Hi Sabs

I have read of patients getting myeloma in their 20’s in an American forum. It would appear that patients are being diagnosed younger and younger as 15-20 years ago this was considered an older patients disease (65-75) , and I suspect that that is the reason for OS at that time being so poor.  Of course today there are the novel agents…[Read more]

Dear Mike

Thank you for your reply and kind words. I do believe in gaining as much knowledge about ones disease as possible, even though at times it is not comfortable reading. If I have helped one person with this information then I am happy. Another well know phenomenon is oligoclonal banding which commonly occurs after asct.  Fingers crossed…[Read more]

Hi Simone

I have just posted a new topic on secondary mgus which gives my history of mm. I was 51 when I was diagnosed and was told I had probably had it for at least 2 years. I went into renal failure, and 3 vertebra collapsed for which I had vertebaplasty. My back pain disappeared overnight with this procedure and it felt strong again. This…[Read more]

Hi Bluelibran,

I’m sorry to hear that you are having to deal with multiple diagnoses. I can’t help regarding your query as I have just the myeloma to deal with, but I wanted you to know that I hope things turn out well for you and I will say a prayer for you. Keep strong and stay positive.

Sue

Hi Kitson

I too have lambda light chain myeloma. It is more troublesome from the kidney point of view. Lambda flc are a little bigger than kappa flc so can block the filters in the kidneys resulting in kidney damage. My flc were 6900 when I was diagnosed, my creatinine was 241 and I was in acute renal failure. Drink plenty at least 3 litres a day…[Read more]