Myeloma Forum | tmc | Activity https://forum.myeloma.org.uk/members/tmc/activity/ Activity feed for tmc. Sun, 05 Apr 2026 18:55:09 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 74b5a7e05bffe5a085e694c678272a87 tmc replied to the topic Lost in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/lost/page/2/#post-107682 Sun, 02 Sep 2012 23:46:54 +0100 Hi Judy Jean Tom Eve Ozzy Eliz Liz Dai Gill Ann Min Chelle and Helen
It is so kind of you all to post to me

It is such a nice fuzzy feeling to know you are all thinking of me and have taken time out of your day to post.

I think I have answered with a more up to date activites on
Thank you after 5 weeks of grieving
and Not Looking…[Read more]

]]> 4e04016bcde33c0091b7ee613faa6a15 tmc replied to the topic Good luck Tom! in the forum Off topic http://www.myeloma.org.uk/forums/topic/good-luck-tom/page/2/#post-110422 Sun, 02 Sep 2012 23:32:30 +0100 Hi Tom
Well I think if you get on I will have to visit my family over there just to watch their telly and brag that you are my cyber friend.
Good Luck glad you and Elaine enjoyed the experience so far
Love Teresa

]]> 6f76e2accfdb8b20d7a00e1c83317de1 tmc replied to the topic And the GOOD news is in the forum Off topic http://www.myeloma.org.uk/forums/topic/and-the-good-news-is/page/2/#post-110458 Sun, 02 Sep 2012 23:24:55 +0100 Hi David
I will be thinking about you as you are in the MRI tube and looking for your results on 7th
Love Teresa

]]> 16a1b53640c70eeaa3963e61bf499ab8 tmc replied to the topic Thank you after 5 weeks of grieving in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/thank-you-after-5-weeks-of-grieving#post-107757 Sun, 02 Sep 2012 23:16:36 +0100 Hi Tom,Jean,Helen,Andy Dai and Tina
Thank you for everything
I have said a little on Gills post Not Looking So Good
Love Teresa.

]]> 922ad244ea6a06dc534639171ebe7c28 tmc replied to the topic New Need to talk in the forum Carers http://www.myeloma.org.uk/forums/topic/new-need-to-talk/page/8/#post-106373 Sun, 02 Sep 2012 23:06:57 +0100 Hi Helen,Andy,Alison,Wendy
Thank you for your kind posts
Love Teresa

]]> e9bc6ce6224dfd4f57938c0c50a8bfb3 tmc replied to the topic Proper Fed Up Mark III in the forum Side-effects http://www.myeloma.org.uk/forums/topic/proper-fed-up-mark-iii/page/5/#post-104698 Sun, 02 Sep 2012 23:02:04 +0100 Hi Dai
I feel so sorry for you and your dreadful 10 weeks.
I do hope the anti biotics kick in and help you out until the GI crew can solve your problems.
Helen
Sorry to hear you also have GI problems is it interferring with your work day?

Love Teresa.

]]> bdbfb606252a7d749842e6a4ecf8a3b5 tmc replied to the topic Good News in the forum General http://www.myeloma.org.uk/forums/topic/good-news/page/2/#post-93397 Sun, 02 Sep 2012 22:51:39 +0100 Hi Eve
I am so happy that Slim is in remission, long may it last.
Love Teresa

]]> 840de494018eeb710a49bb888560b94c tmc replied to the topic Paraprotein news in the forum General http://www.myeloma.org.uk/forums/topic/paraprotein-news#post-93407 Sun, 02 Sep 2012 22:42:55 +0100 Hi Andy
will think about you on the 11th
In the meantime enjoy the Lakes
Love Teresa

]]> 6346c05a2bc6346891f609105c1fcb08 tmc replied to the topic Not Looking Good in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/not-looking-good/page/2/#post-107745 Sun, 02 Sep 2012 17:27:04 +0100 Hi Gill
Helen told me on July 10th she was glad I was able to care for Peter at home. It wasn.t easy but as Helen said the loveliest thing I could do for him. I hope you have the chance to also do this for Srephen.
Mins post above mentions talking of what Stephen may want for you in the future.
Peter and I talked and we agreed on a coffee date…[Read more]

