Hi Jackie

I am so sorry you are finding it difficult to cope at this time my heart goes out to you.

I am fortunate to have never been in this place that you find yourself in so I cant say "I know how it feels" as I cant.
I am doing good but that said Like Dai I talk about it not only to my wife but my Sons also that way their will be no…[Read more]

Hi Nerys

Your more than welcome, and as you say its good to hear about remission and long ones at that 😀

And just to add to the Good news I have been in remission since 2009 and drug free since 2012, and am selfish as I am asking for a longer remission 🙂

Good Luck to you Both

Love Tom Onwards and Upwards xx

Hi Maureen and Ian

That's good news as you say I bet it was the Cake that did it. well done and good luck stay strong.

Love to you Both

Tom Onwards and Upwards xx

Hi Jacquie
Well done in getting it sorted, I wont tell you not to worry as you still will, I will just tell you, Take one day at a time and let it run its course its a doable.

Now go and put some weight on first.

Tom Onwards and upwards

Hi Jane

Well am pleased your Bloods was Ok 😀
And I hope its soon when you start your CTD, Hope your Daughter and Son in Law have a safe move and weather keeps dry.

Yes Elaine and i have the grandkids often we have six :-0 not often we get all six together its a scatter here and their but we do have days when we know we will have them…[Read more]

Hi Maureen and Ian

Am not shocked nor surprised by the way you both feel, as its been said many a many a time its hard bloomin work and i think its harder to be the "Carer" than the patient.

I hope you all have a great Birthday,we all know its not going to be a great big lets get this party started day, so a little bit less is more (as the…[Read more]

Hi Sarah and Henry

I can tell you I had them as a child, and got spots again when I was in my late 30s and told Dr my wife thinks its chicken pox ??? He said You should listen to your wife more as she is correct. But be grateful it's not shingles ? So the answer is yes.
Hope he stays well from it.

Love Tom onwards and upwards xxx

Hi Ian

Thats Good and i hope that you dont have problems with your legs as am sure you have enough to contend with.
They say the Subcut is best way? am pleased you are confirming that.

I have fingers crossed for you Ian, keep well and hope your legs stay solid.

Tom Onwards and Upwards

Hi Jane
Your welcome.
Dont forget during SCT you wont be alloewd out till your fit (ish) so I would suggest patches before you go in to wean yourself off them 😀 that said you will be near a coma anyways as Elaine told me i slept most of the time Lol.

Easter? well no plans but am sure we will be babysitting some time over that week end 😀 ,…[Read more]

Hi Billy
Sorry you had to join us but welcome anyway.
Its hard to keep your savings when you get ill let alone when you get proper ill 😐

I and my Young Bride (elaine) has seen our savings not only dwinndle but go the lot :-S as Elaine got breast cancer in 2008 and i with MM 2009 🙁
BUT I am pleased to say I dont have Bone damage and…[Read more]

Hi Jean and Frank

Well am sorry to say I cant help re the Leak from Franks Kidneys :-S but am sure the Dr's are on it with the Anti B's .

Its a long haul andf am sure it was longer for my Young bride (Elaine) than I ??. you know you will have to stick with it Jean but it has been said before "Make sure you Rest also" as the work realy…[Read more]

I got it first time jean Lol xxx
😀

😉

Hi Jean and Frank

Well I had a fair bit of Platlets and blood given whilst in Hospital and to be fair when I dropped I didn't feel well untill the day before i came home (was in 16 days) I had the rash but the think I worried more about was the sickness and still running to the loo, but it all came togeter slowly, I know its Hard to sit and…[Read more]

Hi Jane

You will be fine (ish) and yes i uised to smoke,, stopped just three weeks prior to my SCT in 2009, I was just using Patches to help me while i was in Castle Hill having SCT and thought when i am out I would start again 😀 , but it all fell apart as after SCT I couldn't be bothered or want to Roll me Fag so i didn't nor did i have the…[Read more]

Well as if we dint know it would work on you 😀 but that said a very well done Peter and long may it continue 😎
Great to hear Good news

Tom Onwards and upwards

Aww Tanya Gi Ower or yel mek me blush 😉
Well we are through the upbringing stage and have moved on broke the chain am pleased to say.

I do hope your dad sorts himself out for him as well as the family.
Your dad is in for a rough ride with the mix that he is in so you must brace yourself as you know you will be the whipping girl to shout at…[Read more]

Hi Pat
Aww am pleased Beatrix is home I bet you are all over the moon.
Face time is great but getting some of the grandkids to sit back a little is bloomin hard work ha ha, lets get thos other 5 out of the way and get yesen off to canada.

And Jean am sure you could never look like you have been dragged through a hedge 😀

Love to you and…[Read more]

Hi nerys and Mum

A warm welcome to the site, as you know its got great people on here.
You have had your Q answered by those great folk, your Mum's Journey like most here has been a difficult one, most Dr's dont know what and how to tell its MM.
I went in December 2008 with a problem on ribcage and was told it was a "Pulled Muscle or a…[Read more]

Hi David

What a great post 😀 yes my family and friends (not all though) cope with my MM in a good bantered way and throw the jokes in 😀
am sure am due an update of photo's David? and the pillow looks great your young lady wife did a top job on it.
Am pleased you say you are not rushing into useing the coffin for many a year to come but…[Read more]