suzettefox

  • Hi Helen

    sorry to hear your experience with the biopsy. Never plesent .  I had my first one with no pain relief, apparently East Surrey have no pain relief available, my next two have been at the marsden where they give gas and air.  It does help, apparently the idea is to have about 17 deeps breaths before they start and continue throughout t…[Read more]

  • suzettefox posted a new activity comment 8 years, 8 months ago

    Welcome Paulo
    I am a new member too, I have gained a lot from reading other people’s expirences I hope you do also
    Suzette

  • suzettefox changed their profile picture 8 years, 8 months ago

  • Hi all

    I can see you are all approaching your SCT soon, just like to say all the best to you and I hope it goes well.    I had mine November 14,  as you say Helen, everyone is different, I have chatted with a lot of patients at the marsden when on hospital visits and we all vary in our symptoms before and after SCT.  I have had encouraging new…[Read more]

  • suzettefox replied to the topic Pain after SCT in the forum Newcomers 8 years, 8 months ago

    Thank you for getting back to me.  It is reassuring to hear from you that I am not alone in this pain thing.  I am seeing the pain team again in a couple of weeks and will mention the pregablin. I have heard of other people taking this.  My curvature in my back is made worse by my breast bone (sternum) collapse because of the myeloma. It is a st…[Read more]

  • suzettefox started the topic Pain after SCT in the forum Newcomers 8 years, 8 months ago

    Hi my name is Suzette fox, I was diagnosed  last May.  I had my SCT in November 2014 . I am in remission but I am still in constant pain.  I have curviture of the spine at T6.7.8 and  I have had  kyphoplasty.  Does anyone else still have pain. I am on fentanyl  x3 patches every three days

    regards

    suzette

  • I was diagnosed last May 2014. I have had STC last November. I was told about this site but never signed up. I was at the marsden last week feeling a little bit sorry for myself !! They mentioned this site. I am just getting used to it and hopefully be able to either help people with my experience and be helped and reassured by yours. I have…[Read more]

  • suzettefox became a registered member 8 years, 8 months ago