September 2012 aged 57. There is not one day that I don&#8217;t miss him. I have passed the stage of disbelief, in the early days I would wake up and, half asleep, look to my right and try to work out where he&hellip;<span class="activity-read-more" id="activity-read-more-36826"><a href="http://www.myeloma.org.uk/forums/topic/heartbroken-that-hes-gone/#post-119962" rel="nofollow">[Read more]</a></span></p>
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				<title>TinaDavis replied to the topic Heartbroken that he&#039;s gone in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/heartbroken-that-hes-gone/#post-119540</link>
				<pubDate>Tue, 18 Nov 2014 13:27:11 +0000</pubDate>

									<content:encoded><![CDATA[<p>Hi Rosie,</p>
<p>I too don&#8217;t visit the site too often now since my dear husband passed away in May 2011.</p>
<p>So sorry to hear your news. I hope you get the support you need from family and friends. </p>
<p>Take Care</p>
<p>Tina XX</p>
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				<title>GillSeaward replied to the topic DEXAMETHASONE- debilitating side effects after only 2 cycles of vcd!! in the forum Side-effects</title>
				<link>http://www.myeloma.org.uk/forums/topic/dexamethason-debilitating-side-effects-2week-break-after-only2-cycles-of-vcd/#post-119216</link>
				<pubDate>Sat, 01 Nov 2014 03:56:18 +0000</pubDate>

									<content:encoded><![CDATA[<p>My husband was on a really high dose of dex. It turned him from a laid back pussy cat who rarely got angry to a a bad tempered, argumentive monster. We called this dexatude. I hope you are on a low dose and it is not affecting you too badly </p>
<p>Gill</p>
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				<title>GillSeaward replied to the topic Losing dad after 19 years of MM in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/losing-dad-after-19-years-of-mm/#post-119083</link>
				<pubDate>Sat, 25 Oct 2014 02:49:45 +0100</pubDate>

									<content:encoded><![CDATA[<p>I am sorry that your Dad has died. I am sure your post will make people more hopefull. He actually lived on for 19 years after diagnosis. Let&#8217;s hope for a breakthrough soon. My husband died 4years after diagnosis aged 57</p>
<p>Gill</p>
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				<title>GillSeaward replied to the topic SLIM  in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/slim-my-soul/page/3/#post-118061</link>
				<pubDate>Thu, 11 Sep 2014 01:18:22 +0100</pubDate>

									<content:encoded><![CDATA[<p>I hope Slim&#8217;s funeral went really well, and was a real celebration of his life. Gil xx</p>
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				<title>TinaDavis replied to the topic SLIM  in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/slim-my-soul/page/2/#post-118050</link>
				<pubDate>Tue, 09 Sep 2014 20:17:06 +0100</pubDate>

									<content:encoded><![CDATA[<p>Dear Eve,<br />
I am sure you had many funny stories to tell and listen to today as you were celebrating Slim&#8217;s life. As you leave one &#8220;club&#8221; you are joining me and other cyber friends in another.<br />
Best wishes to you in your new life.</p>
<p>Tina xx</p>
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				<title>GillSeaward replied to the topic SLIM  in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/slim-my-soul/page/2/#post-118022</link>
				<pubDate>Mon, 08 Sep 2014 14:37:10 +0100</pubDate>

									<content:encoded><![CDATA[<p>I will be with you both tomorrow and I hope it is a wonderful celebration of Slim&#8217;s life. Don&#8217;t forget a straight back, determination and a pocket full of tissues. </p>
<p>When Stephen died my daughter flew over from the States. She was devastated that she did not arrive before Stephen died, but she said she was there to support me. Bless her she sorted&hellip;<span class="activity-read-more" id="activity-read-more-28017"><a href="http://www.myeloma.org.uk/forums/topic/slim-my-soul/page/2/#post-118022" rel="nofollow">[Read more]</a></span></p>
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				<title>GillSeaward replied to the topic SLIM  in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/slim-my-soul/page/2/#post-117905</link>
				<pubDate>Wed, 03 Sep 2014 02:33:33 +0100</pubDate>