]]> 4926dc0e8381ecbcc96c87b7d96fc732 tmc started the topic Thank you after 5 weeks of grieving. in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/thank-you-after-5-weeks-of-grieving Wed, 29 Aug 2012 21:09:18 +0100 Hi Everyone
Thank you for your sympathy during my time of loss. I wish I could write a personal letter to each of you but I was overwhelmed by your posts, cards, letters and donations to myelom in Peter's name.It is of great comfort to know you are thinking of me as I grieve Peter's death.He is free of pain and can wander through our minds when…[Read more]

]]> 42bd85714f8cca1fbbf38525990df10b tmc started the topic Lost. in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/lost Thu, 02 Aug 2012 13:54:38 +0100 I just do not know what to do now.
I have cared for Peter for so long and now it is over
I feel like a fish out of water all my strength was used up and I am just a husk.
Hoping it gets better soon
Peter died on Sat July 21st
Love Teresa.

]]> 44751837d81758d2b48c8ddffa38fe4b tmc replied to the topic Grief And A Hard Working Train Analogy (Poem) in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/grief-and-a-hard-working-train-analogy-poem#post-107663 Thu, 02 Aug 2012 13:50:21 +0100 So Sad
Love Teresa

]]> f9e3c17924a30eadb4c2d2c693a19db7 tmc replied to the topic New Need to talk in the forum Carers http://www.myeloma.org.uk/forums/topic/new-need-to-talk/page/8/#post-106368 Thu, 02 Aug 2012 13:46:59 +0100 Hi Helen
Hope all is still going well with your work and you are not to tired out.
Has your rain stopped yet??

The pomalidomide trial didn't work and he was on pain meds i.v only for the last week.
He was at home we had a bed in the living room where he could look out of the floor to ceiling windows and have family around. I had a bed in the…[Read more]

]]> 3831063b9a95f4fbaf93cf2f5ef4e651 tmc replied to the topic 100 days. in the forum Carers http://www.myeloma.org.uk/forums/topic/100-days#post-106462 Thu, 02 Aug 2012 13:32:13 +0100 Hi Eve
I so feel for you and the treatment you have had to put up with. I am glad Slim is feeling a bit beter now and will think about you on 8th as you make the journey up to Kings.
It's not easy and all the extra hassles makes everything so hard.
Love Teresa.

]]> 5bc00c01504d8f398c4b4f74059d01f0 tmc replied to the topic Proper Fed Up Mark III in the forum Side-effects http://www.myeloma.org.uk/forums/topic/proper-fed-up-mark-iii#post-104650 Thu, 02 Aug 2012 13:27:38 +0100 Hi Dai
So sorry to hear about your ailments but glad they seem to be sorting themselves out and hopefully you will be on a nice long sympotom free streak now.
Hope you feel stronger soon and can enjoy the sports
Love Teresa.

]]> 97970820a8d4d515bb859d3a9fcdd10c tmc replied to the topic Second opinion in the forum General http://www.myeloma.org.uk/forums/topic/second-opinion#post-93271 Thu, 02 Aug 2012 13:19:35 +0100 Hi Andy
I will be thinking about you Aug 14th
Glad the proteins are going in the right direction
How is the back pain?
Have a good day hope the rain has stopped?
Love Teresa.

]]> 0ed684a5c88cc06fc678b9927fadfab5 tmc replied to the topic The Answers in the forum General http://www.myeloma.org.uk/forums/topic/the-answers/page/2/#post-93135 Thu, 12 Jul 2012 01:06:06 +0100 Hi Andy
Do let us know when you have your appointment mailed to you so that we can think about you. I hope it isn't a midnight appointment and you can tolerate the lying still for so long.
I hope the radiation helps and is there talk of surgey yet? or radiation will cure it?
Love Teresa

]]> 417247aadd610ed503b363fe0642c58a tmc replied to the topic Revlimid in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlimid1341948392#post-99835 Thu, 12 Jul 2012 00:54:55 +0100 Hi Pennie
My husband has had MM for almost 8 years and 4 of those were in complete remission with revlimid/dex. The dex side of things wasn't so great but the rev was fine. I do hope you can find a way of working around this MM and spending some good times together. My husbands cracked bones were usually treated with radiation it helped with the…[Read more]

