Hi Fadia, Thanks for your response. The protocol generally is not to start treatment until you have CRAB symptoms, i.e. high serum calcium, renal problems (high creatinine), anemia (10.0mg/dl or lower) or bone involvment (lesions, etc.). Some doctors also use the CRABi criteria, namely, the small "i" representing recurrent infections. If I were…[Read more]

Hi Tom, et al., I have been reading through the discussion forum and I have read many past and current posts. I find them very helpful and I note the ability to continue working for many members. That is my greatest fear, namely, that I won't be able to work and will have to go on disability or take an early retirement at such a young age. I have…[Read more]

Thanks again for welcoming me. FYI–there is one cutting edge trial which is occurring now at our NIH and several other locations involving carfilzomib, revlimid and dex for newly diagnosed patients. Apparently, the results have been very impressive in that the side effects are very limited and many people are going into CR in one cycle, i.e. 28…[Read more]

Hi Bridget and Mavis, I am very impressed with the site and the incredible support you give each other. I will definitely check in often. I am lucky they caught my myeloma inadvertently before bone and kidney issues arose but I have to be monitored closely as I have light chain only kappa type which hits the kidneys hard. I am not sure about the…[Read more]