tom replied to the topic Someone to talk to in the forum Newcomers 12 years, 2 months ago
Hi Peter
I love your specialist (b)
Its great no have no bone damage when first told you have MM, I still have none but have the ache's and pain's but am told not mm related (just older age)
BUPA is good my young bride (Elaine) was in a private wing at our local hospital (Scunthorpe General) after an op due to no beds in rough end :-/…[Read more]
tom replied to the topic No really – this is good news in the forum Off topic 12 years, 2 months ago
Well Thats great News David and a well done to you (red wine works on all lol)
I bet you take those pills with a little smile knowing thats its on the outside (bad enough though) 35 doses of R/T is a lot (my young bride had 25) but it will be well worth it 😎
Having Prostrate problems has also checked your bones so you got a two for one…[Read more]
tom replied to the topic Not Myeloma then – AL Amyloidosis instead. in the forum Newcomers 12 years, 2 months ago
Good Evening Pat
And my vote is of course you can stay 😀 you opened the Group door you made yourself known an I for one Like that 😎 so pull up your comfy chair and let me and folk like me what "Just AL" is all about.
I wish you a trouble free journey with AL (note to self go check it out)
Tom "Onwards and Upwards" xx
tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 2 months ago
Hi Vicki and Colin
Am pleased for you both that it was An "OK" Day 😀 I bet you did have those extra Q's to throw at them and well done yopu for doing so 😎
Fingers and anything else that I can cross will be crossed.
Love
Tom "Onwards and Upwards" xx
tom replied to the topic Someone to talk to in the forum Newcomers 12 years, 2 months ago
Hi Peter
Yes 3l min of fluid i add vodka red and beer to mine and so far it aint done me too bad Lol.
I was told I had a bruised rib or a pulled muscle ? which turned out to be MM am pleased I asked for a 2nd Opinion and got that same day both Dr's said same and I said I didn't thin k I did so Xray/bloods and as they say the rest is…[Read more]
tom replied to the topic Hello again to all in the forum Treatment 12 years, 2 months ago
Hi Jacqui
Good Luck with the trial and I think same its a treatment that they aint sure about ?
Good Luck for your start on thursday.
Tom "Onwards and Upwards"
tom replied to the topic Employer support? in the forum General 12 years, 2 months ago
Hi Scott
I cant praise My Company hard or long enough, started my treatment in Feb 2009 (CTD leading up to SCT Dec 09) went on sick May 09 till May 2010 decided I wanted to go back to work (I work on a docks forklift tug driving ((hard graft)) and that) seen our MD and he said he found me (made a job for me??) and that was as a "Gateman" yep…[Read more]
tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 2 months ago
Hi Vicki and Colin
Well am sorry its a none starter again 🙁 I do feel for you both and wish I could get hold of some one and give them a good shake for them to get a move on.
I like you two have sat back and let it all take its course but it has worked for me so far BUT I would be up in arms if I was same as Colin camping out in the…[Read more]
tom replied to the topic Another joining the Stem Cell Transplant Brigade! in the forum Treatment 12 years, 2 months ago
Hi Lyn and Pete
Your More than welcome, but bare in mind its not a walk in the park but it is "Paine Free" cept having the GCSF Injections and the BMB and I put the rest down to "Just Stuff" its a doable and as I said I would go through it all again 😎
If you need any more info ask away I aint shy 😉
Love Tom "Onwards and Upwards"…
tom replied to the topic Not Looking Good in the forum End of Life and Grief 12 years, 2 months ago
Hey you two a good row is good it clears the air (think of thunderstorms, how good the air feels after one)
My Young Bride and I have struggled a fair few time of her trying to help me up of the floor many a time.
Good Luck with the Pain relieve hope that is soon sorted out.
Love to you Both
Tom xxxx
tom replied to the topic Another joining the Stem Cell Transplant Brigade! in the forum Treatment 12 years, 2 months ago
Hi Lyn and Pete
Trust me you two the light is at the end of the tunnel I had my SCT in December 09 not a good month even if i did miss Santa ha ha, but it was well worth it.:-D
Would I do it again No problems as it has made me fit (ish) and in remission and drug free in a couple of years still down the line 😎
Just take one day at a time…[Read more]
tom replied to the topic RE: Newcomer… in the forum Newcomers 12 years, 2 months ago
Hi Jennifer
Mine is just a welcome as I went straight into MM 🙁 dint have chance to smoulder (or I dont think i did)
Stay Strong and Good Luck on Alan's road to remission.
Love Tom "Onwards and Upwards" xx
tom replied to the topic Zometa – is this available on NHS in the forum Treatment 12 years, 2 months ago
Hi Gill
I had Zometa for two years after my SCT then it stopped so I think two years was/is the norm and I have never paid for any treatment even before it became free for cancer sufferers. My Dr had a Nurse fetch my stuff up to the clinic and if i needed any thing else my Nurse Heln woulg go and fetch it 🙂
Hope its soon resolved
Love…[Read more]
tom replied to the topic 12 months since my stem cell transplant in the forum General 12 years, 2 months ago
Gosh Wendy now where has that 12 month gone??
Happy Birthday Stem Cells, you have a great host so behave 😎 Long may it last Wendy.
Love and Hugs to you and those iccle stem's
Love Tom "Onwards and Upwards" xx
tom replied to the topic Paraprotein news in the forum General 12 years, 2 months ago
Hi Andy
You are getting their slowly am afraid but getting their non the less 😀
Keep them going the correct way and Trust me you wont need a brollies as I am told you dont get wet inside a Pub??? well I do but it is the inside 😀
Have a great Time and relax with a pint or two.
Tom "Onwards and Upwards" x
tom replied to the topic Good News in the forum General 12 years, 2 months ago
Hi Eve
Well am pleased you will be in contact so you can sort me out if I get Nawtry Lol.
You two have a great time and I promise I will behave (fingers crosssed he he)
Catcha Lata
Iccle ole me xxxx
tom replied to the topic A BIG Hello in the forum Newcomers 12 years, 2 months ago
Hi Amanda and Bob
Welcome, I hope you get out of this site what I have over the years 😎
Let us know where Bob is being treated as am sure we will have some in here that are have been treated their and can give you more advice.
Ask away and hope your road through the MM is a smoth one.
Tom "Onwards and Upwards" xx
tom replied to the topic second Sct – funding in the forum Treatment 12 years, 3 months ago
Hi Mari and Steve
Well done on the collection 😀 but its a shame to hear that to help stay alive after the first fight you then have to fight for money? gosh I wish I could Spit on here Yes Spit as thats what I want to do, the money we throw across throw across the world for half of that money to end up in corrupt hands? oh Rant over :'-(…[Read more]
tom replied to the topic Not Looking Good in the forum End of Life and Grief 12 years, 3 months ago
Dear Gill and Stephen
Well you Know I am truly sorry it has come to this stage, and as sure as eggs are eggs My young bride (Elaine) and I will have to go through this 🙁 I just hope as and when it comes we both can face it with the strenth and dignity that you and Stephen have and are facing Head on.
I admire Stephen for his decision and…[Read more]
tom replied to the topic And the GOOD news is in the forum Off topic 12 years, 3 months ago
Your More than welcome David but I think I must be the rough cut one he he.
Good Luck with the scan and the heavy drinking sesh and am sure I have seen many a over 65's drinking and dancing way past when the young uns have gone to bed 😎
Stay Well and Vasbyte 😎
Tom "Onwards and Upwards"