									<content:encoded><![CDATA[<p>Dear Eve</p>
<p>I am truly sorry to hear of Slim&#8217;s death. Stephen died nearly 2 years ago. Sometimes it seems like a lifetime away and sometimes it feels as though it was yesterday.</p>
<p>Like you and Slim there was nothing left unsaid between us, and as for regrets? I have none. (as long as you don&#8217;t count the fact that he got this bastard disease). </p>
<p>For a&hellip;<span class="activity-read-more" id="activity-read-more-27889"><a href="http://www.myeloma.org.uk/forums/topic/slim-my-soul/page/2/#post-117905" rel="nofollow">[Read more]</a></span></p>
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				<title>TinaDavis replied to the topic SLIM  in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/slim-my-soul/page/2/#post-117875</link>
				<pubDate>Mon, 01 Sep 2014 10:18:25 +0100</pubDate>

									<content:encoded><![CDATA[<p>Dear Eve,<br />
Although I haven&#8217;t posted for a while I have been following both Slim&#8217;s and your journey with MM.I felt his time was close and truly dreaded the pain that will be with you now.<br />
I am thinking of you and although I know you have the strength to cope I hope you have family and friends to help you through.</p>
<p>Tina XX</p>
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				<title>GillSeaward replied to the topic Cost of Stem cell transplants  in the forum Treatment</title>
				<link>http://www.myeloma.org.uk/forums/topic/cost-of-stem-cell-transplants/#post-117700</link>
				<pubDate>Tue, 26 Aug 2014 01:15:05 +0100</pubDate>

									<content:encoded><![CDATA[<p>My husband had 2 SCTs in 2010/2011 we were told that the cost of each was £30,000 We were fortunate enough to have private health care and the bills we received were for food etc in the hospital.</p>
<p>I am still not sure who paid the cost of the SCTs but I think they were on the NHS.</p>
<p>If they have stopped funding transplants on the NHS I would sign&hellip;<span class="activity-read-more" id="activity-read-more-27724"><a href="http://www.myeloma.org.uk/forums/topic/cost-of-stem-cell-transplants/#post-117700" rel="nofollow">[Read more]</a></span></p>
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				<title>Gill posted an update: @janey18</title>
				<link>https://forum.myeloma.org.uk/activity/p/2715/</link>
				<pubDate>Tue, 10 Jun 2014 11:45:28 +0100</pubDate>

									<content:encoded><![CDATA[<p><a href='http://www.myeloma.org.uk/members/janey18/' rel="nofollow">@janey18</a> </p>
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				<title>GillSeaward replied to the topic Just under a month in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/just-under-a-month/#post-114857</link>
				<pubDate>Sun, 04 May 2014 14:44:52 +0100</pubDate>

									<content:encoded><![CDATA[<p>My husband died in September 2012 aged 57. He had had mm for 4 years but the end came very suddenly. The pain will never go completely lesj, but you learn to cope with it. I miss Stephen all the time, but have learnt how to cope.</p>
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				<title>GillSeaward replied to the topic ROLLER COASTER RIDE in the forum Carers</title>
				<link>http://www.myeloma.org.uk/forums/topic/roller-coaster-ride/page/2/#post-113406</link>
				<pubDate>Sun, 02 Mar 2014 14:52:32 +0000</pubDate>

									<content:encoded><![CDATA[<p>PS great news about your daughter. I don&#8217;t suppose you will have time to post with your visitors are with you. So post nice long message after they have gone xxxx</p>
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				<title>GillSeaward replied to the topic ROLLER COASTER RIDE in the forum Carers</title>
				<link>http://www.myeloma.org.uk/forums/topic/roller-coaster-ride/page/2/#post-113405</link>
				<pubDate>Sun, 02 Mar 2014 14:48:48 +0000</pubDate>

