[teds31Participant]

OK we stay here then could go in the Giuness Book of Records 🙂 Had a great time in Cornwall with the family got back Monday night. On my other thread I said about my appointment next wednesday at the Myeloma clinic ,as any one got some ideas on what I should ask the Doc.Bearing in mind I have never had any treatment in 5yrs,I just thought it maybe useful to others on here. I thought I would ask for my paraprotien levels and weather they are up or down,also I could ask about kidney function,what else. Ted

[teds31Participant]

what does others think we can always go back, we could get in the Giuness book of records. Ted

[teds31Participant]

sounds like a good idea Mavis, Will think about that.:-D Ted

[teds31Participant]

Hi Mari hope things have been sorted now ,on the bright side my Doc said I shouldn't take too much notice of the PPs as other symptons which they would pick up first would be more important, my PPs went up when I had a bad time with tummy trouble.I go next week and I must remember to ask what mine are ,Take care, Ted

[teds31Participant]

Hi, Just got home from Cornwall last night , had a great time with the family and the weather while cloudy and a bit cold was dry until the last day ,so we did rather well I thought.I go again to the Myeloma clinic a week tomorrow (2nd) ,time to get nervous. :-/ Ted.

[teds31Participant]

Hi Jean sounds good any thing which cuts down on the needles has got to be good, hope Frank is a bit better he needs the rest, have a good holiday and get a nice break.
Hi Carol, I wondered where you were I'm in Garforth, we must go to the same clinic my man is called Dr.Cook and I go again on the 2nd November to St.James. We go to Cornwall on Monday until the following Monday, hope the weather is kind. Ted.

[teds31Participant]

Great story Tom I went to the chest clinic and he was asking me lots of questions and asked if I used to smoke I said yes but a long time ago so he asked how long and I recond it up and said 50 years,then I thought blimey these two werent alive 50 years ago.:-D. Ted

[teds31Participant]

Frank sounds just like me Jean,Anne spends more time talking to her self, but I feel great today 😀 going out for a pint tonight,I have to be good though because I do my computer class tomorrow,not good breathing fumes over the clients :-/ .Going to Cornwall to see our daughter next Monday looking forward to it.
Had our pneumonia jabs a while ago dont know how long they last Tom,I'm fine today but Anne has a bruse, poor lass. Ted.

[teds31Participant]

So sorry to hear your news,we are all thinking of you . Ted.

[teds31Participant]

Hi I'm back again,:-) Not much happening here(Leeds) the weather has changed to blooming awful as usual. I went to the chest clinic Thursday and got some good news my recent CD scan shows no change in the last 5yrs which has got to be good and they are going to put me on a yearly visit ,also he said if I have problems this year as I did last he will be willing to see me,great news as I see it. I also got my 3 monthly appointment for the Myeloma clinic bang on time (Nov 5th) I thought it would be late as cuts seem to be causing problems elsewhere in the NHS.Been very tired these last few days seems to come and go, a few days of afternoon tiredness then a period of being OK again quite weired its not just tired more a feeling of absolute exhaustion then it just goes off after a few hours.We both had our flu jab today it was like a cattle market walk in Hello roll up the sleeve jab and out about 3 mins. Well hope every one is OK. Take care Ted.

[teds31Participant]

Thank you David very good explanation, it doesnt sound very nice does it ,I might not look forward to that.Sorry about the Vasbyte got that wrong didnt I, just shows my ignorance of this bl88dy illness,thanks again. Ted.

[teds31Participant]

Very sorry to read your story Martin ,our thoughts are with you. Ted

[teds31Participant]

Hi Ellen, as a newby, and never had any treatment my opinion doesnt carry as much weight as some but I can see what you mean from the point that people may not post when they know the end maybe approaching,because they dont want to upset people who are trying to be upbeat,this must be true because here I am trying to write this with out saying the word (dying).So long as the special category doesnt exclude these people from useing the rest of the forum. Ted

[teds31Participant]

Hi David, Glad to hear the news, but give me a break as a newby to this site (not to MM) whats SCT and whats Vasbyte please. Mynumbers which they give me when I go are last time 11, I think thats paraprotein, it dosent seem to change much over the years but last year when I was ill with a tummy bug it went up to about 16 which seemed to upset them ,but as I didnt know what it was till I came on this site I was in blissfull ignorance.Keep up the good work its nice when some one has some good news. Ted:-)

[teds31Participant]

Hi Peter and Jo, I just didnt think of any one else having the wobbles when it comes to hospital appointment time,but ofcourse we all must get it, unlike most people on here it is about 5 years since I was diagnosed and so far I havnt had any treatment, so I know I'm very lucky,but it still gets to me the week before the appointment,I always have that feeling ,this time is it. So all the best Peter and long may it last. Ted

[Author]

Posts