]]> 731275ca13f7758d2c5a5c869e7671e9 tmc replied to the topic Start stem cell in the forum Treatment http://www.myeloma.org.uk/forums/topic/start-stem-cell/page/3/#post-99769 Thu, 12 Jul 2012 00:44:44 +0100 Hi Etta
So glad everything is going smoothly
I will think about you and the others;Stephen Colin and Maragaret all due for sct around August.
I hope it puts you all into a nice long remmission.
Love Teresa

]]> 27b6d88a82888ce755a0599608cd8231 tmc replied to the topic Hi Ho.... Hi Ho... It's off to work we go... in the forum General http://www.myeloma.org.uk/forums/topic/hi-ho-hi-ho-its-off-to-work-we-go/page/3/#post-92504 Thu, 12 Jul 2012 00:36:32 +0100 Hi Helen
I am soooo happy for you.Hope the holiday starts soon, sounds as if you need it after that hectic and exhausting day.
Hope you aren't too tired or fatigued and soon get used to the new routine.
Good Luck
Love Teresa

]]> dfbdbd46ee17f447ad3ce5cdcbd0cf1e tmc replied to the topic Proper fed up... in the forum Side-effects http://www.myeloma.org.uk/forums/topic/proper-fed-up/page/2/#post-104602 Tue, 10 Jul 2012 22:58:18 +0100 Hi Dai
I do hope you and Janet are on the mend and feeling better now.
Hi Keith
Can you believe my husband drank tonic water and this helped his cramps. Not very scientific I know but something to do with the quinine?
Love Teresa.

]]> 89fae4364003c63b4a2fc58b4bec9ce8 tmc replied to the topic Colin the sequel SCT in the forum Treatment http://www.myeloma.org.uk/forums/topic/colin-the-sequel-sct#post-99787 Tue, 10 Jul 2012 22:52:45 +0100 Hi Vikki
Will think about you and Colin on 23rd July right through until Aug 23rd
Hope all goes well and a nice long remmission will follow.
Love Teresa.

]]> c2af73863e646b0ec0148a4fadb5bd8a tmc replied to the topic Seriously concerned in the forum Carers http://www.myeloma.org.uk/forums/topic/seriously-concerned#post-106452 Tue, 10 Jul 2012 22:46:16 +0100 Hi Gail
I am thinking about you and your girls and hoping that you are all coming to accept Howard's decisions about his life and the possible move into Hospice care.
My heart goes out to you all. It is a very hard MM road we travel.
Love Teresa.

]]> 3db09f3528dfb3c0cf70ead692b988a1 tmc replied to the topic Tickets for Wimblendom in the forum Off topic http://www.myeloma.org.uk/forums/topic/tickets-for-wimblendom#post-110345 Tue, 10 Jul 2012 22:33:38 +0100 Hi Eve
I was so happy to read that your daughter had a day out at Wimbledon and she has a trip to the Bahamas planned. Maybe Slim will change his plans for NZ and go to the Bahamas?
I am glad you are feeling better and the trips to the hospital are fewer. They really are a drain on our human resources.I always end up with a major headache on a…[Read more]

]]> 74d6e7306ecbf55bab61f24d86f569a2 tmc replied to the topic New Need to talk in the forum Carers http://www.myeloma.org.uk/forums/topic/new-need-to-talk/page/8/#post-106366 Tue, 10 Jul 2012 22:24:25 +0100 Hi Andy
Hi Eve
Hi Helen,
Well the temps have dropped to a balmy 28 and I have opened the windows for the first time in ages. The only good thing about going to the hospital was the air conditioning.
I do hope you are not still damp and cool and soggy It must be awful and it's Ju7ly! What will your Fall be like, Beautiful I bet.
My sister said…[Read more]

]]> 06634d013474122fd9f1160f01ef7d62 tmc replied to the topic The Answers in the forum General http://www.myeloma.org.uk/forums/topic/the-answers/page/2/#post-93133 Tue, 10 Jul 2012 21:47:36 +0100 Hi Andy
I think i may have missed somethign.Are you having radiation becuse you are cracking? Or is the pain from a tumour or nerves or what? Sorry if you have already explained this else where.
Well it's Tuesday was it today you went to see the Prof in his clinis?
Love Teresa.
I will pop over to carers and see whay you have to say.

