[tm1960Participant]

Hi Annette,

Thank you for translating that article for me, I really appreciate it.  Funny enough, I had been researching on the net and I came across a couple of articles talking about that too.   It is certainly something I am going to be raising with my doctor.  Thanks again for taking the time.

[tm1960Participant]

Thank you Michael for your advice.   I know it is difficult to find pain in the abdominal area because there is so much that could go wrong, all I know is I need to manage this pain somehow because it is taking over my life in a very unhealthy way.   I am trying a new GP just so I can get a fresh set of eyes on the problem.   Hopefully something will come from that.

 

[tm1960Participant]

Hi all,

Thanks for all your support and advice.   I will seek another specialist to get to the bottom of this pain.   I hope you all stay fighting and stay well.

[tm1960Participant]

Thanks for your kind words Chrissie:)

[tm1960Participant]

Hi cygnet,

My pain is like a knife is being stuck in my abdomen through to my back and every now again it gets twisted so the closest I can describe it as it labour pain.  I have it from morning to night and it gets worse by the end of the day.  I work full time so I either put up with it or recently I have been given Tramadol and anti-inflammatories.  They work most of the time but not always.  They haven’t really given my arthritis a name, they are not even willing to directly name it arthritis, they just say it probably is arthritis.

I am getting so tired and run down having to deal with the pain on a daily basis, trying to not take time off work as we are in the middle of a restructure so I don’t want to give them any excuse to get rid of me.

[tm1960Participant]

Thanks for your answers cygnet and Graham C, I do try to keep an eye on my status but it is very hard because my dr is not very forthcoming.  To add to that, for my first 3 visits she kept saying my blood count had remained the same.  However, we she moved and I got the Oncologist back she said my count had gone up 25%.  I know at the moment that paraprotein count is sitting at 35 and my bone marrow was 13% but they have not found any bone lesions.   So they say that means my status is a wait and see.  I have no problem with that but I am still left with the pain.  On the scans they found spinal damage which is cervical but I don’t get any headaches, neck issues and no pain down my arms or in the shoulder.  All my pain is in my lumber spine which they say is fine.  Therefore if they can’t find anything wrong in that area then why am I still getting so much pain.   They also found “something that needs to be investigated” in the bowel, probably just a small polyp that needs to be removed.  I feel totally isolated down here where non-one seems to know what to do.

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