tom replied to the topic Dad diagnosed with Myeloma last week – Starting chemo this week in the forum Newcomers 14 years, 4 months ago
Hi Vicki
Yes it made me weary and yes strugled to sleep at the same time (strange that Dex) but I got sleeping tablets and took them sparingly as i dint want to get hooked on them 😀
Am not sure if the Spondylitis ur Dad has is connected to the MM but am sure someone will pop on and advise 😎
I am just having four weekly Zometa…[Read more]
tom replied to the topic dad just diagnosed at 48 in the forum Newcomers 14 years, 4 months ago
Hi Yamyam
Sorry to see you had to join but you have come to the correct place, and sorry to read you felt let down by the NHS 🙁 but now they have your Dad on the radar all should flow nice,as for me and only me I would go for anything to help put this dreaded MM on the sidelines until a cure comes along so for me I would do it.
Good Luck…[Read more]
tom replied to the topic Revlamid in the forum Treatment 14 years, 4 months ago
Hi Colpot
Am sure your story will give us al hope that the light is at the back of the tunnel, well done and good luck
Tom "Onwards and UpwardsW
tom replied to the topic can u spell? in the forum Off topic 14 years, 4 months ago
Lol its a good un Gill, nor can I cee whi they av bloked it ether ha ha.
Tom xx
tom replied to the topic Newcomer in the forum Newcomers 14 years, 4 months ago
Hi Carol
Well a well done you for getting more back that you felt you had lost 😀 its something that would have come natuarly to kick downon the horse to let it kknow who is the boss, well done you.
Good to hear you are back into taking not just your own but Hubbie's horse out, its anothe step forward:-) to as normal as we get with MM :-S…[Read more]
tom replied to the topic Dad diagnosed with Myeloma last week – Starting chemo this week in the forum Newcomers 14 years, 4 months ago
Hi Vicky
Well as for the CDT I was on that and got weaker and weaker as the cycles moved on so much so I had to pack in work:-( but hey its not all bad newa a year later after a succesfull Stem Cell Transplant I am back at work (still on light dutie.s) but hey its work and Money 😀
I got better with the CDT as my cycles went along and was…[Read more]
tom replied to the topic Newcomer in the forum Newcomers 14 years, 4 months ago
Hi Carol
Great to read about your remission:-D I have ben in remission for some time now, but it never made me want to get on a horse? yep am over 5'10 and the scare me to death ha ha, gosh they are so big and scary.
Am also with you Carol if you love it this MM cant stop you doing it and as you say its just at a differant pace :-D…[Read more]
tom replied to the topic Syngeneic SCT in the forum Newcomers 14 years, 4 months ago
Hi claire
Sorry I cant add to your post cept to say
Good Luck to your Mum in her treatment regime, and am sure some one will know a bit mmore about it.
Godd Luck
Tom "Onwards and Upwards" xx
tom replied to the topic dad just diagnosed at 48 in the forum Newcomers 14 years, 4 months ago
Hi Meika,Christin and of course David
Like all the others above I also welcome you to this wonderful site.
You all have had some great advice fromthe others that at the moment all I can add is:::; take it one step at a time, and when David want to rest let him and not forgeting you two Mum and daughter you both also need to look after…[Read more]
tom replied to the topic Pain Relief Changeover in the forum Treatment 14 years, 4 months ago
Hi Bridget
Sorry to hear bout your pain:-( bit of a Begger this MM, hope you get sorted out 😀 and the pain is reduced.
Love and Hugs
Tom xxxx
tom replied to the topic 3rd Relapse? in the forum General 14 years, 4 months ago
Hi Michelle
Sorry to hear about your Mum and the setback she is having.
I also am chuffed the Dr is on the ball and sorting your Mum out 😀
Catcha Lata
Love and Hugs sent to your Mum (oh and one for you Michelle 😀 )
Tom "Onwards and Upwards" xxxx
tom replied to the topic Renal failure in the forum General 14 years, 4 months ago
Hi Jess
And sorry I cant help on this one? just wanted to wish you well, and add you could poss phone the Nurse and ask them am sure they could help on this one.
Hugs
Tom xx
tom replied to the topic Diarrhea in the forum Side-effects 14 years, 4 months ago
Hi Wendy
Welcome Home (as they say) am pleased it was only a holls bug 😀 (am sure i said that Ok:-/ )
Good Luck
Tom "Onwards and Upwards" xx
tom replied to the topic V3/1 Bad news… Excellent news… in the forum Treatment 14 years, 5 months ago
Well Done that Dai and Janet "the gun jumper" as for playing the guitar later trust me Dai I aint got PN and I still cant play a note he he.
Keep it up and Good Luck and well done to you all
Tom
tom replied to the topic Revlamid in the forum Treatment 14 years, 5 months ago
Hi Colpot
Thats good news 😀 and am sure you are very happy with the reduction.
Its great when it all falls into place 🙂
Tom "Onwards and Upwards"
tom replied to the topic Diarrhea in the forum Side-effects 14 years, 5 months ago
Hi Wendy
Hope you are getting better as a few days have passed, and find out its just a holiday bug 🙂
Tom xx
tom replied to the topic Only me Mum has finished CTD finished now Velcade!!! in the forum General 14 years, 5 months ago
Hi Onlyme
Good Luck to your Mum on the next course, I cant add anything to this one so far as i had SCT after CTD
Good Luck
Tom "Onwards and Upwards" xx
tom replied to the topic Memory Book – right or wrong? in the forum General 14 years, 5 months ago
Aww Angelina
Lol no need to say sorry bout the name change he he (it cost more by deed ha ha)
Hope (scroll up and check?) John is doing Ok 🙂 and you should look at John and see if he looks like a "Steve" he he.
Dont you worry about having a Laugh at My and "Steves" expence thats what we are here for Ha ha.
Hope you soon start the…[Read more]
tom replied to the topic A Quick hello in the forum General 14 years, 5 months ago
Hey Roz
You know thats not a problem, and if my big stupid grin makes you grin back then its worked 😀
Hope the 2nd lot get your garden up and running soon, and am sure you know me I am "fighting the good fight" and a iccle bit of the bad ones 🙂 but hey ho who said it was easy?:-S
Shirl that puppy will do you all the world of good:-D…[Read more]
tom replied to the topic Carer's Watch in the forum General 14 years, 5 months ago
Thats the spirit Eve
Choose your Battles and save your energy 🙂
as for your post t[can I have a moan] well dont we all want/need one 😎
think we all need to add telling our G.P's about MM mine aint a clue about it:-S as for the ward that Slim was in you go for it Girl am wi you 😎
Love and Hugs
Tom xx