Myeloma Forum | PamelaBuchanan | Activity https://forum.myeloma.org.uk/members/tinkerbell/activity/ Activity feed for PamelaBuchanan. Tue, 21 Apr 2026 07:33:26 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 c979cc3316003eedbd11d281bcc642ac PamelaBuchanan replied to the topic Teeth. in the forum Side-effects http://www.myeloma.org.uk/forums/topic/teeth1346374070#post-104769 Sat, 01 Sep 2012 13:40:26 +0100 As a member of the dental world the advice that we are given is – routine dental treatment ie consultations, restorative treatments and scaling and polishing are fine to have carried out by your regular dentist while having Zometa. The reason that extractions are carried out in a hospital setting is the risk of osteonecrosis of the jaw bone…[Read more]

]]> d71370d96de55f1cc3bde6336a790e7e PamelaBuchanan replied to the topic Shingles in the forum General http://www.myeloma.org.uk/forums/topic/shingles#post-92209 Wed, 22 Feb 2012 00:35:14 +0000 Hi Jean,
Life is never easy and watching those you love suffer is so difficult. My pain from my shingles can be anything from an itch to a deep almost burning sensation. I was really quite sick and even now I still have scars. I am still on aciclovar as tablets now and I to stop the shingles coming back. IV is intra venous where they hook you…[Read more]

]]> 60df15662e9c354014f4bb9b4a33572a PamelaBuchanan replied to the topic Newcomer in the forum Carers http://www.myeloma.org.uk/forums/topic/newcomer1329338882#post-106252 Mon, 20 Feb 2012 23:59:41 +0000 Hi Zoe,
Sorry that you've had to find this site and that what should be the most exciting time of your life is being blighted by this disease. I am one of the under 50 gang having been diagnosed at 35 with two young children – that was four years ago. This is a tough journey but take it one day at a time, keep talking to each other and ask…[Read more]

]]> 3a32231167a26a7def2f205ae5f88ea0 PamelaBuchanan replied to the topic Shingles in the forum General http://www.myeloma.org.uk/forums/topic/shingles#post-92207 Mon, 20 Feb 2012 23:43:26 +0000 Hi Jean,
What a rough time your having – hope by now you know whether Frank has shingles. I had shingles last summer and from the rash started to when it was apparent that it was shingles it took a few days – I looked up pictures online to help with the diagnosis. I am still on pregabalin and take 125mg twice a day with no real side effects but…[Read more]

]]> b3ffc5997b6dc82c9e5c41896c63defa PamelaBuchanan replied to the topic HELP in the forum Newcomers http://www.myeloma.org.uk/forums/topic/help#post-85389 Fri, 06 Jan 2012 01:38:13 +0000 Hi Nicola
Sorry to read about your Dad.

My sister is a ward manager and having been an in patient myself I know the limitations on the nursing staff in hospitals but the majority of complaints result from relatives or patient's not speaking up. My advice would be speak to the ward manager about the meds etc and they can in turn ensure that…[Read more]

]]> dc05f5eee87a7a8d2c142fb68744c67e PamelaBuchanan replied to the topic headaches in the forum Side-effects http://www.myeloma.org.uk/forums/topic/headaches#post-104358 Sun, 01 Jan 2012 13:31:28 +0000 Hi sarah,
I am just about to stop CTD after eighteen months on and off it and over the last three months have had quite severe headaches which I discussed with my consultant last week. I am experiencing frontal headaches which we both felt were as a result of stress (mm has relapsed and caused quite significant bone damage. Since being off work…[Read more]

]]> 4af60c83c1192b5a4907b0a30131746e PamelaBuchanan replied to the topic Hot Flushes in the forum Side-effects http://www.myeloma.org.uk/forums/topic/hot-flushes#post-104118 Mon, 10 Oct 2011 20:28:03 +0100 Don't want to be the bearer of bad news Debs but following my SCT I did indeed have an early menopause which started with hot flushes as you describe. There were all sorts of things that you could get to help with these. I was a similar age and like you had no intention of adding to the brood but it was still something else to cope with. I had…[Read more]

