Hi Janet and Dai
OMG I can't believe what you two have just been through. I feel so sorry for you both and on a bank holiday just to make things that bit worse.
I sincerely hope you both make a good recovery and have an infection freen rest of the summer.
Do take care Dai and of course Janet who I know has all the worries as well as the…[Read more]

Hi Gail
I think I just answered your post on newcomers. I guess I should have answered here under careers. sorry.
I am so glad Helen has explained the emotions form an MM patient point of view, I also had all those emotions as a career and it's not easy to take or understand when everything is still so new and raw for you.A complete change of…[Read more]

Hi Gail
I also am a career. My husband was diagnosed at age 57 that is 8 years ago now.It is not the easiest roll in the world and I so wish I had found this site back then. I was so worried in the begining all through the back surgery the SCT and the trial, then when the meds kicked in I was mad. How dare this person treat me and talk to me this…[Read more]

Hi Andy,
So glad you are feeling good and enjoyed a night out and as Helen says maybe a before pic would be nice to see what used to be there!
Glad to read you have a few nights away planned. Yes I sort of know the Lake District we have walked around a bit up there, Windermere, Keswick and Buttermere spring to mind. Since moving away from UK we…[Read more]

Hi Helen,
Hair was dark brown which is odd as my mum and one of my sisters has bright red hair! The only good thing about grey is that younger servers always give me the seniors rate on food and coffee, of course I qualify now but had years of dicounted items.
I can understand your need to get back to work I certainly didn't have retirement in…[Read more]

Hi Eve
I will be thinking about you this week as well,and sending all my positive thoughts to you. Hope your daughter has an uneventful trip back to NZ ans Slim gets into SCT hospital without any mishaps. Take it easy, lots of deep breathing and all will be calm and settled soon.
Love Teresa

Hi Andy
As long as everythng other that the Mprotein is fine I am sure the levels will come down eventually. It is rather an alarmingly high reading but you are feeling good and it's for the medical team to sort out and they will I am sure, they love the challenge!
Take care and stay positive.
Love Teresa

Hi
Am I supposed to reply here at the end or at the end of someone's post?
I seem to have replies for May up in the April date I guess I just don't know what I am doing!

Anyway Andy
Thank you for your concern it took the wind right out of our sail as well. Do hope you are feeling better? Glad you liked the bellwoods brewery…[Read more]

Hi Helen
Thanks for liking the photo. I turned greay almost overnight age 55 when both my parents died and my husband was diagnosed, Can't be bothered dyeing it
At the brew pub funnily enough I won't be drinking beer I don't like it but I will have the food and anything else they offer.The palliative care nurse who visits said I should try and…[Read more]

Hi
So you will be off to NZ next weekend with that lovely jumper in your case maybe the pattern isn't too hard and I can try and knit it while I am sitting around being quiet.

I hope your clinic appointment goes well and you can rush home and pack such excitement.

I am hoping to get down to my son in laws brew pub while my son stays with…[Read more]

Hi Bridget
so sad to hear about your pain lack of appetite and overall tiredness. What a struggle each and every day must be for you.When is your next clinic and I do hope they have something good to offer you.
You are in my thoughts Take Care and we all hope to hear good results from you so very soon.
Love Teresa

Hi Andy
not quite sure how I have managed to be so un informed on these terms but thanks for the explanation.Peter is on C. D. and Velcade and Revlimid may be added on Tue to keep his pain manageable.Hope you have recovered from your hospital stay.
Love Teresa

Hi Ann and Pete
What is CDT? An hour a month on a bone stregnthening drip? I think that may be what my husband had Pamidronate they also called it bone glue! After a few treatments we were allowed to take the bottle home attached to his arm and after it had dripped through remove it ourselves. It made for a better day as time at home is better…[Read more]

Hi Helen
I want your Aran jumper please bring it back for my grandchildren if your neice doesn't want it. I will knit something light for NZ. I have never mastered aran patterns.
We are a good month 6 weeks ahead of the usual spring here which is a delight I really do not like the cold and snow. I have lettuce seeds and garlic growing and bought…[Read more]

Hi Tracy
I am a career for my husband Peter and really know (as does Eve and all the other careers reading this)just how you feel. You look very young to have MM in your life already that makes me so sad.
Peter was also very ill after his SCT but it gets better and if the transplant works hopefully you will have a nice long time in…[Read more]

Hi Andy
There is always hope until the medics tell you otherwise. So hang in there. I am sure it was a shock and very upsetting for you but there are so many other treatments and combinations. The right one for you is just around the corner and don't forget they look at a whole lot of data not just one Mprotein reading. So chin up you have to get…[Read more]

Hi Helen
Hi Andy
Hi Eve
I think I have caught up and answered your individual notes to me, hope I have anyway.
I like the name cyber friend it is so lovely.
Have had a busy week at the hospital everyday and a few nights as well. The doc insisted Peter have radiation everyday to help with the pain from his broken ribs. The ribs on the other…[Read more]

Hi Eve
yes you certainly have a real definition on luck. I have replied to you on the other site and will say again how sad and sorry I am to hear about your dear little grandson.
I know you are a career and your husband has MM just like mine. So we know what we go through everyday. I do hope Slim will have his SCT soon when you are both…[Read more]

Hi Andy
I hope my pic has gone and you can read this. It was so annoying trying to read through the photos. I do hope your raised temp was nothing to be concerned about and it is back to normal now?
So glad you like the bellwoods brewery website and the fact that they have Belgian beers on hand(or maybe that's tap?) I do hope you can get back in…[Read more]

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