Hiya David.
I hope your doing well with your treatments. I’m trying to catch up on everyone because it’s been difficult to get onto the forums lately.
The regime I’m on now is Pomalidomide for 21 days then 7 days off. With Dex taken on days 1,8,15&22. I have to go in for blood tests every week for 8 weeks to make sure I’m coping with the Pom and…[Read more]

Hi All.
Thanks for all your good wishes.
I’ve finished my first week of Pomalidomide and yet have no complaints – well except for the usual Dex effect! My bloods were ok Friday but it’s too early to start counting my chickens yet.
It’s strange even though Revlimid had run it’s course I have been feeling the best I have these past 8 months since…[Read more]

Hi Tina
Sorry read you were unwell over the holiday period. Good to know it was only a short stay in hospital.
I hope you have a good 2014

Every day is a gift
Live it to the full

Andy xx

Hi Harmony
First off you could smoulder for years yet so try not and jump the gun. It’s easy to say but hard to do but you’ve got to live in the present not the future. As Eve says worrying about tomorrow spoils today.
I have no experience of counselling though my wife went and found it very helpful.
I was diagnosed in oct 2011 told MM was very…[Read more]

Hi Sarah
I was told to avoid certain foods too. I even think there’s a list on the MyelomaUK site of foods to avoid. As you say it’s pretty much the same advice given to pregnant women. Ie no live foods no unwashed or unpeeled fruit and veg and sea food is best avoided. The advice is given because we MMers have low immunities and a stomach bug is…[Read more]

Hi Stuart.
Mine is the same operating system as Liz’s.

Andy.

Hi Jean
The edit button is to the left of the reply button – oh it’s not there now!
Hmmm maybe you only have a limited time to edit posts on a iPad.
Time to dust down the laptop again?

Andy x

Hi Stuart.
Me again 😉
I’ve just done a post posted it and when I reread it I spotted a mistake and when I tried to edit it I found the whole post disappeared in the edit box when I tried to edit it!

Andy

Hi Stuart
Sorry to say the new look website still isn’t a great experience on an iPad. I very rarely use my PC or laptop now as all of my internet browsing is done via my iPad. The scrolling issue has improved since my last post. I managed to sign in today but when I went to the newcomers posts I was signed out! so could not contribute.
I’m not…[Read more]

Tom just keep your positive onwards and upwards met someone the other day who had 4 years then it came back had treatment and it went away again for 5 years :0))

Jo x

Hi Stuart.
The new web site looks great.
Now the bad bit. – I find scrolling through the posts on the forum very slow and it’s very difficult to edit a post. I’m using an iPad. I haven’t tried it out in my PC yet though I will give it a go when I’ve dusted the cobwebs of that ancient piece of machinery.
I’m not blaming your work just wondering if…[Read more]

Hi all
Got this message from Becky Crowther via Facebook.

Andrew Godfrey please let everyone know in the our Dai group on Myeloma site that my brother made a speech today and he read out some of the beautiful posts from there, you were all mentioned and very much thought of today…all our love to you all xxxxxxxx

Hi Tom,
So sorry to hear this, you are always so positive and I am sure your approach to this dreadful MM, will have you back in remission in no time xx 😉

Thinking of you, good luck

Love and best wishes

Karen
xx

Hi Tom.
I already knew of your sad news via Facebook. I’m not going to tell you how everything will be ok and how great Velcade is because you know better than most, excluding the medics, the pros and cons of most treatments.
You’re one of the longer serving fighters on this forum and I wish you well in the next phase of your battle and that…[Read more]

Hi Sims and thanks for the reply. I think is is definitely something I can mention to my specialist, I am seeing him on Tuesday and I think any input is a positive thing.

Good luck & take care

Mandy x

Hi Andy

Thank you so much for your reply 🙂

I am now seeing a Nuerologist on Tuesday so I will mention to him about bone pain possibly being related to the Stem Cell production.

Its a little depressing to think I may have to live like this if it is damage caused by the treatment, I don’t have much quality of life and I am only just 50. My…[Read more]