]]> 43de224b779bb3a03367928fdb2c91d0 PamelaBuchanan started the topic Glitz and Glamour. in the forum General http://www.myeloma.org.uk/forums/topic/glitz-and-glamour Thu, 22 Sep 2011 19:48:46 +0100 Hi everyone,

We are trying to organise the 2nd Glitz and Glamour Ball in the Europa Hotel Belfast on Saturday 8th October from 7.30pm. Tickets cost £45 which includes dinner,and entertainment including stand up with Mr Tim Megarry aka Da From Give my head peace! Tickets avalible by emailing pamelab@talktalk.net or by calling 07914818458…[Read more]

]]> e8618801628787a15636ad2b56ed86ba PamelaBuchanan replied to the topic dad just diagnosed at 48 in the forum Newcomers http://www.myeloma.org.uk/forums/topic/dad-just-diagnosed-at-48/page/2/#post-84550 Fri, 22 Jul 2011 22:33:20 +0100 Hi
So sorry to hear about your Dad's diagnosis and you can feel lonely especially in Northern Ireland. I'm also in NI and have to say that the treatment that I've had and all the staff I've encountered so far have been wonderful.
Hope you get to enjoy a wee bit of the sun we seem to be having this weekend Pamela xx

]]> 207be5ea81440b06f511533b687beb78 PamelaBuchanan replied to the topic 2nd SCT in the forum Treatment http://www.myeloma.org.uk/forums/topic/2nd-sct#post-97558 Sun, 19 Jun 2011 19:04:48 +0100 Sorry to hear that your both having such a difficult time and really hoping that things start to get better for you both soon and that someone can offer some advice about effective pain relief.
Take care
Pamela x

]]> 31fbb9641d32f17202a5b32fd195633e PamelaBuchanan replied to the topic Memory Book - right or wrong? in the forum General http://www.myeloma.org.uk/forums/topic/memory-book-right-or-wrong#post-90682 Sun, 19 Jun 2011 17:49:37 +0100 Hi Angelina,
Sorry to hear that you are all having such a rough time at the minute. When I was diagnosed three and half years ago my MIL had died just six months previously and I know that my daughter really treasures the memory box that we made her. At that time I investigated Winston's wish after watching the Mummy Diaries on TV they have…[Read more]

]]> b1a85a7d28400d5503ed7d04ede0e3b4 PamelaBuchanan replied to the topic mum diagnosed yesterday! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mum-diagnosed-yesterday/page/2/#post-84717 Sat, 11 Jun 2011 00:16:10 +0100 Hi Renee,

I know that the diagnosis is so difficult and so is the mass of tablets that you are faced with taking. I remember the pile of tablets on the first morning I took chemo with a glass of water and 45 minutes later the pile was gone. My sister who is a nurse offered me a piece of great advice to pop the tablets into a yoghurt and eat…[Read more]

]]> c0b689690e745e0dcac0e3943b6ea051 PamelaBuchanan replied to the topic SAD DAY in the forum Off topic http://www.myeloma.org.uk/forums/topic/sad-day#post-109371 Fri, 10 Jun 2011 23:58:24 +0100 Bridget,
My MIL died four years ago aged 69 and I understand what you mean as it never felt that she was nearly 70. She got her wish to die at home after six weeks in hospital with the help of Marie Curie and the local hospice. The coordinator from the hospice arranged for a hospital bed and for Marie Curie Nurses to help during the night.…[Read more]

]]> 18ce2ba1a0faab504ef8bf6b57e17795 PamelaBuchanan replied to the topic My brave husband Kevin has finally lost his battle with myeloma in the forum General http://www.myeloma.org.uk/forums/topic/my-brave-husband-kevin-has-finally-lost-his-battle-with-myeloma#post-90444 Sun, 15 May 2011 21:09:06 +0100 Dear Susan,

I am so sorry to read of Kevin's passing, I followed his journey with interest. I trust that you are surrounded by friends and family at this time.

