TomLappin

  • Hi Stuart.

    Thats done the trick. I’ve now got the tool bar as per your image.

    Andy

  • Hi Stuart.
    Tried it came back and it’s the same. Though strangely I didn’t have to sign in again.
    Tried my wife’s full size iPad Air and that’s the same as this one.

    Andy

  • Hi Stuart.
    This is my page.

  • Hi Stuart.
    I’m using an iPad mini version one with operating system IOS 7.1.2
    Hope this helps
    Andy

  • andyg replied to the topic And cycle 8 begins in the forum Treatment 10 years, 2 months ago

    Hi Stuart
    I don’t seem to have that option. Unless I’m missing something.
    Any help would be appreciated.

    Andy

  • andyg replied to the topic And cycle 8 begins in the forum Treatment 10 years, 2 months ago

    I use predictive all the time Richard the only time I have any problems is on here. Changing and to bad! Why? Sometimes changing two word at the same time. Maybe it’s just me or the Dex effect lol.

  • andyg replied to the topic And cycle 8 begins in the forum Treatment 10 years, 2 months ago

    Just had to edit a lot of that last post! Bloody predictive text on here hasn’t improved any. It does make posting a pain sometimes.
    Lizzie just checked with the wife and she says the telephone number is on the website.

    Every day is a gift

    Andy xx

    Ps Lizzie phone number is 0845 2 307 155

  • andyg replied to the topic And cycle 8 begins in the forum Treatment 10 years, 2 months ago

    Hi Lizzie.
    I think I read somewhere that even “healthy” people can have a trace of paraproteins in their blood. So your doing great. Your in remission when your stable and your PPs are very low or not present. So I’d say a couple more blood tests with the same results and you’ll be classed as being in remission. Consultants do seem to be a bit…[Read more]

  • andyg replied to the topic And cycle 8 begins in the forum Treatment 10 years, 2 months ago

    Hi Babs.
    I’m half way through my 9th cycle now. My PPs are stable for the moment.
    It’s my steroid night but I will try and keep this post short and to the point and not ramble on to much! Oops there I go.
    The steroids are the main down side of my Pom/Dex. I feel the best since I was diagnosed I’m eating and drinking well. I can actually taste…[Read more]

  • Hi Nick.
    Sorry that your mums joined the Myeloma crew.
    Quality of life is the big factor in the treatment or no treatment debate.
    Your mums age will mean if the docs do treat her they won’t give her the “full” treatment however the side effects are still quite severe. Steroids are no walk in the park they lift you up and then you crash. Though I…[Read more]

  • Hi Susie.
    I was on RCD for 22 cycles and the main problems I had were being neutropenic most of the time ie neutrophils below 1.0 my other bloods weren’t too good either and nausea for a couple of days after taking the cyclophosphamide. Aciclovir, which I also took and still do is an anti viral and allopurinol which I didn’t take is for prevention…[Read more]

  • Kazzam2 replied to the topic SLIM in the forum End of Life and Grief 10 years, 3 months ago

    Dear Eve,
    So sorry to hear that Slim has passed away.
    Thoughts are with you at this very sad time.
    Karen x

  • Hi all land thanks for best wishes, and thanks too Peter for chin up 😉

    I have still not had my protien results, I have had my copy off the doctors letter from the consultant, has my blood results, but says progressing paraproteins (sorry if spelling wrong), I am sure they would contact me if a problem.

    Update on sore on my back, I seen a…[Read more]

  • Thanks Helen. It’s been a sad time.
    No news is good news I think! My PPs have remained the same. Hopefully I’ll get a period of stability.
    Just got our insurance for our trip to Kefalonia £67 for cover for the both of us! Must be the cheapest yet. Though the phone call was quite long and probably costly.
    I got insurance when I was on Revilimid…[Read more]

  • Hi TontF, I have just seen Dr Barton ( for the first time), I said hello from you, she said hello back to you! 🙂 She mentioned there may be a myeloma group starting back up.
    My blood count is all within range, kidney function okay, calcium back up( it was borderline), just waiting for my paraprotien. I am in day ward waiting for zometta (45…[Read more]

  • Hi David.
    I’m just about to try and get some sleep before I start to read lol.
    I hope everything goes well with the operation and you can cross it off your list.
    I would like to be loose now and again lol I’m mainly tight 🙁
    How did the skin biopsy go?

    Every day is a gift

    Andy

  • Hi DavidH
    As DavidM indicates constipation is a seldom talked about but constant bed fellow with myeloma treatments. I find Dex bungs me up good style. And being on Dex once a week every week takes it’s toll. As DavidM says note down when it happens and you will see a pattern and hopefully you’ll be prepared and able to take some preemptive action…[Read more]

  • andyg replied to the topic And cycle 8 begins in the forum Treatment 10 years, 3 months ago

    Hi Scott
    Sorry for the delay in replying.
    Just finished my cycle 8 and I’m on Pomalidomide and Dex. So that’s 8 28day months. I’ve not had any nasty side effects to report. Just the usual Dex highs and lows. I take 40mg of Dex once a week every week.
    My consultant tells me she has things to try after Pomalidomide stops working though I’m a bit…[Read more]

  • Hi
    I’ll throw my Dex induced bit of information in the ring. From what I’ve read I don’t think it’s so much cost based not having a 3rd SCT I think it’s statistics based. I could be wrong here but I have read or been told that the remission gained on a second SCT is “usually” around half the first. So I presume a third is shorter still. The…[Read more]

  • Hi Helen

    Good the hear from you again 😉 my last PPs were 8.4! Unknown territory for me.
    I know what you mean about ” another avenue closed” I got the same result from my brother and sister and I’m on Pomalidomide now cycle 8, I think, with not much to follow when it starts to fail. But hey ho that’s a worry for the future. At the moment I’m ok…[Read more]

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