]]> 10fee5fd32623b0865ae979ced15cb47 tmc replied to the topic Time for a laugh in the forum Off topic http://www.myeloma.org.uk/forums/topic/time-for-a-laugh#post-110348 Tue, 10 Jul 2012 21:36:22 +0100 Hi Min
It gave me a real laugh
Just what I needed
Love Teresa

]]> 4cdc8fb61beaa35a4d28d87b0c3e1d2e tmc replied to the topic The Answers in the forum General http://www.myeloma.org.uk/forums/topic/the-answers/page/2/#post-93128 Tue, 10 Jul 2012 01:20:37 +0100 Hi Vikki
Thank you soo much for the info. The doc came by today and has started Peter on a permenant pain drip with breakthrough pain pump every 15 mins. So we are hopig this helps. So glad Colin has his pain under control and hopefully it doesn't effect his daily ife too much
Love Teresa

]]> 61c3a842618708039db0a90f462d37a6 tmc replied to the topic The Answers in the forum General http://www.myeloma.org.uk/forums/topic/the-answers/page/2/#post-93130 Tue, 10 Jul 2012 01:18:06 +0100 Hi Andy
so glad to hear you are having radiation so soon. It really helped Peter with his rib pain. They gave several low doses to one area and a large dose to a rather bad area. The low doses allows them to revisit the site again.
So I really hope this helps with your pain and staying on the table while the radiation is aimed at you doesn't…[Read more]

]]> 923bb23db43223cea9b0bb5585509771 tmc replied to the topic 50th wedding anniversary in the forum Off topic http://www.myeloma.org.uk/forums/topic/50th-wedding-anniversary#post-110335 Mon, 09 Jul 2012 04:16:50 +0100 Hi David
How exciting 50 years! Will look forward to hearing what you have planned for November.
Love Teresa

]]> 21f5da08b78612f716d7c0c9290667fd tmc replied to the topic Bridget... 10:30am today and beyond in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/bridget-1030am-today-and-beyond/page/2/#post-107656 Mon, 09 Jul 2012 04:14:12 +0100 Hi Dai
What a lovely thing to do. We were at the hospital on July the 4th but I did have a little quiet time and remember Bridgit.
With sadness and love to her family Teresa.

]]> 7b08784489b7d7c315daeb2e7cca1679 tmc replied to the topic New Need to talk in the forum Carers http://www.myeloma.org.uk/forums/topic/new-need-to-talk/page/7/#post-106362 Mon, 09 Jul 2012 04:07:54 +0100 Hi Andy
So glad you had a nice time in the lakes even though you couldn't walk too much maybe in September things will have improved and you can have a warm vacation with lots of walking.
Have passed on the message to Luke the brewery owner.
Peter isn't doing at all well but thanks for asking.
They started him on a pomalidomide trial July 4th…[Read more]

]]> c7df5b68b7049ac76278569b50ddded6 tmc replied to the topic Start stem cell in the forum Treatment http://www.myeloma.org.uk/forums/topic/start-stem-cell#post-99746 Mon, 09 Jul 2012 03:54:44 +0100 Hi Eta
Hope all goes well with your collection and they get enough the first time
Love Teresa.

]]> bb846a4d6415d946b3507037a82882d2 tmc replied to the topic Hickman Line in the forum Treatment http://www.myeloma.org.uk/forums/topic/hickman-line1341176888/page/2/#post-99705 Mon, 09 Jul 2012 03:51:16 +0100 Hi Ali,
I am so glad your mum is home and happy that the 24hour cyclo drip is over.
Her own hair will regrow very quickly so the darn wig won't be too much of a problem for her I hope.

Eliz I am so sorry to hear about your awful back trouble just like so many with MM the back seems to be the spot if attacks..

