tom replied to the topic Second Stem Cell Transplant in the forum Treatment 11 years, 10 months ago
Hi Chris
Good Luck in your new treatment I hope its fast and puts you and keeps you in remission for many a year 😀
Re the hiccups ? well My steward at our local drinking hostelry gets rid of everybody's and she has never failed.
get a glass of water (we do it with beer lol) fill your mouth DONT SWALLOW YET, put your fingers in your…[Read more]
tom replied to the topic Here for dad in the forum Newcomers 11 years, 10 months ago
Hi Sal
Your welcome, sorry to hear Dad had two heart attacks, am sure they will find treatment that will work with your Dads heart problem.many have said that RT helps ease the pain.
Tom Onwards and Upwards xx
tom replied to the topic Good News for our holiday in the forum General 11 years, 10 months ago
Hi Trish
Your welcome and you need two more to catch up with my young bride and I. Who have six from age 9 years down to Sophie who is nearly 8 months young.
Love Granddad Tom
tom replied to the topic Excersise in the forum General 11 years, 10 months ago
Hi Charlie
Am sure it will be a none impact one, I do walking and A bit of leisure cycling, but not too much am afraid so am not the best to advise, am sure Some one might have been told what's best I would love to know myself .
Tom Onwards and Upwards .
tom replied to the topic A Sunny Happy New Year in the forum Off topic 11 years, 10 months ago
Hi Eve
Yes thats correct you cant smell it lol. ye reflection is hard even for us in remission? but hey ho.
The site is great for old and new members as out treatment changes as some one will have been through it before.
Pleased you like the Onesie my youngest Son bought it for me as a christmas Pressie 😀 and yes he likes a laugh 8-)…[Read more]
tom replied to the topic Good News for our holiday in the forum General 11 years, 10 months ago
Hi Peter and Trish
Great to read you all had a great time I bet it was worth that long flight 😎 and trust me May will be here before you know it enjoy the twins.
Love Tom "Onwards and Upwards" xxx
tom replied to the topic Here for dad in the forum Newcomers 11 years, 10 months ago
Hi Sal
Am sorry your Dad has been Diagnosed with MM. your Dad has done well getting it found out as soon as he did.
What Hospital is your Dad getting his treatment from (some on here might be in same hospital)
What treatment is your Dad on or going on?
Good Luck to your Dad in his treatment and stay strong for your Mum also.
Love…[Read more]
tom replied to the topic So Alone in the forum End of Life and Grief 11 years, 10 months ago
Sue
You are correct this site is a godsend for us all, Patient and Carer.
The One I would advice anyone to phone would be 999 they would be my first call.
Honest Sue please ask anything you feel you need to know more about I know it wont be easy for you but am sure if you feel its important then it is.
Stay Strong
Love and Hugs Tom xxxx
tom replied to the topic Phil's SCT Journey in the forum Treatment 11 years, 11 months ago
Hi Megan and Phil
Still doing good as far as i can see 😀 , RE the hair thing well I got the Nurse to shave it in Hospital and when I came home I used my Leccie Razor and took it to the bone :-S and kept it like that till it started to grow back, and it was bloomin cold but a good hat sorted that out.
Megan you do right in resting as you…[Read more]
tom replied to the topic A Sunny Happy New Year in the forum Off topic 11 years, 11 months ago
Hi Eve
And a Happy New Year to you and Slim 😀
I know what you mean when you say you look back each new year, I also do that but I also look forward with baited breath and anticipation 😎 but yet again I still worry during every new pain cough/cold and or ache its normal (or so am told) I also try and shove the MM to the back of my brain…[Read more]
tom replied to the topic Itchy Rash Post SCT in the forum Side-effects 11 years, 11 months ago
Hi Suzy
I had an itchy rash after my SCT but it soon settled, I have had exma for many a year in the winter months and as I had SCT in December I was on top of it straight away.
Hope hubby is soon sorted.
Love Tom Onwards and Upwards xxx
tom replied to the topic So Alone in the forum End of Life and Grief 11 years, 11 months ago
Hi sue
Am pleased Xmas was ok for you, this time of year is difficult for us all and I send you hugs during those dark moments (( hugs )) am not sure why you were both told how long?? As it doesn't sound like it has helped.
Stay strong.
Love Tom xx
tom replied to the topic A Sunny Happy New Year in the forum Off topic 11 years, 11 months ago
Hi Tina
I am pleased you had a good time at your Brothers wedding, it's brave picking this time of year for the wedding.
It's a beautiful place to live/visit. But Ice cream. Brrrrr.
Keep having god thoughts Tina.
And my best wishes for you this year.
Love Tom xxxxx
tom replied to the topic Bendamustine C1. in the forum Treatment 11 years, 11 months ago
Hi Dai
I hope you have a good run on this Dai, and Rosie seems to be doing ok on it 😀 .
Like all treatment it's a listen to your body and you Dai are a good listener 😎
Good luck with it Dai
Happy new year to you and Janet.
Tom Onwards and Upwards. X
tom replied to the topic Phil's SCT Journey in the forum Treatment 11 years, 11 months ago
Hi Megan and Phil
Am plased they are sorting out the infection once that has gone its a move closer to home.
Dont worry about the daily postings mit brings back things I forgot in 2009/10 ha ha, this post will help others comming up to or just starting the road to remission, if you can please keep it going.
Love and Hugs to you both, and…[Read more]
tom replied to the topic So Alone in the forum End of Life and Grief 11 years, 11 months ago
Hi Mary
Am sure it was/is tough for you at anytijme let alone this time of the year, Hugs sent to you ((HUGS))
My Link with MM is I was told in 2009 that I had it went through CTD them stemcell transplant in Dec 2009 and now am drug free, Thanks for asking.
I hope this year you find time to remember the God times and am sure you both had…[Read more]
tom replied to the topic hi from another newbie!!! in the forum General 11 years, 11 months ago
Hi Steve
Just nipped in to see how you are ? Hope you are copping well and not too many side effects.
Let us know how you are doing 🙂
Tom "Onwards and Upwards"
tom replied to the topic Phil's SCT Journey in the forum Treatment 11 years, 11 months ago
Hi Megan and Phil
My you have done well Phil I never let my stand leave my room Lol, I was still on anti sick tabs (was for a couple of months when got home to be fair)
I was out on my 16th day and even threw up on that day (but dint tell the nurse ((Nawty Tom)) as she might have kept me in )
Keep it going and it will work dont forget…[Read more]
tom replied to the topic Second anniversary visit to haematology in the forum General 11 years, 11 months ago
Hi Helen not to put a damper on your Rechargeable Battery's but my energy levels vary ?? some days I could dig holes for England others I would struggle to hold the shovel let alone use it :-S BUT I have learnt to do a little and often still rest when both my body or my young bride tells me 😀 as she knows me better than I think I know…[Read more]
tom replied to the topic Bendamustine 2nd Cycle in the forum Treatment 11 years, 11 months ago
Hi Keith I try M8 I try and Thanks. But am sure I will put up a good fight with the demon Drink dont you lol. Have a good un
Dai All the best for your start on Monday, fingers crossed it work well for you 🙂
Have a good you all
Tom "Onwards and Upwards" x