Pamela x

]]> ef7b41bfc467dd3e51ef6f13449567fb PamelaBuchanan replied to the topic My Wonderful Husband Patrick in the forum General http://www.myeloma.org.uk/forums/topic/my-wonderful-husband-patrick/page/2/#post-90431 Sun, 15 May 2011 21:02:36 +0100 Dear Tina,
So sorry to learn that Patrick has passed. I hope that you have the support of family and friends at this time.
Pamela xx

]]> 20e7ea6ec054c339f8e387c7d232f626 PamelaBuchanan replied to the topic tiredness in the forum Carers http://www.myeloma.org.uk/forums/topic/tiredness1305040431#post-105936 Wed, 11 May 2011 00:23:05 +0100 The wedding was amazing and Tracy and Vincent had an amazing day – the hard bit as you know is living together. I am having a little pain at the minute in my spine and legs but I think it's old damage so will discus with Dr Kettle on Friday but otherwise feel really well – counting the day down to that cruise.

I've had lots of MRI's mostly…[Read more]

]]> 2c8edb04dedc629766f35cad756c9000 PamelaBuchanan replied to the topic tiredness in the forum Carers http://www.myeloma.org.uk/forums/topic/tiredness1305040431#post-105934 Tue, 10 May 2011 23:34:33 +0100 I often think that those around me have a harder time than me – I am lucky to have been diagnosed over three years and although I have periods of real illness on a daily basis I am capable of looking after myself. The support of my family is amazing and my hubbie, sister and wee brother all offer so much especially when things go wrong.

Jean…[Read more]

]]> c032df3c92efb5eb0d1c18128f238a11 PamelaBuchanan replied to the topic Quick update on kev in the forum Newcomers http://www.myeloma.org.uk/forums/topic/quick-update-on-kev#post-84467 Sun, 10 Apr 2011 23:25:11 +0100 Hi Liz and Kev,
SCT is difficult time more so for the carer than the patient from my experience. I was in and out in a little under three weeks thankfully but only when I was totally recovered did my husband tell me that he was really concerned as I got a chest infection. I just kept taking the meds and stuck to my sister who is a nurses advice…[Read more]

]]> 8fbb273689e935188298d4d1c6197356 PamelaBuchanan replied to the topic Info Day in the forum General http://www.myeloma.org.uk/forums/topic/info-day#post-90166 Wed, 06 Apr 2011 23:38:37 +0100 Hi Dai,
I've been to two info days one in Belfast and one in London. Both days were very different and I gained lots of information at both and am considering attending the next one in Belfast in October. My only advice is if you have specific questions write them down so as you remember to ask them, enjoy the day and have an open mind. Like…[Read more]

]]> 1843b025f7fae6d1002b4682ce1d9db2 PamelaBuchanan replied to the topic Pain in side in the forum Carers http://www.myeloma.org.uk/forums/topic/pain-in-side/page/2/#post-105911 Tue, 29 Mar 2011 23:40:59 +0100 Hi Jean,
It could just be a pulled muscle I'm assuming that they've given pain relief for this so watch carefully and see if this has an affect. My first signs of illness were lack of appeitite – it felt like I had to force food down and I really had to motivate myself to cook(Not like me I am a typical Irish country mother who loves to over…[Read more]

]]> 3939787b1c9b3b225ca09b8ce4633203 PamelaBuchanan replied to the topic This might bring a smile in the forum Off topic http://www.myeloma.org.uk/forums/topic/this-might-bring-a-smile#post-108939 Mon, 28 Mar 2011 23:59:08 +0100 Made me laugh to although I though the punchline might have been something to do with a washed out grey creation!

]]> 7cdc7b93f9c8cef09c5b9fd5a1fc4735 PamelaBuchanan replied to the topic Ah Well! in the forum General http://www.myeloma.org.uk/forums/topic/ah-well#post-90096 Mon, 28 Mar 2011 23:35:28 +0100 Oh Dai,
I know how this feels this is the situation I found myself in last year with rising light chains which did plateau after a few months but caused a massive amount of bone damage in my case. Like Min says I am considered a failure with 11months remission so it's been suggested I consider an allo. I've had four cycles of CTD having had VAD…[Read more]

]]> 4cb3d56750de740c8eb882ed68695c96 PamelaBuchanan replied to the topic Just a query on Allo transplants in the forum General http://www.myeloma.org.uk/forums/topic/just-a-query-on-allo-transplants#post-90021 Wed, 23 Mar 2011 11:37:03 +0000 Hi Mrs L,
As you know I was discussing this option last Monday with my consultant and one of the questions I asked was how many are carried out in Belfast per year and the answer is approximately 10 for all diseases. There are 10 isolation wards in Belfast so not a very high percentage of people here are having allo's. There are 2 people I have…[Read more]

]]> 61c138e2aef88e4ccca0adeea38eb675 PamelaBuchanan replied to the topic Happy St Patricks Day in the forum Off topic http://www.myeloma.org.uk/forums/topic/happy-st-patricks-day#post-108923 Fri, 18 Mar 2011 19:34:22 +0000 Hope your daughter had a lovely birthday Bridget. Bottoms up and all the luck of the Irish!!!!!!!!!!!!