									<content:encoded><![CDATA[<p>Eve I had chicken pox aged 28 I was delirious and could see spiders climbing up the walls. The pain was unbelievable. When my kids had it as children they were absolutely fine</p>
<p>My daughter was terribly ill when she caught measles and was close to being hospitalised but we were told not to have her vaccinated because she suffered from febrile&hellip;<span class="activity-read-more" id="activity-read-more-1379"><a href="http://www.myeloma.org.uk/forums/topic/roller-coaster-ride/page/2/#post-113405" rel="nofollow">[Read more]</a></span></p>
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				<title>GillSeaward replied to the topic ROLLER COASTER RIDE in the forum Carers</title>
				<link>http://www.myeloma.org.uk/forums/topic/roller-coaster-ride/page/2/#post-113096</link>
				<pubDate>Wed, 19 Feb 2014 12:03:58 +0000</pubDate>

									<content:encoded><![CDATA[<p>Hi Eve and Slim I don&#8217;t log on very often and I was sorry to hear that Slim had been so unwell, but things seem to have improved a great deal since you changed hospitals.</p>
<p>None of us are oblivious to just how life threatening mm is, and I think the quality of life is paramount. </p>
<p>As you know Stephen died in 2012 aged 57. Up until a few weeks&hellip;<span class="activity-read-more" id="activity-read-more-1219"><a href="http://www.myeloma.org.uk/forums/topic/roller-coaster-ride/page/2/#post-113096" rel="nofollow">[Read more]</a></span></p>
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				<title>GillSeaward replied to the topic Balancing supporting/caring and working in the forum Carers</title>
				<link>http://www.myeloma.org.uk/forums/topic/balancing-supportingcaring-and-working/#post-112408</link>
				<pubDate>Sun, 02 Feb 2014 05:50:24 +0000</pubDate>

									<content:encoded><![CDATA[<p>Hi Sarah </p>
<p>I don&#8217;t post very often but still have a look now and again to see how people are getting on.</p>
<p>It is a very hard decision you are faced with especially as you have years of work ahead of you. My husband was diagnosed in 2008 just after his 53rd birthday I was 5 years older (I always said he was my toy boy but my daughter told me he&hellip;<span class="activity-read-more" id="activity-read-more-940"><a href="http://www.myeloma.org.uk/forums/topic/balancing-supportingcaring-and-working/#post-112408" rel="nofollow">[Read more]</a></span></p>
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				<title>TinaDavis replied to the topic Where do we go? in the forum General</title>
				<link>http://www.myeloma.org.uk/forums/topic/where-do-we-go/#post-112199</link>
				<pubDate>Fri, 24 Jan 2014 17:46:17 +0000</pubDate>

									<content:encoded><![CDATA[<p>Hi Charlie and Mary,</p>
<p>If you are referring to the area of Buckinghamshire I can certainly recommend it. My husband had very good treatment in both High Wycombe and Stoke Mandeville Hospitals. There never appeared to be an issue with trying new treatments or spending money on treatment.</p>
<p>Hoipe this helps</p>
<p>Best Wishes</p>
<p>Tina</p>
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				<title>Gill started the topic Hard time of year in the forum Off topic</title>
				<link>http://www.myeloma.org.uk/forums/topic/hard-time-of-year/</link>
				<pubDate>Thu, 26 Dec 2013 04:48:42 +0000</pubDate>

									<content:encoded><![CDATA[<p>My husband (Stephen) died 15 months ago in September 2012 It was 3 months before Christmas and I was still shocked at how fast the end came and, looking back, probably quite numb. I turned down all the very kind invites for Christmas day and just got on with another day. </p>
<p>It is hard this year I have spent Christmas day on my own (by choice I did&hellip;<span class="activity-read-more" id="activity-read-more-340"><a href="http://www.myeloma.org.uk/forums/topic/hard-time-of-year/" rel="nofollow">[Read more]</a></span></p>
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				<title>Gill replied to the topic Sore Mouth with Revlimid in the forum Side-effects</title>
				<link>http://www.myeloma.org.uk/forums/topic/sore-mouth-with-revlimid/#post-111340</link>
				<pubDate>Wed, 11 Dec 2013 22:43:32 +0000</pubDate>

