Hi Mike, I haven’t been without problems most recently I am having IVIG infusions monthly due to chest infections, and my kidneys are showing signs of low function but these are problems that are due to the length of time I have had the MM.Thanks for the reply .Ted

Hi Rachel, I suppose you have seen your GP now and have more information,but I thought I would just add a comment as I have had Smoldering MM for about 10 to 11 years ,its a very strange cancer and its different for every one ,like a personal thing. My paraprotien is usually about 12, I see the consultant every 3 months and generally ignore it…[Read more]

been for the infusion it was painless and boring,had to sit there for about 4hrs the staff were marvelous.I go again on Dec 15th. ted

Hi Every one,
I heard on Wednesday I am about to start my immunoglobulin trasfusions next Friday,I was really pleased ,but what happened on Thursday I started with a cold and now have a chest infection. I am taking antibiotics and steroids and things should clear up by hopefully Friday,perhaps they should have started the transfusions earlier…[Read more]

Hi I’m back ,I am now having B12 injections (5) and tablets as they found I was anemic at my last appointment I am feeling a little less tired and a little more energy ,but I dont think I will be doing any marathons yet.I have got pains in my legs and I went into hospital just for two days to do tests but they said it was not MM and I am waiting…[Read more]

Hi Chrissie, No I’m not a vegetarian, and I dont have a special diet though I do eat quite a bit of fruit as this helps with the bowel problems. Hi Pete sorry you are having such a bad time ,infections of all sorts seem to be par for the course, but you must tell the Docs each time you have any health issues even if they dont seem to relate to MM,…[Read more]

Hi Chrissie,
It would be nice to think that we could take some supplement and all would be well, but over the 10 years or so I have found that for me its best to try and ignore the thing and wait for the next appointment,I have so many other health problems (Iam 84) that MM takes a back seat except just before my next 3monthly…[Read more]

Hi Chrissie, I realise how lucky I am and believe me its shear luck ,I was diagnosed with MM over 10 years ago now and have had no treatment of any sort since,I go along every 3months and have the tests and go home.I do have a problems with infections mostly the chest as I also have a lung disease,and thats why they are going to give me the…[Read more]

Hi Ian and Jane, Having read Ians message I now realise that I have got it wrong,not difficult when you are in with a consultant and under stress, she must have said “Immunoglobulin” because she did mention that it was taken from blood donors after the plasma as been removed,and of course it refers to white blood cells not red cells. Thank you…[Read more]

will do. Ted

Thanks Jean, I will have to wait quite a while for results as they dont intend to start until later in the year as I dont get as many infections in summer and it would be difficult to tell if it was doing any good (a good point) so they intend to start about August I think.Hope it works ,but we have to try anything as you know. Will try and let…[Read more]

I think this is a very personal journey and no two people are the same ,thats what makes the smouldering job so difficult.Not only does PP effect things but also your “Light Chain ” results. This topic I’m afraid is where I am out of my depth.I dont take any thing as regard to MM but I do have other health issues which require medication,as I am…[Read more]

I have been smouldering for about8 years and my PP goes up and down ,though only by 1 or 2 its now 10, but it has been 14 in the past.Ted

When I go to see the consultant he gives me a set of blood envelopes with all the info on then 2 weeks before my next appointment I go to the nurse at my GPs and she does the bloods and sends them to the hospital. The GP doesnt know any thing about it. The nurse usually cant understand what its all about and often asks what the LC means (light…[Read more]

Yes just as we have always said Nick, every one is totally different and I regard myself as VERY lucky.
All the best to you and others not as lucky as me. Just waiting now for the brown envelope to drop through the letter box.

I have just been reading through all your comments as I haven’t been on here for a while, I am 82 and have had smoldering MM for over 7 years and I understand your remark ” head is a shed” I mostly forget about it now but I get 3 monthly check ups at the cancer unit at the hospital, and its usually a five minute interview all the results are OK…[Read more]

Hi Karen, I have been Smouldering now for about 7 years I know that I’m lucky and every one is different, but thats how it is with this MM you cant tell and as there is no cure as yet so as my consultant says enjoy it while we can. Rebecca has given good advice , keep in touch on this site and ignore all the others,you will get lots of help and…[Read more]

Hi Susie, I am a smoulderer and have had back pain but as I am 82 I think that may have other causes in your case if you are having 4 monthly tests I think they will pick up any problems as far as MM is concerned.Do you have blood tests on the day you go to see the Doc or do you have them a week or more before, I used to have them on the day I saw…[Read more]

Hi Molly, Sorry I’m not from South Yorkshire, I live near Leeds, I go to St.James for treatment, brilliant place though. Ted