]]> b733a7650a7a3f2672942473494e4b1f PamelaBuchanan replied to the topic Bone Pain in the forum General http://www.myeloma.org.uk/forums/topic/bone-pain#post-90039 Fri, 18 Mar 2011 19:09:41 +0000 Hi Gaye,
I hope that they've managed to get your drugs sorted as this is the last thing that you need on top of the pain you are suffering. My femurs are getting more comfortable every day following my RT which is six plus weeks now. I also have taken tramadol 50mg as required for pain and found it to work quite well. Fingers crossed that the…[Read more]

]]> 8b4edd98b43a1bb681a52c8bcd28b709 PamelaBuchanan replied to the topic Hello everyone, I'm new! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-everyone-im-new#post-84381 Fri, 18 Mar 2011 18:57:07 +0000 Hi Tracy,
I'm now three years since my diagnosis and the six months before were spent having numerous blood tests which only showed up a B12 deficency for which I was prescribed injections. There is a family history of being B12 deficent so this did seem like a more likely cause of my tiredness as all the other blood results were normal. It's…[Read more]

]]> c91c871e6b85206a32b03ce83345682e PamelaBuchanan replied to the topic SCT What to Pack? in the forum General http://www.myeloma.org.uk/forums/topic/sct-what-to-pack#post-89962 Tue, 08 Mar 2011 21:31:05 +0000 Hi Sarah,
I was allowed to bring a duvet which had to be new so something you might want to check with the ward. This was a really comfy option and made it feel a little more like home. I brought my laptop and enjoyed reading the newspapers on line as couldn't concentrate on a book. As others have said lots of PJ's and underwear and sweeties…[Read more]

]]> d71d972e5962181130f3b2a0ba893ade PamelaBuchanan replied to the topic Spasms in the forum Treatment http://www.myeloma.org.uk/forums/topic/spasms#post-97180 Tue, 08 Mar 2011 20:55:24 +0000 Hi Keith,
This was one of the first things that happened to me and still does but only occasionally. My toes spasm more regularly than fingers and I have found that Q enzyme Q10 does help with muscle spasms when taken regularly.
Hope the hopsital were able to shed some light on whether your treatment is the cause of your spasms.
Pamela

]]> 07d7b4be2657d49582bb0aaf62536c2e PamelaBuchanan replied to the topic More radiotherapy and spinal cord compression in the forum Treatment http://www.myeloma.org.uk/forums/topic/more-radiotherapy-and-spinal-cord-compression#post-97084 Tue, 15 Feb 2011 15:55:54 +0000 At last some positive news Sharon I have to admit to refusing to not walk the six steps to the toilet on my own which with hindsight could have lead to all sorts of problems but as I was out treking around Rathlin Island the Sunday before my admission I was being a bit pig headed. Getting home to your own enviroment is lovely and away from the…[Read more]

]]> fcb1c2fd00b09a808997e6e3e13cb839 PamelaBuchanan replied to the topic Blooming Dex!!!! Again in the forum Side-effects http://www.myeloma.org.uk/forums/topic/blooming-dex-again#post-103744 Mon, 14 Feb 2011 21:17:18 +0000 Hi Bridget,
This is the final dex day for me in this pulse and I know how you feel it is such a necessary evil. My face had changed colour within two hours of taking the first dose and I have now resolved to having a round face and the fact that my bridesmaid dress in April will fit but am disappointed that it is a size bigger than normal but I…[Read more]

