tom replied to the topic Newly diagnosed Monday at only 39. in the forum Newcomers 12 years, 6 months ago
Hi Antoinette
Hey am Sorry you are teary 🙁 go my way girl (it works for me) cry in shower you dont notice so much and more important I felt that if I have this MM it wont take me so I told my Consultant I dont want to wait (he did say we could pospone treatment) and i want to throw whatever he could while I was still young and fit (ish lol)…[Read more]
tom replied to the topic Newly diagnosed Monday at only 39. in the forum Newcomers 12 years, 6 months ago
Hi Antoinette
A Warm welcome to your site :-D.
Sorry you have got MM I was told in 2009 had 5 courses of CTD then stem cell transplant December 2009 am now in remission and doing well, am a iccle bit older than you am 56 soon to be 57 😎
The Harvest and return of my Stem cells was all done through my Femoral line, and to be honest all…[Read more]
tom replied to the topic starting treatment in the forum Treatment 12 years, 6 months ago
Hi Jean and Frank
I can Copy what Deb's has said its the start to remission, and with that I wish you Luck it will happen but along they way you will feel a bit? rough, fingers crossed that you go through it as well as I did 😀 uphill but with a smile 🙂
Love and Hugs
Tom "Onwards and Upwards" xx
tom replied to the topic VELCADE SIDE EFFECTS in the forum Side-effects 12 years, 6 months ago
Hi Eve and slim
Well I for one (as a mere male) feels real sorry for Slim and his cough cough problem.
Onwards and upwards Tom xxx see the thought of it made me writ the end back to front lol xxxx
tom replied to the topic Revlimid Failed in the forum Treatment 12 years, 6 months ago
Hi Gill
Trust me girl we wait for no apologies from you 😎 and am sure our moderators understand the words sometimes need to be said to vent our frustation I for one aint got a problem with it 🙂
Love and (((HUGS))
Tom xxxx
tom replied to the topic Another relapse? hope not! in the forum General 12 years, 6 months ago
Hi Keith
Well I have my fingers crossed for you also and lets hope its just a blip M8
Tom "Onwards and Upwards"
tom replied to the topic starting treatment in the forum Treatment 12 years, 6 months ago
Hi Jean and Frank
Well its here now and am sure you will get through it.
Advice? ? well take it one day at a time and rst when The body tells you yes Jean you because as the "Watcher" its hard too so both of you take it easy no rush for anything and it will all fall into place 🙂
Good Luck in the road to Remission.
Love
Tom "Onwards…[Read more]
tom replied to the topic Blood tests in the forum Treatment 12 years, 6 months ago
Hi Andy
Do you know am sure I replied to this once??? hell I bet its gone on another post Lol
So Again am pleased your test were goodand if you need to take Banana's and a few pills that aint too bad is it (love banana's I do)
Good Luck with your BMB and Zometa I have just finished my Zometa treatment.
I am with you Andy to beat that…[Read more]
tom replied to the topic Hello to All in the forum Newcomers 12 years, 6 months ago
Hi Jacqui
I hope your still doing good, and trust me the crying is good for you it has been for me over the years (best in shower for the crying) but to be fair I think am all cried out 😐 am now the "Onwards and Upwards"
Love and Hugs
Tom "Onwards and Upwards" xxxx
tom replied to the topic 18months later in the forum End of Life and Grief 12 years, 6 months ago
Hi Roz
I am pleased you are doing good and yes i bet its hard work to be on your own 24/7 but i think it was Min who said open up your life make your life larger/bigger and your loss will seem smaller although your loss is still the same it feels smaller as your world gets larger. (well i think that how it went?)
Say Hi and Thank your two…[Read more]
tom replied to the topic Rev Failure Mk II? in the forum Treatment 12 years, 6 months ago
Dai you my friend are one that I know will crack it you are the one that will push your dr and consultants into your way of thinking unless they prove to you that what they want for you is better for you, you are no one's fool we can all see that, so good luck with it all.
And Mari I found this on You Tube…[Read more]
tom replied to the topic I love My Mum gone but never forgotten x in the forum General 12 years, 6 months ago
Hi Michelle
I hope all goes well on thursday, our thoughts and love are with you and your Family.
Love and Hugs
Tom and Elaine xxxx
tom replied to the topic A Step in the right direction in the forum Treatment 12 years, 6 months ago
Way To Go That Tina, well done girl now you keep it up the fight i mean and your pp down 😎
And Gill you my girl can moan all you want cos thats whayt we are here for 🙂
Love and Hugs to you all
Tom "Onwards and Upwards" xxx
tom replied to the topic Two years tomorrow….. in the forum General 12 years, 6 months ago
Hi Nicki
Its not a problem but you know we are here for (and I hope you dont need it)you both when you feel you need it.
Tell Sam not to worry too much about the tests as I am three years and four months or their abouts 🙂 and am still going strong 🙂
The green tea I did not read about that but googled it today and am going to get some…[Read more]
tom replied to the topic SCT Underway in the forum Treatment 12 years, 6 months ago
Hi Eve and Slim
Yep the smell is different am pleased Slim is doing good, I was given Anti Sickness pills when i had my transplant and was on them for about two months after.
I hope you get to Matty's Memorial Service and as for the wicked sense of humour I know where that comes from 😀
And Eve dont talk about the "Runs" just yet I…[Read more]
tom replied to the topic 18months later in the forum End of Life and Grief 12 years, 6 months ago
Hi Roz
Well we have moved on aint we girl 🙂 and thats Good to read 😀 reading about your help do you now have some one working 16 hours and another working 24 ? well done you if you need it and its working keep on with it 🙂
And you are doing wonders 😀 but am sad you thought about suicide 🙁 am sure you are stronger than that and…[Read more]
tom replied to the topic Revlimid Failed in the forum Treatment 12 years, 6 months ago
Hi Gill and Stephen
There should be a few swear words in here but i will refrain from them (I hope)
I am sorry to read about it failing its a bloomin nightmare all this MM.
I do hope something can be done to throw the blooming MM into remission or slows it down a bit till something has been brought to the forefront.
Stay Strong and…[Read more]
tom replied to the topic Just back from Skiathos in the forum General 12 years, 6 months ago
Hi Jo
And a warm welcome home (but the weather is not as hot as Skiathos though)
And you are one "Onwards and Upwards" young Lady having good reading's 😎
Enjoy the two months of no hospital its great when you are going longer with no Hospital visit's 😎 but am not sure about giving myself injection's?? but hey ho if I had to am sure i…[Read more]
tom replied to the topic Latest blood test in the forum Treatment 12 years, 6 months ago
Hi Andy
Well only posted once so far Lol.
Great news on your Bloods and if it means you eat more banana well thats great.
Good Luck on your BMB am sure it will be Spot on, and am up for throwing this MM into submission 😎
Keep strong and fit
Tom "Onwards and Upwards" x
tom replied to the topic 10 week check up since STC in the forum General 12 years, 6 months ago
Hi Carol
Yep Gremlins me thinks :-0 Plzd you feel better today and I hope the Nebz sorts you out better? saying that I have had a cough for years?? its the only way the young Bride can find me in a shop with the Cough Cough every now and then Lol.
Tina I think all of us that have had the "Dex" :-0 there av wrote it Dex feel the same but it…[Read more]