Eve you are right the caring…[Read more]

]]> 6c61e6f998d2d8b3db0dc2a7faad2f6a tmc replied to the topic Good News X Two in the forum General http://www.myeloma.org.uk/forums/topic/good-news-x-two/page/3/#post-93004 Mon, 09 Jul 2012 03:28:11 +0100 Hi Tom
I am so happy Elaine is cancer free aftr almost 5 years. That is so good.
I am also so happy to hear you are still in remmission and don't have to go back for a check up for 4 months. 4 whole months how great is that. Eliz is right behind you at 3 months it is so good and hopefully you can enjoy your grankids even more now.
Love Teresa.

]]> 3fcb8cd5f765e0b1b8b515f39a1f9f42 tmc replied to the topic The Answers in the forum General http://www.myeloma.org.uk/forums/topic/the-answers/page/2/#post-93125 Mon, 09 Jul 2012 03:21:38 +0100 Hi Andy
Sorry to hear the sct isn't an option at this time and your siblings weren't the right match, but they can surely take your stem cells when that time comes.
Glad to hear you are off to see a national expert on MM and hope that he can improve on the stable condition you are now in, which is ok but can be better. Maybe the dex rev and…[Read more]

]]> 330d3bdc948324ee405bb2463dc50979 tmc replied to the topic Some good news in the forum General http://www.myeloma.org.uk/forums/topic/some-good-news1341140402/page/2/#post-93051 Mon, 09 Jul 2012 03:02:32 +0100 Hi Mavis
I truly hope you get a long remission and become more mobile and can start to look forward and enjoy.

Wendy glad to hear you are doing reduced hours at work and loved the photo of you finishing the Manchester run.

Helen I do hope all the infections are cleared up and you get a pension forecast soon and can get back to work if you…[Read more]

]]> 702353bf4c5fdc18b22a09b0952a7969 tmc replied to the topic A Postcard from New Zealand in the forum Off topic http://www.myeloma.org.uk/forums/topic/a-postcard-from-new-zealand#post-110297 Mon, 25 Jun 2012 21:54:58 +0100 Hi Helen
what a lovely photo of you and sister?
Glad to hear you are still in complete remission and hope you go on for another 50 cycles of Revlimid.
Nice new hair
Love Teresa

]]> dd234d6518244ecc3819286b09ef5aad tmc replied to the topic I am newly diagnosed with Myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/i-am-newly-diagnosed-with-myeloma#post-86207 Mon, 25 Jun 2012 19:14:35 +0100 Hi David.
Let us know how the three monthly check up goes. Hope the pp's stay under control
Love Teresa

]]> 8d4c89f486fa0ad1b4a923b4b50a7170 tmc replied to the topic I am newly diagnosed with Myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/i-am-newly-diagnosed-with-myeloma#post-86210 Mon, 25 Jun 2012 19:13:10 +0100 Hi Judd
I have just read your post and what an experience,
I will add that I can really relate to it as it is almost the same as my husband only it happened to us over the christmas vacation 2004. His spine finally collapsed just outside the hospital and they operated on him that night. We have been 7 years from that day now and with lots of…[Read more]

]]> a5a4a9a530f208ef887aefe7163f4d35 tmc replied to the topic New Need to talk in the forum Carers http://www.myeloma.org.uk/forums/topic/new-need-to-talk/page/7/#post-106360 Mon, 25 Jun 2012 19:02:49 +0100 Hi Helen
I love the hair it is gorgeous I want it!
Love Teresa.

]]> bdb3b4b6fc0ea58d29ec86161bb3c623 tmc replied to the topic New Need to talk in the forum Carers http://www.myeloma.org.uk/forums/topic/new-need-to-talk/page/7/#post-106358 Mon, 25 Jun 2012 19:02:03 +0100 Hi Eve
I love your saying about being strong. i have also been told we are only given the cross we can bear but I feel as if mine is dragging on the floor some days
Going to the bottom of the garden to look at the birds is not an option any more just looking out of the window and we saw a very large hawk circling over this morning.
I have no…[Read more]

