tom replied to the topic Start stem cell in the forum Treatment 12 years, 4 months ago
Hi Etta
Just a thought ? I had my SCT in December 2009 and I was told not to fly for at least 6 months?? so the first holiday abroad my Stem Cells had was end of July.
I know a lot of Consultants and Hospitals differ in treatment and care but just thought I would let you know?, dont know when others have been told when to or when not to…[Read more]
tom replied to the topic radio therapy in the forum Treatment 12 years, 4 months ago
Hi Ian
As I said on Face Book My Friend it will be the only Tan you will get this year in the UK.
Hope all goes well with it My Young Bride (Elaine had 25 sessions of RT in 2009 and Elaine got a bit of a Tan 😉
Good Luck with your Velcade am pleased it worked last and am sure it will work this time again.
Tom "Onwards and Upwards"…
tom replied to the topic Revlimid in the forum Treatment 12 years, 4 months ago
Hi Pennie and Andy
Well 12 years is good am expecting to beat that with my first SCT that I had in 2009 😀
After what you both have been through am sure you will cope pretty good to be fair.
Good Luck to getting Andy back into remission
Love Tom "Onwards and Upwards" xxxx
tom replied to the topic Proper fed up… in the forum Side-effects 12 years, 4 months ago
Hi Dai
Well you sure are fighting this bugger the hard way.
I do hope you soon get the drugs well into your system and they stop beggaring you about.
I think you are correct doing your tem more than the once before going in as am sure it will change through out the day.
Hope the temp is still col and you keep fit My Friend
Tom…[Read more]
tom replied to the topic Start stem cell in the forum Treatment 12 years, 4 months ago
Hi Mari
Yes just the three hours (or was it 5 hours ?? al aks elaine lol) on the bed and got enough (nearly for two) but the beggers put them into three bags instead of two so I was given the lot and i think that why I have done so well I had more than most of cells shoved back in that the fight was easier for me?? 😎
And Honest I have…[Read more]
tom replied to the topic Start stem cell in the forum Treatment 12 years, 4 months ago
And a Good Afternoon Etta
Well done you girl its good to rest.
Just remind me Etta when is your transplant due for??
Love
Tom "Onwards and Upwards" xxx
tom replied to the topic How long before I start to feel 'normal' in the forum Side-effects 12 years, 4 months ago
Hi Tina
Well how long is a piece of string?
1) the weakness well am sure that never leaves you fully :-S or that just might be iccle ole me ??
2) Bloating? mine soon went down (cept me belly lol) when I came off the Dex 😀
3) indigestion and 'burps'? well my young bride will tell you that I have burped and trumped all the way through…[Read more]
tom replied to the topic My Dad-cycle 2 in the forum General 12 years, 4 months ago
Hi Jen#
great news on your Pa 😎 and am sure pa will have a lot of the fatigue over the time and to be fair it aint left me for long before its back and tells me to slow down :-S
Hope your Two Boys are soon better also
Love
Tomm "Onwards and Upwards" xxx
tom replied to the topic Start stem cell in the forum Treatment 12 years, 4 months ago
A Warm Welcome Home Etta, and a well done n ow for the SCT 😎
Love
Tom "Onwards and Upwards" xxx
tom replied to the topic Update on kev's treatment in the forum Treatment 12 years, 4 months ago
Hi Liz, well am pleased I make you all smile 😀 and after hearing Kev's reply to you am sure he is like me anyways "anything for a quiet life" Lol
And Andy and all you other MM'ers am sure you dont want to follow my advice?? as you will all need a new Liver? what with all my drinking "Beer,vodka and not forgetiing my Red Wine"8-) but hey ho I…[Read more]
tom replied to the topic Start stem cell in the forum Treatment 12 years, 4 months ago
Good afternoon Etta
And how did we do today 😀 Hope you got enough for two (not that you will need two 😎 )
Get them all in freezer in small bags.
Love and Hugs
Tom "Onwards and Upwards" xxx
tom replied to the topic Proper fed up… in the forum Side-effects 12 years, 4 months ago
Hey Keith
I am on nothing,zilch at the moment but I tell you M8 I have been that fatigued (my word for fatigue 😉 ) i find it hard work to walk the bloomin Yorkie Lol, but most days I am spot on 😀 , energy levels have dropped a fair bit since getting MM I need more sleep than I did before? I ache more I??? hang on that could just be my…[Read more]
tom replied to the topic Update on kev's treatment in the forum Treatment 12 years, 4 months ago
Hi Liz and Kev
Great to see the lights are getting dimmer 😀 and to be honest its the chest that has been my downfall since I started my treatment (and I stopped smoking?)
Note to Kev, "You and I know that our young Ladie's know us better than we know ourself, so I suggest you follow my lead:::and do as you are told I do lol" keep up the…[Read more]
tom replied to the topic Start stem cell in the forum Treatment 12 years, 4 months ago
Aww Etta you tight devil not even parting with your stem cells, go on girl let them have them I promise they will give them back to you soon 😀
I had a Femoral Line done for my bits (in the groin) and am sure thats the best thing to do as it seems to me to get less infections or problems.
Etta did you have a Nurse with you all the time you…[Read more]
tom replied to the topic Proper fed up… in the forum Side-effects 12 years, 4 months ago
Hi Dai
Well what a game and a half you are having 🙁 but am pleased you are getting the treatment you should be having.
I know that Anti Biotics shouldn't be given out willy nilly but us MM'ers need them to be given at first click of an infection.
I also home you are "Tickety-Boo " by Wednesday and for longer.
Keep well My…[Read more]
tom replied to the topic Good News X Two in the forum General 12 years, 4 months ago
Thank You Teresa yep that girl did well 😀 and the four month stint is great especially when he said I know it a long time but you know where we are if you need us 😀
And our Grandkids are getting us fit Lol
Love
Tom and Elaine "Onwards and Upwards" xxx
tom replied to the topic Start stem cell in the forum Treatment 12 years, 4 months ago
Hi Etta
Hope they got enough in one sitting 😎 I hate seconds Lol xxx
tom replied to the topic British 10K run for myeloma in the forum General 12 years, 4 months ago
Now thats the way to run it 🙂 xxx
tom replied to the topic Post SCT Sickness in the forum Side-effects 12 years, 4 months ago
Hi Gary
Am pleased your sister got through the SCT pretty well 😀 but am sorry to hear she is still being sick.
I also was same and to be honest was strill taking anti sickness pills for month months after my SCT, my consultant was also saying its a long time for you still to be wanting them :-/ but hey she gave me them and I took them…[Read more]
tom replied to the topic Start stem cell in the forum Treatment 12 years, 4 months ago
Hi Etta
Not a problem.
When I had my harvest it took 3 hours on the machine, all pain free am pleased to tell you 😀 and collected enough in one session 😎 so didn't have to go back.
Good Luck with yours
Love
Tom "Onwards and Upwards" xxx