									<content:encoded><![CDATA[<p>I don&#8217;t come on here very often now but  I know that Corsodyl toothpaste and mouthwash really helped Stephen</p>
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				<title>Gill replied to the topic It&#039;s Back in the forum Treatment</title>
				<link>http://www.myeloma.org.uk/forums/topic/its-back/#post-111275</link>
				<pubDate>Mon, 09 Dec 2013 04:04:46 +0000</pubDate>

									<content:encoded><![CDATA[<p>Hi Tom so sorry to hear your news but there seems to be a great many new drugs coming on the scene to keep mm in control.</p>
<p>I know that everybody on here has their fingers crossed that your medics find the right one for you to kick the blasted disease into touch for a long time.</p>
<p>Much Love Gill xxx</p>
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				<title>Gill started the topic It&#039;s harder this year and I don&#039;t know why in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/its-harder-this-year-and-i-dont-know-why/</link>
				<pubDate>Thu, 05 Dec 2013 14:25:31 +0000</pubDate>

									<content:encoded><![CDATA[<p>My Husband, Stephen, died in September 2012 I don&#8217;t remember much about that Christmas. Stephen and I didn&#8217;t rate Christmas much after the children had grown up and left home. They visited some time over the holiday but M.I.L always expected the kids to spend Christmas with her and D.I.L. and I wanted to be on my own. I will be on my own (by&hellip;<span class="activity-read-more" id="activity-read-more-74"><a href="http://www.myeloma.org.uk/forums/topic/its-harder-this-year-and-i-dont-know-why/" rel="nofollow">[Read more]</a></span></p>
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				<title>TinaDavis replied to the topic Press pause then wait and see... in the forum Treatment</title>
				<link>http://www.myeloma.org.uk/forums/topic/press-pause-then-wait-and-see#post-102455</link>
				<pubDate>Sun, 05 May 2013 18:45:02 +0100</pubDate>

									<content:encoded><![CDATA[<p>Hi Dai,</p>
<p>Unfortunately low platelet and neuts are the biggest drawback of Bendamustine treatment. Hope you get your neuts up and you can continue with treatment soon. </p>
<p>Best Wishes<br />
Tina X</p>
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				<title>TinaDavis started the topic New Facebook Page for those who have lost loved ones. in the forum Off topic</title>
				<link>http://www.myeloma.org.uk/forums/topic/new-facebook-page-for-those-who-have-lost-loved-ones</link>
				<pubDate>Fri, 03 May 2013 20:16:58 +0100</pubDate>

									<content:encoded><![CDATA[<p>Hi<br />
Susannah and I have started a Facebook page called &quot;a new life&quot;. Here, those who have lost thier loved ones can communicate with each other outside of the forum and hopefully meet up from time to time and share each others stories, give and recieve support and hopefully have some good times.</p>
<p>Just type &quot;in a new life&quot; in the search optionof&hellip;<span class="activity-read-more" id="activity-read-more-25496"><a href="http://www.myeloma.org.uk/forums/topic/new-facebook-page-for-those-who-have-lost-loved-ones" rel="nofollow">[Read more]</a></span></p>
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				<title>TinaDavis replied to the topic Keith Hindmarch in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/keith-hindmarch1367593561#post-108233</link>
				<pubDate>Fri, 03 May 2013 17:31:04 +0100</pubDate>

									<content:encoded><![CDATA[<p>Thankyou Ellen for breaking this expected but nonetheless very sad news.</p>
<p>Dear Sue,</p>
<p>Please accept my heartfelt condolences. I am so glad that you have your family and friends around you to offer love and support. Keith sounded like a wonderful man, he gave an awful lot of advice and comfort to many of us on the forum and we are so grateful&hellip;<span class="activity-read-more" id="activity-read-more-23277"><a href="http://www.myeloma.org.uk/forums/topic/keith-hindmarch1367593561#post-108233" rel="nofollow">[Read more]</a></span></p>
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				<title>TinaDavis replied to the topic Keith Hindmarch in the forum General</title>
				<link>http://www.myeloma.org.uk/forums/topic/keith-hindmarch/page/2/#post-95104</link>
				<pubDate>Sat, 27 Apr 2013 19:09:41 +0100</pubDate>

