tom replied to the topic I feel so miserable! in the forum Newcomers 12 years, 1 month ago
Hey Kerry That my Girl Is Normal, I am the one with MM so am being looked after by my lovely wife Elaine (the young bride) I was told in Jan 2009 that I had Myeloma, done the CTD then the SCT (all good now) BUT Prior to my MM Elaine (the young bride) was told in Jan 2008 (yep one year prior to mine to the day near as) that she had breast cancer…[Read more]
tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 1 month ago
Wow are we seeing new photo's here 😀 all looking great.
Keep strong you all looks like winter is dragging itself closer for us 🙁
Love Tom "Onwards and Upwards" xxx
tom replied to the topic Two hospitals in one day in the forum Treatment 12 years, 1 month ago
Hey Andy and Steph
Well you are avin to give this a good fight M8 🙁 but I know you can both do it 😀
Its an Uphill battle this MM when it runs smooth so I do feel for you two, I hope you get a good Match near home.
Keep strong you two
Tom "Onwards and Upwards" x
tom replied to the topic Just Diagnosed in the forum Newcomers 12 years, 1 month ago
Hi Mary and Charlie
Am sure the Drug free will come to you two also mine was over two and a half years before I stopped taking them :-/ but well worth the journey 😀
Good luck for tomorrow 😎
Love Tom "Onwards and Upwards" xxxx and the odd glass of Vodka xxx;-)
tom replied to the topic We lost our dad. in the forum End of Life and Grief 12 years, 1 month ago
Hi Vicky
Your More than welcome and I hope you are all going through this as well as you can yes I still think about you all after your Loss.
Take Care and be strong.
Love Tom xxx
tom replied to the topic starting treatment in the forum Newcomers 12 years, 1 month ago
Hi Polly
Sorry you had to start treatment 🙁 but my advice would be "Take one Day at a time,rest when your body tells you, and more important use this site to ask complain and have that moan that I know you will have from time to time" but its well worth it.
Keep well and stay strong
Love Tom "Onwards and Upwards" xxx
tom replied to the topic Low Blood Counts in the forum Treatment 12 years, 1 month ago
Way to go Keith, Keep well and stay strong 😎
Tom "Onwards and Upwards"
tom replied to the topic Myeloma XI Trial (MXI) in the forum Treatment 12 years, 1 month ago
Hi Amanda and Bob
Well I dint have any trails but I was on CTD in Feb 09 for 5 cycles (28 day) then SCT in December 09, now drug free and doing well 😎
Its all doable Amanda, but it has its bad bits am afraid but in the end it works out OK :-D, so four years this next Jan since I started my road to remission and that has been achieved 😎 and…[Read more]
tom replied to the topic live life in the forum End of Life and Grief 12 years, 1 month ago
Dear Ann
I am sorry to read about The loss of John in his hard fought battle with MM.
Love and Hugs to you and your Family at this sad Time
Tom xxx
tom replied to the topic So What Magic Happened Here? – Wedding Poem for Becky & Liz in the forum Off topic 12 years, 1 month ago
Dai Why oh Why do you seem to do it most of the time????? Yep I had a tear in one of my eyes you burgar 😎 its great dai and much too good to be spoilt by adding my name to it.
I Know you will be well for the big day and am sure every one will loove it.
Tom xx
tom replied to the topic Public Swimming Pools in the forum General 12 years, 1 month ago
Hey Nettie
I wasn't told to avoid it but I did (aint too good in water lol)
My Young Bride was told to avoid indoor pools (for 121 months) after she had Radio therapy when she had her op for breast cancer but wal Ok to go in the sea.
Keep well
Love Tom (cant swim well) "Onwards and Upwards" xxx
tom replied to the topic It's not the cough etc etc in the forum General 12 years, 1 month ago
Thank Ali I am doing Ok not coughing as much but think I am losing my Voice (am sure I heard my young bride say "cant wait" lol)
I was told I dont need to redo mine?? but am sure it will help if you E mailed the Nurse on here 😀
Love One Getting Better Tom "Onwards and Upwards" xxx
tom replied to the topic We lost our dad. in the forum End of Life and Grief 12 years, 1 month ago
Dear Vicky
I am so sorry about your loss but am pleased your Dad was at home with you all.
Love and Hugs to you all at this sad time
Tom xxx
tom replied to the topic Traipsing (Not Tripping) Down The Aisle in the forum Off topic 12 years, 1 month ago
Dai and Janet am sure you will have a great day and dai you will be spot on as I know you have rested up and saved your strenth for this wonderful day, Have a great time and Love to you and all yours on the great day, you may add me into your speach I dont have a problem with that Lol.
Love to you all
Tom "Onwards and Upwards" xx
tom replied to the topic Just Diagnosed in the forum Newcomers 12 years, 1 month ago
Hi Charlie and Mary
Well am Pleased you are both well 😎
Am sure you know that I am now Drug Free 😀 but what I read on here the Velcade sounds like a good one and good for us humans 😎
I am with you re that hot beach and a few Vodka's thrown in also.
Our week end away was great we had a bril time and sent kids home on Sunday…[Read more]
tom replied to the topic It's not the cough etc etc in the forum General 12 years, 1 month ago
Hi Helen well am pleased I am reading this as it makes my bad chest seem a lot better, and trust me I dont think you could get "Grumpy" 😉
I asked about child hood jabs and was told i dont need them?? we will wait and see Lol.
Now waiting for Dr's to get more Flu jabs in they have run out??
Love Tom "Onwards and Upwards"…
tom replied to the topic SMM has become Myeloma – immediate treatment in the forum Newcomers 12 years, 1 month ago
Hi Sara Jane
A warm welcome and I would like to wish you well on your road to remission. I hope the road is a smotth one ? I felt mine was smooth after reading some posts on here later on? or is it that the mind can blank things out?? nope I had a easy run thats for sure.
Stay Strong and stay well and follow what your body tells you, I know…[Read more]
tom replied to the topic My 39 year old Melvin's MM Journey……. in the forum Newcomers 12 years, 1 month ago
Hey Kerry Happy Birthday Young Lady Hope you have a good one 🙂 xxx
tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 1 month ago
Wow you two aint doing this the easy way are you??.
I bet your well peed off I hope the get them all back in nice and safe 🙂
Love Tom "Onwards and Upwards" xxx
tom replied to the topic velcade in the forum Newcomers 12 years, 1 month ago
Hi Michael and Jo
A warm welcome to the forum and am sure you didnt want to join 🙁 but you will find great people in here and will answer any Q you may have and you will have many, make yourself at home and dont worry about making a mistake it will all fall into place soon.
As for the Velcade am sure its not used as a "Front Line…[Read more]