]]> de0675c4efb887afef1761e33ac710ff PamelaBuchanan replied to the topic More radiotherapy and spinal cord compression in the forum Treatment http://www.myeloma.org.uk/forums/topic/more-radiotherapy-and-spinal-cord-compression#post-97081 Mon, 14 Feb 2011 21:04:35 +0000 Hi Sharon,
Hope the radiotherapy works quickly for you as mine did for spinal cord compression last June. I knew something was wrong needing painkillers on a regular basis and a numb feeling in my left leg caused me to go and see my consultant unfortunately she was very flipant and told me to go off and get a scan privately. This uncovered my…[Read more]

]]> 59aaff2a3d39f52d67d46547c627b775 PamelaBuchanan replied to the topic Pomalidomide in the forum General http://www.myeloma.org.uk/forums/topic/pomalidomide/page/2/#post-89553 Sat, 15 Jan 2011 22:19:51 +0000 Gaye,
I am so glad that you have got this new drug which I'm sure will work wonderfully for you. Fingers crossed that the drugs arrive and you get to start next week. This is a step in the right direction for us all so thank you for advancing the fight against this disease. Will be thinking about you.
Pamela xx

]]> 7c66853e1e97a9967037dad76104ee76 PamelaBuchanan replied to the topic Radiotherapy in the forum Treatment http://www.myeloma.org.uk/forums/topic/radiotherapy1294964127#post-96943 Sat, 15 Jan 2011 22:05:17 +0000 Hi Bridgit,
So glad that you are getting radiotherapy and so quickly it really is good to get on with it. I had RT three times last year and found that the pain responded quickly on all occassions. Like Sharon I had one episode as an inpatient which was easier as I spent all day resting and had no one to run after. I've found with RT that you…[Read more]

]]> c874b221199230760b74e1e47a9bb5d6 PamelaBuchanan replied to the topic Christmas in the forum General http://www.myeloma.org.uk/forums/topic/christmas#post-89295 Wed, 22 Dec 2010 19:16:15 +0000 This has been a year of mixed emotions for me regarding treatment full of highs and lows but with help from others on this board you pick yourself up, dust yourself off and realise that you are not on your own. Christmas is a time of hope full of the anticipation of new life, joy and peace. I trust that everyone will be able to spend time with…[Read more]

]]> f6560f0b5efc71e4c453d58522c0a48f PamelaBuchanan replied to the topic Femoral Nail in the forum Treatment http://www.myeloma.org.uk/forums/topic/femoral-nail#post-96830 Wed, 22 Dec 2010 16:54:29 +0000 Glad to see that you're sense of humour hasn't been affected Bridget! If you heard my singing voice you'd know that I wouldn't be very enertaining. Glad to report that both femurs are now successfully nailed and I've managed to get up on my feet and hopefully will be going home tomorrow after being disappointed as had hoped to get discharged…[Read more]

]]> 3cda519fb727274279eca8d3d61f252c PamelaBuchanan replied to the topic Catch Up in the forum General http://www.myeloma.org.uk/forums/topic/catch-up#post-89272 Wed, 22 Dec 2010 08:59:18 +0000 Oh Bridget what a bummer but Revlamid seems to be a great drug that the majority of people have a response to and in my experience radiotherapy does sort the pain out relatively quickly. You are probably feeling much better now you've had a few days of IV antibiotics and a good rest with people looking after you and taking it easy in hospital.…[Read more]

]]> cb8c4ac4dbe2bea461b3182ff6c99990 PamelaBuchanan replied to the topic Not Christmassy - but might make you smile! in the forum Off topic http://www.myeloma.org.uk/forums/topic/not-christmassy-but-might-make-you-smile#post-108665 Mon, 20 Dec 2010 23:20:53 +0000 Thanks for bringing something to make us all laugh. Do Frank good to hear you laugh Jean!

