Hi,

Like Jeff, I had treatment on Velcade, Dex and Cyclophosphamide and, as progress was slow( a bit like my school reports ‘ Satisfactory but could do better’) I was switched to Revlamid and Dex. It turned out that I had an unrelated cancer in my bowel which may have affected my progress. The bowel cancer was removed and all is reasonably…[Read more]

Hi Susie

Apropos Frag Min injections

My diagnosis of MM was followed swiftly by a pulmonary embolism and for nine months I had daily injections of Frag Min. A month ago the consultant decided that, istead of Frag Min, I could  take a daily pill called  Rivaroxaban. Check with your consultant as, for me, it is definitely an improvement on the d…[Read more]

Hello,

I had four cycles on CVD at which point my consultant felt that my progress was slow. However I felt reasonably comfortable about the treatment with only the usual side effects – poor sleeping, tiredness.  A bone marrow sample showed that the percentage of cancerous cells  had dropped from 74 to 50. A PET – CT scan showed that I had an u…[Read more]

Hi everyone,

I too am a newcomer to this site. I was diagnosed with MM in November and am concluding the third cycle of the eight planned for my treatment which is at my NHS hospital. All the staff are caring and friendly and have put me at ease, though, like everyone, I am unsure of what lies ahead. I am 79, so I assume the future must be…[Read more]