tom replied to the topic Colin the sequel SCT in the forum Treatment 12 years, 3 months ago
Hi Vicki and Colin
Its a shame you have no news on the funding but having a date for the 20th is good then you can ask why?
I was treatment free for about 3 months prior to my transplant starting, and yes i was worried that having No treatment was bad for me but am pleased all went as they told me 🙂 (am just a doubting Thomas 😉 )…[Read more]
tom replied to the topic Revlimid in the forum Treatment 12 years, 3 months ago
Hi Pennie and Andy
Well done on the "Win" and getting the AA am sure you would prefer it wasn't needed but am pleased you have it.
He he and am sure you will be better if Andy took dex in the morning 😀
Have a great week end (my young bride and i are babysitting on sat cant wait)
Love Tom "Onwards and Upwards" xxxx
tom replied to the topic Someone to talk to in the forum Newcomers 12 years, 3 months ago
Hi Kerrie
Welcome am sory to hear your Mum has got MM and had a bad time with CTD I was on that in 2009 it was a struggle to be honest I did 5 sessions that put me into remissin then Stemm Transplant also in 2009 doing good now 😀 I wish your Mum well with the the new treatment but that also might make Mum ill and weary am afraid.
hugs to…[Read more]
tom replied to the topic Good luck Tom! in the forum Off topic 12 years, 3 months ago
Hi Folks
Well all went well, I got through to the 2 nd Audition and that was done the same day(yesterday) now I have to wait and see if the 2 nd one went as well and more importanly better than the others that have and are due to go. Am Going to see if I can add a couple of photo's from the week end.
We had to pay our own hotel and stuff Helen…[Read more]
tom replied to the topic Kappa Light Chains on the Up in the forum General 12 years, 3 months ago
Great news all round me thinks, And Happy Birthday Stems you have a great host so look after her xxx
tom replied to the topic Has any one been on EPO in the forum Treatment 12 years, 3 months ago
Aww bless Jo I hope it works and with not too many side effects 🙂
Love iccle ole me xxx;-)
tom replied to the topic My Mums SCT in the forum Treatment 12 years, 3 months ago
Thats great news Alison, give her plenty of Hugs from us all as we know what your Mum has and is going through, but honest it is well worth it Alison.
Is you Mum still taking the anti sickness pills? I was taking them for a few months after My SCT it was worth it.
Love and Loads of Hugs to you all
Tom "Onwards and Upwards" xxxx
tom replied to the topic Couldn't bear to share this until now! in the forum End of Life and Grief 12 years, 3 months ago
Dear Lynne
Am sure John was laid back and am sure all of us with the MM are grumps at times of stress so your John wasn't on his own.
And Lynne Dai's posts always gets to my tear ducks dont ask me why they just do.
Stay strong Lynne and always remember the good times as am sure their were plenty.
Love and Hugs
Tom xxx
tom replied to the topic mgus check up in the forum Newcomers 12 years, 3 months ago
Hi Sue am pleased your check was OK 😀 you cant beat that fealing long may it last.
Love Tom "Onwards and upwards" xx
tom replied to the topic Right thing?? in the forum Side-effects 12 years, 3 months ago
Same as My sheat Jean time is important I think and jope the Dex is soon sorted 😎
Love Tom "Onwards and Upwards" xxxx
tom replied to the topic Good luck Tom! in the forum Off topic 12 years, 3 months ago
Jean I think am getting too x-cited am not sure if I can sleep tonight, so thoght i would have a vodka tonight. cant wait to tell you how why or what and as for the "Have to kill you" think it will have to be have to tickle you" Lol.
Love Tom mxxx
tom replied to the topic Withdrawal? in the forum Side-effects 12 years, 3 months ago
Hi Tina
Well that surly isnt your bestest moan?? and as for the weakness I went on sick after my second round of CTD and stayed of for a year I still dont feel a 100 % but am happy with that do as much as you can and rest your body has been poisoned with the drugs, still do as your body tells you and rest when needed but we do need exercice to…[Read more]
tom replied to the topic My Mums SCT in the forum Treatment 12 years, 3 months ago
Hi Ali
Am sure your Mum loved that sneaked in Hug 😉
😀 Your Mum is realy doing great 😀 I bet your fealing better after the chat with the Nurse, those devils do make us poorly but they sure know how to make us better and be "Onwards and Upwards"
Another sneaky Hug for your Mum
Love
Tom "Onwards and Upwards" xxx
tom replied to the topic MM and Travelling in the forum General 12 years, 3 months ago
Hi Elfriede
A warm welcome to you.
I have been on a plane many times since my SCT and would do again yes my body is weaker and I get tired but hey I was put on this Land to party and Holiday (work is a bit of a bore)
I say if your fit and the Dr says its fine get yourself off and Enjoy it 😎
Tom "Onwards and Upwards" x
tom replied to the topic Good luck Tom! in the forum Off topic 12 years, 3 months ago
Hi Folks Thanks for that I cant wait (spose am gonna av to though 😛 )
Jo you know how to make a man Blush I can tell you he he
Etta its getting control of my nerves for the camera tomorrow 😉
Eliz Elaine and I are going to newcastle to have fun and it just happens I will have an audition for Deal or No Deal 😛 and whilst I am doing that…[Read more]
tom replied to the topic Good luck Tom! in the forum Off topic 12 years, 3 months ago
Hi Michele
Am sure we could fill the room from MMUK he he xx
tom replied to the topic Right thing?? in the forum Side-effects 12 years, 3 months ago
Hi Jean and Frank
Well I have done well I found my spread sheet when i was having my CTD and it has times I should take the tabs on a day as follows :::::
1) Granisetron, 1tab at 8 am and one tab at 8pm every 7 days
2) Cyclophhosphamide, 10 tabs at 8am every 7 days
3) Dexamethasone, 10 tabs at 8am and 10 tabs at 11 am dyas 1to 4 and…[Read more]
tom replied to the topic Right thing?? in the forum Side-effects 12 years, 3 months ago
Hi Jean and Frank
Cant answer the Q you asked but Frank just might be like me and Loves to sing when first awake He he.
Love one singing "Onwards and Upwards" xx
tom replied to the topic Good luck Tom! in the forum Off topic 12 years, 3 months ago
Well Thanks jean
I have to admite i have two character refrences that to be honest nearly made me weep I did not know who it was He he.
Not be long Hope I get on and spread the word about Myeloma 😀 "Big Telly"
Love
Tom "Onwards and Upwards" xxxx
tom replied to the topic My Lovely Mum, Some positive News in the forum General 12 years, 3 months ago
Hi Rachael
Nor I know about PP thingie's av said if my man is happy am happy 😎 and it has worked for me Lol.
Dont know if you use Face Book but a fair few on here use it http://www.myeloma.org.uk/patient-services/discussion-board/general/facebook/ my pickie has changed but am sure you will spot the fat (ish) face lol
Love
Tom…[Read more]