susie started the topic Back Pain in the forum Newcomers 10 years, 5 months ago
Hi All, I know I don’t come on here that much, but I often do come on this site and see how you are all doing. I just have a question I hope someone can answer. I’m just an MGUS person. My paraprotein is stable and checked every 4 months.
Over the past few months I’ve had alot of back pain. I’m sure its mechanical. I have arthritis which causes a…[Read more]
susie replied to the topic New look website in the forum Off topic 10 years, 9 months ago
Hi All,
Love the new website except for one thing, I’m missing some of the page on posts on the right side. It’s obscured and I don’t know why,so I can’t read all of the posts. Has anyone else had this problem.?
susie started the topic mgus check up. in the forum Related conditions 11 years, 5 months ago
Hi All
I go for my 4 monthly MGUS check on Tues. I have just one question. I've had several nose bleeds recently. Does anyone know if there is a connection with MGUS, so should I mention it to consultant.
My last PP were 32 up from 28, but everything else was ok and consultant made nothing of it.
susie started the topic mgus check up. in the forum Newcomers 12 years, 1 month ago
Hi All, Haven't posted in a few months but I do come onsite regularly and check up how everyone is doing. Went for my regular Mgus check and nothing has changed thank goodness. PP's are still at 30. I'm free for another 4 months.
My best wishes to everyone. I hope things go well for you.
Sue
susie replied to the topic hi in the forum Newcomers 12 years, 5 months ago
Hi Alison
If it helps you to remember me, you did come to my retirement do at the Harvester about 3yrs ago.I retired about a year after that "big move" we all had to bear. Obviously it would be unwise to put my surname on the web but I hope your memory is now jogged.
I gather you're back at work now. How are you in yourself? I do hope you are…[Read more]
susie replied to the topic hi in the forum Newcomers 12 years, 5 months ago
Hallo Alison
I was so surprised to see you've had cause to join this group. I'm sure you'll get all the support you need from these super people.
If you're wondering who I am, I used to work with you at that marvellous estabishment in chalfont st peter before I retired.
I'm so much better off than most on here as I only have MGUS so am being…[Read more]
susie replied to the topic Another newcomer in the forum Newcomers 12 years, 5 months ago
Hallo Everyone
Great news. Its MGUS. My marrow only showed 2-3% plasma cells. So its just 4 monthly monitoring.
Thank you for being there
Susie
susie replied to the topic Another newcomer in the forum Newcomers 12 years, 5 months ago
Thank you Helen.You described the feelings to a tee. I'm feeling a bit calmer today, it seems to catch me when I'm not expecting it. Keep saying to myself what will be will be. I get my results on Tuesday and my sister is coming with me. She had breast cancer 12 yrs ago so she knows the ropes with this sort of thing.
Thanks again, I'll post…[Read more]
susie replied to the topic Another newcomer in the forum Newcomers 12 years, 5 months ago
Hi All
Hope you don't mind my rantings but I've only got a few more days till I get my actual diagnosis and I've got the real wobbles. In fact to be honest I'm s**t scared. I'm just hoping with all my strength that it will be MGUS or smoldering. Sorry to be such a wimp but I can't help it. The thought of my life being taken over by drugs and…[Read more]
susie replied to the topic Another newcomer in the forum Newcomers 12 years, 6 months ago
Hi All
I just wanted to thank you for all your replies.
I had the bone marrow done yesterday and had no problems till I got in car today. The seat seemed to hit the spot and its been really painful since. I have taken some paracetamol, it has taken the edge off. Hope it wont last too long. It feels like i've been kicked in the bum by a rather…[Read more]
susie started the topic Another newcomer. in the forum Newcomers 12 years, 6 months ago
Hallo
I've just joined your very interesting site, and my tale is as follows.
8 weeks ago I went to my GP coz my arthritis was causing me problems. The results of the bloods she took led me down a very unknown road. Mind you, it did take the surgery weeks to call me in, just for Dr to tell me she was refering me to a haematolagist. Imagine my…[Read more]