									<content:encoded><![CDATA[<p>Thankyou Ellen  for passing on such sad information. I remember Keith from the old site giving so much comfort and information to us all. Keith I am sure you knew your time was limited and hope you are comfortable and can leave this world in peace.<br />
Sue I wish you both much strength and my very best wishes, my thoughts are with you.</p>
<p>God Bless</p>
<p>Tina X</p>
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				<title>GillSeaward replied to the topic Elephant In The Room in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/elephant-in-the-room/page/3/#post-108163</link>
				<pubDate>Sat, 27 Apr 2013 18:13:35 +0100</pubDate>

									<content:encoded><![CDATA[<p>Good luck and Good health to you all.</p>
<p>But please remember how long you lived is not so important as how well you lived, how much you and those around you enjoyed your life and the legacy you left behind</p>
<p>Stephen died last September, young, needed and missed by all who loved him. </p>
<p>Please don&#039;t feel as though it is all doom and gloom Eve but&hellip;<span class="activity-read-more" id="activity-read-more-23211"><a href="http://www.myeloma.org.uk/forums/topic/elephant-in-the-room/page/3/#post-108163" rel="nofollow">[Read more]</a></span></p>
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				<title>GillSeaward replied to the topic Keith Hindmarch in the forum General</title>
				<link>http://www.myeloma.org.uk/forums/topic/keith-hindmarch#post-95100</link>
				<pubDate>Thu, 25 Apr 2013 13:40:43 +0100</pubDate>

									<content:encoded><![CDATA[<p>I hate mm I wish Keith and Sue all the strength they need to have in the coming weeks    Gill xxxx</p>
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				<title>GillSeaward replied to the topic Dad&#039;s final days in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/dads-final-days#post-108224</link>
				<pubDate>Thu, 18 Apr 2013 01:05:15 +0100</pubDate>

									<content:encoded><![CDATA[<p>Dear Tanya</p>
<p>I am so sorry for the grief and pain you are feeling. I am also thankful that your dad&#039;s end was peaceful, pain free and you were with him.</p>
<p>Stay in touch if you would like support. No doubt you will be very busy over the next few days but we will be here when you need a few words of sympathy and encouragement.</p>
<p>Love from Gill xx</p>
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				<title>GillSeaward replied to the topic Lovely memories but quite a few sniffles in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/lovely-memories-but-quite-a-few-sniffles#post-108214</link>
				<pubDate>Sat, 13 Apr 2013 22:44:13 +0100</pubDate>

									<content:encoded><![CDATA[<p>Thanks Tom </p>
<p>Yes to be dead 2 months after the photos were taken is unbelievable. But my garden is still amazing and a tribute to Stephen&#039;s skill, ability and vision. I am lucky to have so many reminders of what he achieved. House transformed, garden pretty damn good, 2 naughty little Westies (the jury is still out on that:-)  love them really&hellip;<span class="activity-read-more" id="activity-read-more-23258"><a href="http://www.myeloma.org.uk/forums/topic/lovely-memories-but-quite-a-few-sniffles#post-108214" rel="nofollow">[Read more]</a></span></p>
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				<title>GillSeaward replied to the topic Lovely memories but quite a few sniffles in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/lovely-memories-but-quite-a-few-sniffles#post-108212</link>
				<pubDate>Fri, 12 Apr 2013 16:30:31 +0100</pubDate>

