tom replied to the topic Has anyone heard from Dai? in the forum General 12 years ago
Well I have a Bald(ish) head so I wear a Cap and that is Raised to the rafters for those three 😎
Tom "Onwards and upwards"
tom replied to the topic It is all supposed to be OK now in the forum End of Life and Grief 12 years ago
Hey Gill
I am same as the others here.
I have read no where anywhere that tells people to be back to normal after X many months/years and I assume everyone differs in the time before they feel ready to move forwards BUT not forget the loved one who has passed away.
I would hate it to happen to me if I lost my Young Bride and Fmaily and…[Read more]
tom replied to the topic Record Low Bloods in the forum Side-effects 12 years ago
Hi Keith
Well I for one feel for you, what a decision, to stop what is making you better/then ill to nothing that you know will make you ill?? (if i got it correct??)
And what is the Consultants view on it all?? am sure he/she has some input to throw on the smouldering fire?.
I cant make that Call for you Keith but I wish you luck in your…[Read more]
tom replied to the topic Colin SCT starting, here goes!!! 🙂 in the forum Treatment 12 years ago
Hey you two its great to hear Colin is awake make the most of it cos sleep will come 😛
I never bothered about Food to be fair when i was in hospital and not too much passed my lips for a long time when i came home just plenty of water was good for me 🙂
Keep Well Coin
Tom "Onwards and Upwards" xx
tom replied to the topic Weird side effect? in the forum Side-effects 12 years ago
Hey Peter dont expect it to change after your SCT in Jan I can still fall asleep at at at ?? well before the hat even starts to drop he he, and if you ask my young bride my ears have never been anygood at listening lol. and I aint on any drugs 😀
So still get tired
Still feel the cold (lot more than i used to)
But am still here and if…[Read more]
tom replied to the topic Good News for our holiday in the forum General 12 years ago
Hey Trish and Peter
Well done you two, am pleased for you thats great news get yersen off and have a great time.
From this Onwards and Upwards to you two that are also Onwards and Upwards.
Tom xxxx and dont forget the 😎
tom replied to the topic Good News! in the forum General 12 years ago
Hi Mavis
A Well done from Iccle ole me 😀 thats great news to read on here and I bet you were and still are over the moon to write it, well done Mavis and long may it continue 😎
I am comming up to my third year post SCT and am not expecting it to fail 😎
Keep it up Love Tom "Onwards and Upwards" xxxx8-)
tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 12 years ago
Hi Chris
Keep your han on that roll at least you dont need to put it in the fridge lol.
I had lost loads of weight pre SCT and was still shocked to see it still falling off after SCT but I can confirm it comes back with a vengance LOl
Keep well Chris, not long now
Tom "Onwards and Upwards" x
tom replied to the topic Weird side effect? in the forum Side-effects 12 years ago
Hi Pat
Am sorry to read your a bit off it girl but its the norm :-/ its MM for you.
Now I remember getting a grean ring around my neck from my "Gold 😛 ) neckless but that was after I went swimming with it in the sea lol, but I have never heard of silver doing anything with treatment ?
Am sure you know am now treatment free 😎 but…[Read more]
tom replied to the topic Colin SCT starting, here goes!!! 🙂 in the forum Treatment 12 years ago
Hi Vicki and Colin
Well its a bit rough aint it and we are all sorry to hear that BUT it has to be done and its just a wait and wait now am afraid, when the rough bit gets to Colin am sure Like me he will sleep through most of it I hope.
This SC things not a fast fix and to be fair Colin and yourself will be knackered for a fair few months…[Read more]
tom replied to the topic Colin SCT starting, here goes!!! 🙂 in the forum Treatment 12 years ago
Hi Vicki and Colin
Just checking in to see how you both are ?? and Vicki you must rest and get your strenth up cos your work will start more when Colin is Home.
Lots of Love from one "Onwards and Upwards" to anothe Couple of "Onwards and Upwarders" xxxxx
tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 12 years ago
Hi Chris
Well its working and I hope you dont get the "Trots" but am sure you will he he.
My trots dint just stop when I left hospital so be warned.
The sleep is good for you I spent 5 days asleep and some time woke up to find a not from Elaine saying she had been Lol
Keep it Going Chris not long now.
Tom "Onwards and upwards"…
tom replied to the topic CTD Finished and came home on Wednesday 31st in the forum Treatment 12 years ago
Hi Tina
Well I feel for you, I had all mine done Xmas 2009, that xmas and new year was a wipe out for me missed it all as I like you was being sick, couldnt eat and felt too weak to move some days. (and thats only what i can remember) as for the sickie thing I stayed on Anti Sick Pills for MONTHS to keep that at bay. and the food we aorked…[Read more]
tom replied to the topic Releasing stress in the forum Off topic 12 years ago
Hey Folks and as David Said Good reply's 😀 I am like most of you on here yep got it but dont want it, fight it but would rather have a rest every now and then and thats what am having now a Rest before my next treatment needs to kick in but as am still in remission am not expecting it too soon8-) but will I be upset sad and angry when it kicks…[Read more]
tom replied to the topic Chest infections in the forum Side-effects 12 years ago
Hi Sarah and Henry
I have suffered lord knows how many chest infections since finding out I have got MM so its an MM thing but I have been told not to bother with the Dr to phone our ward up and ger advice and or pop in, the kept me once and put me on a drip and sent me home other times its just Anti B's with a come back if temp gets too high,…[Read more]
tom replied to the topic Colin SCT starting, here goes!!! 🙂 in the forum Treatment 12 years ago
Hi Vicki and colin
All Looking Good now and do you know the one that says "Onwards and Upwards is very happy for you two take it on board also so then we can have more "Onwards and Upwards" folk 😀 its not done yet you tow but its Looking good so keep it up and it wont be long now, stay well and bug free.
Love to you both.
Tom One…[Read more]
tom replied to the topic Waiting in the forum End of Life and Grief 12 years ago
Hi Sue and Michael
I am so sorry to read that its not working for you two and of course your family and friends.
You all have put up a great fight with this Myeloma,am sure Michael will be made comfortable and be pain free, Yes you both could have been told better that the treatment had stopped working but please dont dwell on it as you…[Read more]
tom replied to the topic starting treatment in the forum Newcomers 12 years, 1 month ago
Hi Polly
Am sure with a handfull of Onwards and Upwards and a sprinkle of one day at a time, and everyone crossing everything we have all it made am sure, hope all went well yesterday
Love Tom "Onwards and Upwards" xx
tom replied to the topic Infections in the forum Side-effects 12 years, 1 month ago
Hi David
Well we know you cant beat that Bombing about malarky 😀 , lets hope its for many a year 😎
Tom "Onwards and Upwards" x
tom replied to the topic Mom's mental condition in the forum Side-effects 12 years, 1 month ago
Hi Kay
Am sorry to see you joined the site on behalf of your Mum.
I cant add anything to your Q as to what does or might not happen at the end stage of MM.
Am sure if you talk to the Dr who is treating your Mum he/she will tell you the best way to go re treatment for your Mum at this stage.
I just wanted to send my thoughts to you your…[Read more]