[teds31Participant]

Hi Paul, Sorry to hear your sad story ,I cant help much as I have smoldering MM which has no syptoms and no treatment at the moment, but some one will be along soon to help and give advice . Stay on this site and you will get help. Ted

[teds31Participant]

Hi ,My name is Ted and I was diagnosed with MM (smoldering)about 5years ago, it sure is a big shock at first but you will come to terms with it as time goes on. Keep on this site and ignore all others ,you will find lots of help and some nice people. Ted

[teds31Participant]

Hi Heather, I'm Ted and I have whats known as Smoldering Myeloma, no symptoms and no treatment as yet, I am really sorry that you both find your selves here on this site,but on the other hand you will get good advise here and also support.
I dont have any practical advice but some one will be along very shortly with some help, as there are people who have gone through your problems and medically trained persons so keep looking and I hope you wont wait long. Good luck. Ted

[teds31Participant]

I would like to add my best wishes to the above, and thank every one on the site for there help and support. Ted

[teds31Participant]

Like the coffin, I'm 6ft X 2.6ft, can I place an order.:-D
Dont understand all those numbers but they dont look too bad. Ted

[teds31Participant]

Yes Helen just seen the weather forcaste not what you call good still there are worse places to be snowed in, and they usually have plenty of red in. Ted.

[teds31Participant]

Thanks David and Tom, I will keep drinking, I will have to wait for the results Vicki 7 weeks to go, its the waiting thats hard,always tests and then the long wait for results, I've said on here before that I dont think about it much until it comes to a week or so before an appointment then I worry. Thanks every one as usual you come up trumps.A few days off as we are going to see some friends in Middlesbrough for the weekend, TaTa for now. Ted

[teds31Participant]

Dont really know about that ,seen it discussed on here before ,I think they said about 3ltrs a day which seems an awful lot if that means water, will that include tea etc. If it meant beer I would give it a good try.:-D
I can understand that drinking plenty must be good for the kidneys ,though the clinic never mentioned it. Ted

[teds31Participant]

What a happy team of stem cells, did you send them a card. Ted

[teds31Participant]

Thanks Helen that explains it very well,I did mention in August that I hadn't had a urine test for a long time and he said they could get just as good a result from blood samples. Better pay more attension to my kidneys as I am already having bowel problems, too close for comfort. Ted

[teds31Participant]

Thanks all ,always get a good responce on here, it seems from Jo,Vicki and Colin that it has to do with kidneys,I will ask when I go back, I'm certainly a long way from 31,000 and hope it keeps that way. Thanks for the support Tom always wwelcome. Ted.
Will let you all know how it goes (for the record 🙂 )

[teds31Participant]

Hi Maria, Sorry you are here but you could not have found a better site everyone is friendly and helpfull . the best thing is ask lots of questions and keep looking on this site as there is always some one on the same bit of road as you. Ted

[teds31Participant]

Hi you two young men ,the doc told me last week that I wasn't old as you now had to be 85, so that means I have another 4 years, whats to worry about. I was at the docs because i've had pains in the chest and I dont take chances now (like I used to) she said she thought I had Angina not a diagnosis I was looking for, but at least I now have a round number, its 4, SMM,Broncholexasis (S) Diverticolitus, and Angina. must learn to spell all thoughs if I am to impress people. Life goes on though, I go to the emergency clinic on Thursday to check out the chest pain then the scan for the Diverticular problem on the 11th, and you think you cost the health service money 🙂 , as for the drink I do try to keep my doing my share, a few beers and a drop of red keeps my spirits up, so up and onwards. Ted

[teds31Participant]

Great news ,long may it last. Ted

[teds31Participant]

Hi Sarah Jane,
I'm Ted and I am quite a bit older than you,I am sorry you have to join us ,I have SMM and have had it now for over 5years, I go every 3months and have the tests etc.what jean says above is very true,you just have to get on with life and put things to the back of your mind ,its not easy and as Jean says when the dreaded 3months come around you think is this the one. If the SMM goes on for a long time you get to feel a little bit of a fake and its difficult for relitives and friends who know to understand whats going on ,when nothing happens.There is a very good leaflet that you can download and show to people who you may want to know the facts its at
http://www.myeloma.org.uk/patient-services/myeloma-uk-publications/infosheets/smouldering-myeloma/

if you click on "View" then you can print it out.
Good luck and I hope you are still smouldering in years to come . Keep in touch. Ted

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