Hi Julie

Sorry to read your mum has been through a lot, it’s a hard illness to find the one that will kick it into touch, I have had the CTD and SCT all in 2009 four years remission then it kicks back in again so am now on Velcade getting ready for my second SCT at the end of this year all being well,

Am sure they will find the one that will…[Read more]

Aww and here is my bloods, tell me what they look like lol

lol. My blood markers were at the start of Velcade …….
Hb…13.4
WBC..4.9
Plts..2.50
Neuts…2.58

Then after 3lots of Velcade it is……

Hb…128
Wbc…6.0
Plts….191
Nuets….5.4

Not sure where the Dec point should be as I have one middle front and back on these lol.

Hi Andy
Well done on that beer, am sure you have seen my photos on face book from Sunday afternoon I had more than the one started at 12 and went home (was taken home to be fair) at 5.30 ish lol

Enjoy more beer as the weeks go on and I will help you at Scunny lol

Love to you both

Tom onwards and upwards ..

Hey Vicki how did you know I drunk Vodka lol, yes it would be rude to stop at the moment as i feel it has helped in my remission lol.

Tom Onwards and upwards xx

Hi Trigger

Well I had a sct in 2009 yes it was a bit of an uphill struggle at times but for me it was a doable and you know your Mum better than most, most people differ in how and what they can and do achieve, My SCT gave me 4 year drug free and that I am grateful for .

I have decided to go down the SCT route again as I think as it worked once…[Read more]

Hi Maureen and Ian

Yes a good bottle of red should be on NHS Scrips lol,and I aint got any side effects to speak of cept the Dex and sleep (lack off) so am going to have my week three of Velcade in Morning plus me ten iccle Dex Mates lol, so nearly just over half way on my first four week cycle and doing good

Enjoy whats left of the week end…[Read more]

Morning Andy and (The ever watchful) Steph

I bet its been a long week for you both ?
I hope the Anti B’s have worked for you and those lovely Neuts have got to a point where you can restart your treatment.

You can always get the beer in and invite those that aint Buggie lol.
Stay well my Friend and Steph stay on watch young Lady

Every Day is…[Read more]

Now half my post is missing ???????

Hi Maureen and Ian

Pleased bloods are good it’s a step in the right direction, I hope it’s a nice bottle of red you are having

Hi Judy
Yes I do take them in morning about 5am but it still makes me lose a few days sleep to be fair and am sure I catch up on a Thursday lol

Liz and Kev

Yes I am still clocking on so far will continue until I just cant do it any-more ?

Have a great week end you all

Love Tom Onwards and upwards xxx

Hi all

Well I gave had two lots of Velcade and two lots of steroids and doing well at the moment.
Just had the sleepless nites with the Dex then the fatigue at the end of the week so it’s all good.

Carol looks like your doing well with it good on you,

Mavis yes on for another SCT at the end of this treatment it’s what I said I would do to be…[Read more]

Morning Harmony
Hey you have seen my post am not easily offended nor easily upset, a prayer or three is good I am getting them from all faiths to be fair I have brothers that are Catholics and Protestants and one that is a Mormon so I have all bases covered like us all we need more he he onwards and upwards is a great ending to the post like all…[Read more]

Morning Andy

Yes as you know I stalk you on face book and at times on twitter (don’t use that one much) and I am pleased you are sorted this darn Mm keeps throwing unknown and unwanted infection at folk that have other things to be getting on with, those infections really should be having a word lol.

Stay well and yes everyday is that gift, we…[Read more]

Double post again

Hi all

Had my 2nd Velcade injection today and my Dex this morning, no bloods today but I got my bloods wrote down today so take a look and let me know what it means lol

20/01/14
HB 13.4
WBC 4.9
Plts 2.58
Neuts 2.58

27/01/14

Hb 12.5
WBC 4.2
Plts 237
Neuts 2.47

Now I ain’t sure if decimal point is in the correct place lol.

Tom onwards and upwards x

Hi Sarah

Yes you are my “posh” stalker lol. Ye I know I can do it it’s just giving me an iccle bit of a curve to be fair and we all need curves lol.

Love iccle ole me onwards and upwards xxx

Ps tell the Old Boy well done and no wrinkles or creases in the clothes lol xx

Hi Jo and welcome back to the forum, it’s still playing up with me at times not posting half postin and blooming double posting, hope your ok Jo and it’s not too cold for you

Love Tom onwards and upwards xxxx

Hi Judy
Welcome and sorry to hear about your pain with Velcade but am pleased they soon sorted you out. Where are you now in your treatment Judy ??.

Maureen just to let you know am still on the vodka and red wine lol.

Liz Elaine is doing great ta and ye she has hawk eyes ha ha, but am pleased about that as am sure I would miss something out he…[Read more]

Well double post and some missing

Hi Carol
Bragg away young lady that’s something that should be shouted from the rooftops and you have some spare I will need to do another harvest