susie45 replied to the topic Diagnosed in June 2017 in the forum Newcomers 7 years, 7 months ago
Hi Kazza, just seen your post…
I was diagnosed last September and after 4 cycles of chemo my pp was down to 4 and was told I was a suitable candidate for sct. I was petrified and said that I couldn’t go through with it. My anxiety was really high. I had had a bad start to the chemo the steroids didn’t agree with me and made me over anxious and…[Read more]
susie45 replied to the topic Recovery after Stem Cell Transplant in the forum Newcomers 7 years, 7 months ago
Hi Adrian
I had my SCT in London. One big tip I would give is that you stay in hospital until you feel you are ready to come out. I left too early and that’s why I had a lot of trouble.
I am really improving now , can stand and walk about for longer if only my taste buds would get back to normal I would be pleased!!!!
Keep me updated and good…[Read more]
susie45 replied to the topic Recovery after Stem Cell Transplant in the forum Newcomers 7 years, 7 months ago
Hi Adrian,
Well done you!
Believe you me the end is in sight! It was 7 weeks ago that I had my transplant done and really it has gone so quickly. I have improved greatly from when I first posted on the forum. I think that speaking to people who had actually gone through it helped me tremendously! If I sit up in bed or on a chair I feel totally…[Read more]
susie45 replied to the topic Recovery after Stem Cell Transplant in the forum Newcomers 7 years, 7 months ago
Hi Adrian,
How did it go on Tuesday? How are you feeling?
Susie
susie45 replied to the topic Recovery after Stem Cell Transplant in the forum Newcomers 7 years, 7 months ago
Hi Adrian,
I too had a picc line in my arm but only for the stem cell transplant and the weeks following. I didn’t feel it go in and I was surprised when they said it was done .As for afterwards I forgot it was there. Taking it out was no trouble either.
I know how nervous you must feel I was exactly the same about everything!
Best of luck…[Read more]
susie45 replied to the topic Recovery after Stem Cell Transplant in the forum Newcomers 7 years, 7 months ago
Hi Kevin.
Thanks for your reply, as I said to Greg I think I am trying to run before I can walk! I just thought that I would be a bit more mobile at this stage and able to stand up for more than two minutes without feeling so weak!
I will certainly take notice from what you have said and let nature take its course.
Many thanks and take care,
Susie
susie45 replied to the topic Recovery after Stem Cell Transplant in the forum Newcomers 7 years, 7 months ago
Hi Greg, thanks for replying so quickly. It is good to hear your views, maybe I am trying to run before I can walk…..I will certainly not beat myself up about not being able to do things any more! Many thanks and wishing you continued good health!
Best wishes,
Susie
susie45 started the topic Recovery after Stem Cell Transplant in the forum Newcomers 7 years, 7 months ago
Hi, I am 6weeks post stem cell treatment. I am still feeling weak, tastebuds still awful, effort to walk anywhere. I am wondering if this is normal after this amount of time. I was discharged from hospital after 3 weeks but had to be re- admitted after 3 days with constant nausea and diarrhoea and not being able to eat. I spent a further 2 weeks…[Read more]
susie45 became a registered member 7 years, 7 months ago