tom replied to the topic Second SCT underway at last in the forum Treatment 12 years, 1 month ago
Hey Mari Dont stop Posting, this is where you can get help to Build your resolve up and get help/advice when you need it.
Stick with it you two it will be well worth it.
Love and Loads of hugs sent to you both, I know its still gonna be hard for a couple of months but we are here to help you both.
Lots of Love and Support from Iccle ole…[Read more]
tom replied to the topic Hair in the forum General 12 years, 1 month ago
Well Ladie's am pleased you are all sorted with your hair 😀 now take a look at my photo and let me know what help you can give to mine Ha ha.
Enjoy Today as the Sun Will be out 😎
Love Baldy Tom "Onwards and Upwards" xxx
tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 1 month ago
Hey Its Sat and I think the Ijection are starting??? Good Luck and Hope all goes well.
Thinking of you both
Love Tom "Onwards and Upwards" xxx
tom replied to the topic Never Give Up. in the forum General 12 years, 1 month ago
Hi Eve
Yes it is hard work with the grandkids as you know we have six yep six but when they have gone home Elaine and I can fall asleep on the sofa and or nip off to bed 😉 and catch up on the sleep.
Love tom "onwards and upwards" xxxx
tom replied to the topic Never Give Up. in the forum General 12 years, 1 month ago
Hi Eve and of Course Slim
Its not brave havin the Kids (we have one now) its good to see the Grandkids and they love granddad Pub Lol
Enjoy the oplace that your both in as it will get better (with a few hickups am afraid) but its great just got my tests comming up soon ? and am sure they will be spot on (unless this body is telling me…[Read more]
tom replied to the topic Stephen It was a real celebration in the forum End of Life and Grief 12 years, 1 month ago
Hi Gill
Well what a read and a well done you it sounds like it went well.
Your Post wasn't a waffle it was warm funny and it oozed the strenth that you have always had it made me smile it made me cry (yep Gill you made me cry)
I understand about being away for that "Regroup" and I hope it comes to you fast.
You have am sure heard all…[Read more]
tom replied to the topic Spoke too soon! in the forum Side-effects 12 years, 1 month ago
And a Good Morning to you also Pat 😀
Do you know thats the way I think of it when I was having treatment, treatment all finished now but I tell everyone that I have built a little shed on my left shoulder and shoved the pesky MM in that and shoved a lid on it 😀 and yes I talk to it:-S and yes I tap the top of the Lid :-/ but hey ho it…[Read more]
tom replied to the topic What to take in the forum General 12 years, 1 month ago
Hey Tina Good Luck with it all and if I remember well Nightie is faster for lifting than jim jams are for lowering and I prefer the fastest way (not that I wear Nightie's though)
As Eve says During SCT its a throw away Culture you need to have, dont bother with Posh (bless)
Love Tom "Onwards and Upwards " xxx
tom replied to the topic Never Give Up. in the forum General 12 years, 1 month ago
Hey you two
Aint you BOTH done well you and your team have and are working wonders 😎
Great Post for the Newbie's and those that are having a rough ride, now all can see it CAN and WILL be sorted just takes longer for some ?
Onwards and Upwards now you two Great Post
Love and Hugs from Us Lappin's in Scunny "Onwards and upwards"…
tom replied to the topic My dad… in the forum Treatment 12 years, 1 month ago
Hi Joanne
Sorry your Dad was poorly but am pleased he is getting better and in his own home (you cant beat it) its all about rest and recuperation now for you and your dad (yep I bet you forgot about your self??)
Hope Velcade is started soon, and please no need to apologize for not being on for some time as this site is for when you have…[Read more]
tom replied to the topic 3 month check up in the forum General 12 years, 1 month ago
Thats great news David and a well done to you and your team 😀
I hope after your X Ray you get the byeeeeeeeee. from them and go out and enjoy the three months respite.
Am sure am due this month some time?? but hey ho am sure My Doc will be smiling 😀
And Gill am sure you dont sweat am sure if anything you would perspire Lol.
Week…[Read more]
tom replied to the topic Just Diagnosed in the forum Newcomers 12 years, 1 month ago
Hi Mary and Charlie
Where do I get my positivity from?? well I get it from this forum yep this forum every one drops a bit of it when the post good news and I just go along and pick that little bit up and my Young Bride (Elaine) knits it all together for me and that way I have loads and if you look I have dropped a little bit for you all…[Read more]
tom replied to the topic Just Diagnosed in the forum Newcomers 12 years, 1 month ago
Hi Mary and Charlie
I am sorry to see you are both having a rough time, and I hope nay am sure they will soon have it all sorted, trouble with this darned MM not one treatment fits all, so once they find what Chrlie fits it will all fall into place.
Now as for the roof lark oh gi ower Charlie save your strenth and energy for fighting the MM…[Read more]
tom replied to the topic Transplant Date in the forum Treatment 12 years, 1 month ago
Hey Tina
Well Girl now is the time 😀 and am sure you will look great wig or no wig (I never used one lol)
Wishing you a fast and trouble free Transplant.
Dont forget Tina The mouth wash please use it every time you pass or go to the loo and even when you think you might want to go to the loo, the more often you use it it am sure the…[Read more]
tom replied to the topic Any advice would be appreciated!!!! in the forum Side-effects 12 years, 2 months ago
Hi Ann
Re swollen ankles yep I got those, numb toes well let me tell you I have in the past the most sensative toes ever, that bad i could not cut my onwn toe nails so my young bride used to cut them and had to sit on my legs so i didn't pull away Lol, but during CTD toes went numbe (still are) to me it feels like my socks have slipped down and…[Read more]
tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 2 months ago
Hey Vicki and Colin
Am sure you will find the resolve to get that Moral breakthrough we all need at the time of treatment Clin is going through, I found it and am sure Colin will, As for the head/chins up if thats a wee bit hard at this time I would go with a head down and a good "Shoulder Charge" it works just as good I aslo had to use that…[Read more]
tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 2 months ago
am on that same stage as you Ali letting the two of them knmow i also am thinking about them 🙂
Love that Onwards Man Lol xxxxx
tom replied to the topic Mother in Law starting Velcade today in the forum Treatment 12 years, 2 months ago
Hi Pia
And a warm welcome to the site, sorry to hear about your Mum am sorry I cant help with the treatment as all I have had was CTD then SCT.
Just wanted to wish your Mum well in her road to remission.
Love
Tom "Onwards and Upwards" xx
tom replied to the topic Exausted in the forum Treatment 12 years, 2 months ago
your more than Welcome its a hard time for anyone thats told they have MM and worst for those that are on the the sidelines watching Us MM'ers going through what needs to be done to get into Remission 😎 its a dooable but its uphill am afraid, but you now know where we all are 😎
Ask away and if you feel like a rant well tis is the place 8-)…[Read more]
tom replied to the topic Exausted in the forum Treatment 12 years, 2 months ago
Hi Nicola and Dad
I am fortunate enough to have No bone damage but I was having Zometa infusions every four weeks 😀
As for the exhaustion I suffer that and am not on treatment so I put it down to having MM and change my life style.
Give your Dad a big Hug from me and tell him to rest and not fight the tiredness sleap when his body tells…[Read more]