]]> 36a8d0ee712279c2abc2176a72a4314c tmc replied to the topic Fridays blood tests & results in the forum Treatment http://www.myeloma.org.uk/forums/topic/fridays-blood-tests-results#post-99422 Mon, 25 Jun 2012 00:07:57 +0100 Hi Andy
so glad to hear your pp levels are going south and hope you are feeling good.
Dont; get over tired on your trip and stay well
Love Teresa

]]> c39cc89bc4f7a4f4a41cf887c3265422 tmc replied to the topic New Need to talk in the forum Carers http://www.myeloma.org.uk/forums/topic/new-need-to-talk/page/7/#post-106356 Sun, 24 Jun 2012 23:46:05 +0100 Hi Andy
I hope you are enjoying yourself in the Lake District and hopefully having good weather.
You may be interested to know my son in law won gold for his Porter.
You can see it on bellwoodsbrewery.com/retail if you want.
Looking forward to reading about your trip and hoping you are staying well and not too tired out from all the…[Read more]

]]> e0adca95a31998ba7daca03195dd7b6b tmc replied to the topic New Need to talk in the forum Carers http://www.myeloma.org.uk/forums/topic/new-need-to-talk/page/7/#post-106355 Sun, 24 Jun 2012 23:40:04 +0100 Hi Helen
Still waiting for a photo of you with blond hair.
I am so sorry about your garden I hope you get it into some sort of shape before you go back to work. Is that soon?
We have had really hot weather and everything is growing like crazy even eating stuff already.
Peter is now in palliative care at home, but is hopeful that the drugs…[Read more]

]]> 5b956c6a3a94f05291589410d7ea7889 tmc replied to the topic Keeping up appearances in the forum General http://www.myeloma.org.uk/forums/topic/keeping-up-appearances/page/4/#post-91798 Sun, 24 Jun 2012 23:26:53 +0100 Hi Helen
I am so looking forward to a new photo on here to show us your blonde "do"
I bet you look great
Luv Teresa

]]> 93af8b2daa2d6a0703d1b8695a1b9ef4 tmc replied to the topic Brocho - Bridget Rochfort in the forum General http://www.myeloma.org.uk/forums/topic/brocho-bridget-rochfort/page/2/#post-92904 Sat, 23 Jun 2012 13:39:29 +0100 Dear Siobhan
When my husband relapsed after 7 years with MM I came onto the forum and Bridgit was among others who helped me through this time.
Bridgit also told me which pain meds to ask for, to help my husband.
I am very sad for you and the family at the loss of your dear mom but comforted by the thought that she passed away quickly with you…[Read more]

]]> 5a3a4b89aed641e22dd04f35f092c303 tmc replied to the topic UPDATE ON MICHAEL in the forum General http://www.myeloma.org.uk/forums/topic/update-on-michael#post-92734 Sun, 27 May 2012 21:27:07 +0100 Hi Sue,
I know exactly what you mean my husband had had MM for years and I just don't know what to do when i don't have to be with him. I wander around trying things and not settling at anything it is so strange as if something is missing.
I hope eventually you will be able to settle at something and relax do take care we have to be strong and…[Read more]

]]> 7dea4160ff5372d4256fcaab864170cb tmc replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/my-husband-has-just-been-told-he-has-got-myeloma/page/6/#post-85930 Sun, 27 May 2012 21:15:08 +0100 Hi
Best wishes for Tuesday
I hope Colin and Pete have had a better day today but each day different so just accept.
My husband Peter also had pain in the sternum,/chest issues after his SCT and he has been seeing a cardiologist ever since. Just a regurgetation valve problem but they don't want the heart to swell so he is on heart meds and…[Read more]

]]> 05095743997736d3cc62f76184d35e76 tmc replied to the topic Keep Calm & Carry on in the forum Treatment http://www.myeloma.org.uk/forums/topic/keep-calm-carry-on/page/2/#post-99366 Sat, 26 May 2012 13:55:29 +0100 Hi Dai
Glad the email arrived.
Sorry to here about your spiking temp but you seem very calm and take it in your stride.
How on earth can you drink soooo much I think I would be sick if I drank that much.
You must tell me any tricks to get in down so that I can make sure Peter has plenty to drink in this hot weather,
Love Teresa

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