]]> 8f1e0e62fc1a8706210b9b5e1ef9b7d6 PamelaBuchanan replied to the topic Femoral Nail in the forum Treatment http://www.myeloma.org.uk/forums/topic/femoral-nail#post-96828 Sun, 19 Dec 2010 16:59:20 +0000 Thanks for the responses, my husband has followed the link that you posted Mini and enjoyed reading it's content I'm going to wait until tomorrow as on arrival at hospital they decided to nail both femurs. There is a risk of the right one fracturing and they felt that it was best to get it all done now but I think the risk of infection tracking…[Read more]

]]> 9a00440f23cafa4e752fc5759371882d PamelaBuchanan started the topic Femoral Nail. in the forum Treatment http://www.myeloma.org.uk/forums/topic/femoral-nail Wed, 15 Dec 2010 09:35:38 +0000 Hi all,
I had pain in my left leg mid November and following an MRI a lesion has been discovered which leaves my leg at high risk of fracture. Tomorrow morning I will be fingers crossed having a femoral nail placed in my leg. I'm just wondering if anyone else has had this done and what there recovery was like as the hospital have given me two…[Read more]

]]> b02828aaed36bf9b011704e4a48a76b7 PamelaBuchanan replied to the topic Two feet of snow in Essex! in the forum Off topic http://www.myeloma.org.uk/forums/topic/two-feet-of-snow-in-essex#post-108595 Sun, 05 Dec 2010 21:58:37 +0000 Oh Gaye,
Sorry that your feeling a bit down. I've had pain my leg although I've managed to achieve another remission and am happy to be going to use thalidomide as a maintenance drug and have started an array of vitamins to prevent the the PN getting worse. I've been having pain in my hips and legs though and was rather shocked last week to be…[Read more]

]]> ecf94e01b0054366cae2373bf17842ef PamelaBuchanan replied to the topic Two feet of snow in Essex! in the forum Off topic http://www.myeloma.org.uk/forums/topic/two-feet-of-snow-in-essex#post-108593 Thu, 02 Dec 2010 21:46:51 +0000 After what has turned out to be one of the days that this disease kicks you in the teeth when you thought it was actually starting to get better you've made me laugh out loud Gaye – Thank you x

]]> d2a31ea9e28dbcd8d3f10cd9edb00403 PamelaBuchanan replied to the topic **YIPPEEEEE** in the forum Off topic http://www.myeloma.org.uk/forums/topic/yippeeeee#post-108583 Thu, 02 Dec 2010 09:06:41 +0000 Congratulations – Erin was on my short list when Beth was born a really lovely name. Hope you get to see her really soon and both baby and mum are well.x

]]> 4d1788664384c0b21e32ab47188bf636 PamelaBuchanan replied to the topic Recurring aroma!!! in the forum General http://www.myeloma.org.uk/forums/topic/recurring-aroma#post-89110 Wed, 01 Dec 2010 14:23:39 +0000 Hi Nettie,

No I don't think that you are cracking up. I have the same problem with ice and I feel sick if someone mistakenly brings me a drink with ice in it. I have even felt sick when others have ice in there drinks and it's just from sucking it when I had the melphalan. Hope the snow clears up soon.
Pamela x

]]> 71da2f33235a77a06afdaf6fc6e686b5 PamelaBuchanan replied to the topic am first lol in the forum Under 50s http://www.myeloma.org.uk/forums/topic/am-first-lol#post-106709 Thu, 28 Oct 2010 20:37:26 +0100 Well done Mr Lappin glad that all those cells are behaving themselves must be the vodka maybe I should try that. Tomorrow is hospital day for me and my numbers had fallen last month so I'm hoping that the trend has continued. Zometa tomorrow and then a long wait to get the big bag of tablets for the next month. I got my flu jab last Monday and…[Read more]

]]> 77e0bf11d1427ba1f281a1e5e541577f PamelaBuchanan replied to the topic am first lol in the forum Under 50s http://www.myeloma.org.uk/forums/topic/am-first-lol#post-106706 Wed, 27 Oct 2010 20:21:43 +0100 Yeh Tom thank deserves a stiff vodka to celebrate for Elaine. Good luck for you tomorrow will be thinking about you.
Tinkerbell is my favourite disney princess so nothing posh about my username. I took our baby for a haircut today and he slipped his lead and escaped from the groomers. I spent an eventful 10 minutes chasing the wee bugger up…[Read more]

]]> 33b3a8128fd769a92e4fe15d9b2ccf91 PamelaBuchanan replied to the topic am first lol in the forum Under 50s http://www.myeloma.org.uk/forums/topic/am-first-lol#post-106699 Sat, 23 Oct 2010 23:28:11 +0100 You are hilarious Tom!!! Loving the picture of your baby boy xx

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