Latest update – Have had a few goodish in part days this last week. Still fatigued with more nausea than when on chemo, still feeling shit far too often and occasionally a bit fed up of being ill.

Start 10 daily blasts of radiotherapy on Thursday on my pelvis, so expecting to be even more fatigued for a while. Possible bowel side effects as…[Read more]

Hi Claires,

How much morphine is he on and what kind?

I started on 2 tabs of slow release per day and 6 doses of oramorph. Was well spaced out but the pain became manageable and changed to stiffness. There was some breakthrough pain when in certain positions but it wasn’t too bad.

Quick update –

Seem to have gone backwards since stopping chemo. Serious, continuous fatigue, upset stomach with some occasional continence issues, altered or no appetite, more frequent nausea, odd sleep patterns and physically weaker.

Have first consultation for radiotherapy on Monday 20th.

Ent ded though, which is nice.

The start of my diagnosis began when I collapsed at the wheel. Luckily, I was parked at the time – I was a taxi driver. Anaemia. Been prone to it for years but hadn’t realised my count was so low.

Thing is, there’s no specific level that’ll cause a blackout, so I decided there and then that I’ll never drive again. I’ll not endanger others for my…[Read more]

Thanks David.

Have to say I’ve had more pain since stopping chemo and I’m permanently exhausted but things are changing daily. Swollen feet have gone down somewhat today but legs and feet are very tender. Added to which I’ve felt more nauseous in the last few days than in the whole previous 4 months.

I realise though that I’ve been comparatively…[Read more]

Well today I finished my 6th cycle of CDT and visited my consultant. Paraproteins have dropped so low that they can’t be given a number – I’m thus officially in remission; yahoo!

Still to have radiotherapy on pelvis and ribs at the least, so awaiting first consult on that.

Large mass in pelvis was biopsied last week and all that can be said thus…[Read more]

Hi David, Simon,

Didn’t mean to sound downbeat, more of an info post really. As I come to the end of my 6 cycle induction, I have to admit it’s become a bit wearing, constant tiredness, difficulty with eating, fat legs etc but I’ve only felt nauseous about 3 or 4 times which was quickly addressed with meds. Feeling sick is absolutely the worst…[Read more]

Sorry for the delay in responding David, haven’t visited here for a while.

Day 10 of 6th cycle now, finish on 22nd Feb. Monday I’ve got an ultrasound and probable biopsy of the mass in my pelvis – should have had it already but it was cancelled because I needed to stop Fragmin for 4 days and hadn’t done so.

Depending on the outcome I’ve then got…[Read more]

Hi All, a quick update –

Finished fourth cycle of CTD today and had a consult yesterday. Apparently all my bloods are looking spiffing and although no figures were available for paraproteins, overall protein level had come way down and thus the paraproteins will have done, meaning that I’ve responded well so far and the myeloma cells have been…[Read more]

My condolences MM, to you and your family.

Hi David,

Could be that the MRI scan, x-rays and bloods give sufficient for diagnosis and the biopsy adds detail such as the specific type or stage.

On the bright side I got an information pack today that my daughter asked for. From this very site. I think it’ll take all week to read it all.

I’d already started a diary, but the one delivered is…[Read more]

Hi All,

Just had the bone marrow biopsy; fairly painless except for the last bit. Results apparently take two to three weeks. However, next consult with haematologist is next Monday.

Seems odd. Bone biopsy is supposed to confirm or not but the nurse who did the test seemed to suggest it was just an added extra.

Just a matter of waiting, I…[Read more]

Hi Tony,

Cheers for that, hope you keep on keeping on.

And David, thanks for your input as well, sorry I’m a bit late answering your post.

Hi All,

Just been perusing the net while having a conversation with daughter. She’s annoyed that official confirmation won’t be until after biopsy and scan. I’m going along with assuming it’s confirmed and anything less will be a bonus.

She’s also annoyed that I was originally told by phone, as in, ‘One of your blood test results is high. In…[Read more]

Thanks David.

Have just had my initial consultation; the doc says although the blood and urine tests so far point to myeloma, it’s can’t be properly confirmed yet due to my other ailments. But he thinks it is myeloma.

Got the bone marrow biopsy next Monday but may get it brought forward to Thursday and should be called asap for MRI.

Keep on…[Read more]

Thanks for that Louis. I’ll continue to post as new info or changes occur. Just to add, I’ve got a list of questions for the initial consultation and a pad to keep a record of everything. Will also record consultation if allowed.

Keep on keeping on

Taff