Hi Julie

Thank you so much for your uplifting post – so good to hear that your experience of SCT was pretty positive overall and that you did not suffer any infections – did you take any particular precautions re infection control? I’m very obsessive anyway about cleanliness – I’ve just been totally disinfecting Kevin’s bathroom and bedroom…[Read more]

Hi Keith

Thank you so much for your reply and indeed I have been following your posts since your SCT too. it’s good to see that you are doing well and it was interesting to have details of your journey so far.

Actually Kevin’s progress so far seems to be similar to yours – now its Day 2 after having the stem cells transplanted and he is feeling…[Read more]

Hi Louise

Thank you so much for your post, there’s always a lot of comfort when you hear a positive story and I was pleased to hear about your father and how well he is now. I’m wondering if he had any bone or kidney damage at diagnosis and what his para protein levels were? Does he realise what a rare entity he is! Was he misdiagnosed with…[Read more]

Hi Megan

Thank you for your welcome and for sharing your husband’s experience of the PADIMAC trial. the info you have given is very helpful- currently, in cycle 3, my husband’s pp levels are down by 80% and it’s feasible I guest gather may be down by 90% plus. He really wants to how ahead either the SCT as soon as poss as his age may be against…[Read more]

Oh she is just so gorgeous! Those eyes and all that hair – you must ache to meet her! Re vaccinations – I gleaned quite a lot from the WM site and I believe you are ok unless you have to have live vaccines which cannot be done for a while, but as you say the consultant will tell you all. And then there is the big area of travel insurance to…[Read more]

Thank you for your thoughts on SCTs and (finally!) for the photo of your grand-daughter- oh she looks so adorable and that hair! I can see why you want to go round the world to see her. We have 2 small grand-daughters the other  end of the country who we don’t see very often and had hoped to have them at Christmas. However the consultant advised…[Read more]

Hi Carol

Thank you for your very warm welcome and it must be a welcome relief for you to be home! I have been reading your posts with a great deal of interest in the last days, to hear about your journey so far and how brilliantly you seem to be progressing! It must be a huge relief to be home but I suspect you will worry if you get the slightest…[Read more]

Thank you John and June for your reply. You are right of course – if Kevin didn’t have a rare disease then there would be many others with it on the forum – indeed there are very few even on the bigger, international, Myeloma Beacon forum. IgM is just one of four types of ‘Igs’ – in myeloma the most frequent ones are IgA and IgG apparently. IgE is…[Read more]

Hi Richard

Thank you for your welcome and for your reply. I think, like everything else in a partnership, you both have complimentary characteristics and I think my husband is absolutely right in thinking about the MM only when he really needs to. I certainly only mention it when he raises the subject of it even though I admit (as probably a…[Read more]

Hi

I’m new to joining the site – have been trying to post and create a profile for about 3 days and have finally managed it after finding a post from the web team, was quite a trek to see how to do it all.

I thought the face mask post was hilarious but seriously (as I can be testament to)ebay has face masks, disposable gloves and all sorts at…[Read more]