									<content:encoded><![CDATA[<p>Hi Everybody </p>
<p>Just to share some other memories I found in that camera. On a couple of the other photos on the memory stick more of the garden is showing behind Stephen. </p>
<p>For 5 years after moving in here we concentrated on making the house &quot;habitable&quot; Ok we had running water, a smelly working loo, and windows, although we couldn&#039;t see out of&hellip;<span class="activity-read-more" id="activity-read-more-23256"><a href="http://www.myeloma.org.uk/forums/topic/lovely-memories-but-quite-a-few-sniffles#post-108212" rel="nofollow">[Read more]</a></span></p>
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				<title>GillSeaward replied to the topic Dad&#039;s final days in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/dads-final-days#post-108218</link>
				<pubDate>Fri, 12 Apr 2013 13:26:30 +0100</pubDate>

									<content:encoded><![CDATA[<p>I am glad that your dad is comfortable and not in pain. I think that, apart from willing our loved ones to get better and not leave us, a peaceful and pain free end is something we all hope for.</p>
<p>Do keep in touch. Nobody on here can change what is to be but people can give you support,heartfelt sympathy and kindness </p>
<p>Gill xx</p>
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				<title>TinaDavis replied to the topic Lovely memories but quite a few sniffles in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/lovely-memories-but-quite-a-few-sniffles#post-108210</link>
				<pubDate>Wed, 10 Apr 2013 18:48:46 +0100</pubDate>

									<content:encoded><![CDATA[<p>Gill,</p>
<p>What a great find. Michael comes across as a very kind man.</p>
<p>Take care</p>
<p>Tina X</p>
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				<title>GillSeaward replied to the topic Lovely memories but quite a few sniffles in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/lovely-memories-but-quite-a-few-sniffles#post-108207</link>
				<pubDate>Wed, 10 Apr 2013 01:22:02 +0100</pubDate>

									<content:encoded><![CDATA[<p>I had the photo printed off at a camera shop.  They printed off a 5 x 7 and framed it. It is &quot;very Stephen&quot;  kind eyes,  dog lover, calm personality  and &quot;sticky out ears&quot; .  He was never vain but I know he would have said &quot;I am sure my ears are getting bigger. Trust you to get the sun shining through them to make them look even worse :)&quot;</p>
<p>Gill&hellip;</p>
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				<title>GillSeaward started the topic Lovely memories but quite a few sniffles. in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/lovely-memories-but-quite-a-few-sniffles</link>
				<pubDate>Tue, 09 Apr 2013 16:01:01 +0100</pubDate>

									<content:encoded><![CDATA[<p>I don&#039;t know if I mentioned that I sorted through Stephen&#039;s cameras and came across a memory stick in one that had not seen the light of day. You can imagine my joy and tears to discover this I think they are the last pictures taken of Stephen before he died. His hair has grown back pointing the opposite way from before chemo and he was obviously&hellip;<span class="activity-read-more" id="activity-read-more-23246"><a href="http://www.myeloma.org.uk/forums/topic/lovely-memories-but-quite-a-few-sniffles" rel="nofollow">[Read more]</a></span></p>
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				<title>GillSeaward replied to the topic Two and a half years in the forum General</title>
				<link>http://www.myeloma.org.uk/forums/topic/two-and-a-half-years/page/2/#post-94749</link>
				<pubDate>Tue, 09 Apr 2013 13:05:26 +0100</pubDate>

									<content:encoded><![CDATA[<p>I have missed so many posts on here since Stephen died that I did not register that Slim was unwell. There is so little I can say I can only send you kind thoughts and love. </p>
<p>Gill xx</p>
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				<title>TinaDavis replied to the topic Not the Right Time in the forum End of Life and Grief</title>
				<link>http://www.myeloma.org.uk/forums/topic/not-the-right-time#post-108195</link>
				<pubDate>Mon, 08 Apr 2013 20:40:57 +0100</pubDate>

									<content:encoded><![CDATA[<p>Hi Sue,</p>
<p>I had most of Patrick&#039;s ashes interned at a beautiful woodland burial park with his brother, I kept back a small amount which I keep at home with me. Maybe you could think about doing this too?</p>
<p>Best Wishes to you</p>
<p>Tina x</p>
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