Hi Mari hope things have been sorted now ,on the bright side my Doc said I shouldn't take too much notice of the PPs as other symptons which they would pick up first would be more important, my PPs went up when I had a bad time with tummy trouble.I go next week and I must remember to ask what mine are ,Take care, Ted

Hi, Just got home from Cornwall last night , had a great time with the family and the weather while cloudy and a bit cold was dry until the last day ,so we did rather well I thought.I go again to the Myeloma clinic a week tomorrow (2nd) ,time to get nervous. :-/ Ted.

Hi Jean sounds good any thing which cuts down on the needles has got to be good, hope Frank is a bit better he needs the rest, have a good holiday and get a nice break.
Hi Carol, I wondered where you were I'm in Garforth, we must go to the same clinic my man is called Dr.Cook and I go again on the 2nd November to St.James. We go to Cornwall on…[Read more]

Great story Tom I went to the chest clinic and he was asking me lots of questions and asked if I used to smoke I said yes but a long time ago so he asked how long and I recond it up and said 50 years,then I thought blimey these two werent alive 50 years ago.:-D. Ted

Frank sounds just like me Jean,Anne spends more time talking to her self, but I feel great today 😀 going out for a pint tonight,I have to be good though because I do my computer class tomorrow,not good breathing fumes over the clients :-/ .Going to Cornwall to see our daughter next Monday looking forward to it.
Had our pneumonia jabs a…[Read more]

So sorry to hear your news,we are all thinking of you . Ted.

Hi I'm back again,:-) Not much happening here(Leeds) the weather has changed to blooming awful as usual. I went to the chest clinic Thursday and got some good news my recent CD scan shows no change in the last 5yrs which has got to be good and they are going to put me on a yearly visit ,also he said if I have problems this year as I did last he…[Read more]

Thank you David very good explanation, it doesnt sound very nice does it ,I might not look forward to that.Sorry about the Vasbyte got that wrong didnt I, just shows my ignorance of this bl88dy illness,thanks again. Ted.

Very sorry to read your story Martin ,our thoughts are with you. Ted

Hi Ellen, as a newby, and never had any treatment my opinion doesnt carry as much weight as some but I can see what you mean from the point that people may not post when they know the end maybe approaching,because they dont want to upset people who are trying to be upbeat,this must be true because here I am trying to write this with out saying the…[Read more]

Hi David, Glad to hear the news, but give me a break as a newby to this site (not to MM) whats SCT and whats Vasbyte please. Mynumbers which they give me when I go are last time 11, I think thats paraprotein, it dosent seem to change much over the years but last year when I was ill with a tummy bug it went up to about 16 which seemed to upset them…[Read more]

Hi Peter and Jo, I just didnt think of any one else having the wobbles when it comes to hospital appointment time,but ofcourse we all must get it, unlike most people on here it is about 5 years since I was diagnosed and so far I havnt had any treatment, so I know I'm very lucky,but it still gets to me the week before the appointment,I always have…[Read more]

Hi every one ,not been on here for a while ,nothing much to say as things have been very quiet,especially health wise which cant be a bad thing I suppose. I go to the chest clinic next week thats following a scan I had a while back, its just to see if there has been any more damage to the lungs following my bad run with chest infections last…[Read more]

OH!! have a nice holiday Mavis, hope you are going to some nice weather we have just had a teriffic thunder storm ,wouldn't have liked to be on Scarbro beach in that lot.I suppose we all suffer when it comes to trying to get Docs appointments and the cost of drugs must be sky high.Anne (wife) has had a a lot of back pain for a couple of weeks ,we…[Read more]

I'm afraid I dont know :-S I go like most people and have blood and urine tests every 3 months or so,but wheather they are BenchJones or not I cant say, the last time anyone told me my paraprotein levels was some time ago and they were 17, that seemed low but the consultant said they dont always mean alot (seems to be a problem with our illness )…[Read more]

Right its good to know its not just me that hates the telephone consultations, drives me mad,when you have something as serious as we have the Doc should be looking at you and offering advice not on the phone in their tea break. hi Solo you were lucky (if thats the word) to get diagnosed like that ,I was also lucky I went to the chest clinic and…[Read more]

Hi all, Sorry I haven't been on for a while ,had a busy time ,fortunatly not with the old MM. My computer classes (teaching) have been keeping me very busy. I get where you are Solo but you mustn't feel a fraud its not your fault that there is no treatment yet, I have felt very much the same over the years,I asked the consultant at my last visit…[Read more]

Still got a bit of a cold Tom, its a head cold (runny nose etc.) which is unusual for me I tend to get chest colds due to my chest problem, not to worry it seems a little better. Going tomorrow to see the Thackery Medical Museum in Leeds I'll let you all know if I see any good ideas for us.:-D Ted.

Cant wait to get on that stuff about time we got something good out of it8-) Ted

This is an interesting topic I must keep an eye on it. I personally cant add much as I have not had any treatment at all, but it seems a good idea to be in touch with the lab people as they will be the people who can help in the future. Ted